LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » my only lyme symptom remaining-or is it not a lyme symptom?

 - UBBFriend: Email this page to someone!    
Author Topic: my only lyme symptom remaining-or is it not a lyme symptom?
yankees237
LymeNet Contributor
Member # 25791

Icon 1 posted      Profile for yankees237     Send New Private Message       Edit/Delete Post   Reply With Quote 
1 year ago today i was bit by a tick and got

lyme. within 2 days i started doxy...have treated

by a LLMD and have been on

antibiotics since then. i have never really felt

worse then 90% but have not been able to get to

100% and im afraid to stop treatment before

reaching 100%. the few symptoms i did have were

pretty minor and have gone away (sound

sensitivity, some wrist pain)


the only symptom i have is this feeling i usually

get in the afternoon. it only lasts for an hour

or so then goes away. basically i just feel brain

foggy, a little disoriented and tired. im

starting to think this isnt a lyme symptom

because it hasnt gone away. how could somebody

who began such early treatment still have this

symptom a year later? i have followed every dr

burrascano guideline like it was my religion.

have not had a drop of alcohol. could this

persistent symptom be something else?

Posts: 132 | From jersey | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
Deshi
LymeNet Contributor
Member # 30949

Icon 1 posted      Profile for Deshi     Send New Private Message       Edit/Delete Post   Reply With Quote 
co infections?
Posts: 105 | From Ca | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
yankees237
LymeNet Contributor
Member # 25791

Icon 1 posted      Profile for yankees237     Send New Private Message       Edit/Delete Post   Reply With Quote 
ive also been treated for co infections in the past

year. is it possible it could be from an over

stressed liver? adrenal fatigue? something other

then lyme? i just don't see how after a year or

treatment this one symptom lingers.

Posts: 132 | From jersey | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
IMO and experience that sx is lyme. Could be something else but I don't know if it would be good to stop tx and find out it is lyme and more.

I did 3 yrs+ of abx early on or maybe within 6 mths of sx. Other things including more tick bites set off a chain reaction which turned me chronic.

You don't sound like you hit bottom. Good for you. But I would be so afraid to stop them to early.

I've had sx that have lingered for 12 yrs. I would rather be safe than sorry. There are many options that might keep immune system fighting like herbs, supps etc. I switched to alternative tx years ago.

Lyme is slow multiplier? But wonder if suddenly you got the flu or something that overloaded your immune system?

Only you can make that decision. You might want to do search on this site using "relapse" and read some threads from those that quit and won or quit and lost.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6394 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
little_olive
LymeNet Contributor
Member # 28063

Icon 1 posted      Profile for little_olive     Send New Private Message       Edit/Delete Post   Reply With Quote 
I personally find it hard to believe that's just Lyme disease.

You said:
quote:
"ive also been treated for co infections in the past year."
Treated for all of them or just the ones that turned up positive?
Posts: 512 | From USA | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
yankees237
LymeNet Contributor
Member # 25791

Icon 1 posted      Profile for yankees237     Send New Private Message       Edit/Delete Post   Reply With Quote 
map1131...you caught it early and youve been on treatment for 12 years??

little olive .... i was treated for babesia and

bartonella which what my LLMD believed me to have.

with those treatments symptoms like dizziness and

sensitive hearing have disappeared (months

ago)... just this brain foggy feeling is the only

symptom remaining and i cant seem to shake it.

Posts: 132 | From jersey | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
deerose
LymeNet Contributor
Member # 27484

Icon 1 posted      Profile for deerose     Send New Private Message       Edit/Delete Post   Reply With Quote 
when my LLND treated adrenal fatigue I came out of that predictible afternoon slump.

And out of the crushing fatigue as well.

so it may be as other posters have said..persistent infection...but that does not mean it cannot also be
need for adrenal support...or more than you have had.
I have regular adrenal herbal support tinctures from LLND plus a supplement from the EDS practioner.

Within 36 hours of that herbal support I felt a big change.

it made all the differenc e in the fatigue.
I still need to keep gaining endurance...still fighting active infections but steadily improving.

From what some say,too, each bite can deliver a different load of infection so that might be part
of your answer too.

Just my two cents.

--------------------
Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein

Posts: 208 | From Northeast | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
lululymemom
Frequent Contributor (1K+ posts)
Member # 26405

Icon 1 posted      Profile for lululymemom     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sounds like a bart symptom to me.. Try taking RNA (ribonucleic acid) and see if you have any improvement. Take it 3 times a day with meals. Eleuthro(Siberian Ginseng) really helps with the fatigue.

--------------------
IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

Posts: 2026 | From British Columbia | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
fogginess can be yeast

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13710 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
kd888
Member
Member # 29652

Icon 1 posted      Profile for kd888     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Yankees237,

I had many more symptoms than you but didn't get the brain fog thing until I had a relapse from going off abx too soon-- I was not seeing an LLMD at the time. Misguided PCP!

Anyway, after 7 months of treatment with an LLMD who I am still seeing (still on abx) all symptoms are nearly gone--

-- except (and as you describe)this late afternoon foggy feeling and tiredness.

I think (mine) is a Lyme symptom still hanging in there. I read somewhere (can't remember where) that this weird 'head' symptom/fatigue is often the last one to clear up and can take quite a while.

If your symptom has lessened over time-- foggy feeling lasting for only 20 minutes or so instead of for hours or a day, then that sounds like progress has been made.

When you get to the point where it's only lasting for a few minutes and then there are days that you don't have it at all, then that's even more progress. IMO....and my LLMD's.

I know this symptom is frustrating! And my LLMD says that I must go at least a month with NO symptoms before I can consider going of ABX.

I'm going to stick it out and continue abx until this symptom is gone too. Hopefully this will be soon!

It's such a downer to have a great, symptom free day and then feel this weird, relentless fatique and foggyness later on. Mine still lasts a few hours.

I'm seeing my LLMD today and will ask him more about this.

Posts: 29 | From New York | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622

Icon 1 posted      Profile for lymeinhell     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had this too - and it was caused by yeast, not Lyme. This was right around the time my LLMD weaned me off abx. I was a bit fearful we were stopping too early, but my LLMD was correct.

The yeast caused me to become reactive hypoglycemic - hence the tired drunk feeling that would hit right after lunch time. It also messed with ATP production - the fuel power source for your cells.

Once I aggressively treated yeast, added a high quality CoQ10, and started taking NADH (which blasts oxygen into your cells), I got over this hump. It took a couple months.

Lyme does more than introduce a foreign bacteria into our bodies, and sometimes the treatments themselves mess up other functions in our bodies. Without addressing these other disfunctions (yeast, parasites, mineral deficiencies, toxicity), you will never be 'symptom free', regardless of how long you stay on abx. The abx themselves contribute to the mess (but are a lifesaver).

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

Posts: 2257 | From a better place than I was 11 yrs ago | Registered: Sep 2003  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yankee, I believe that I first got lyme fall/winter 98, sx that came and went like knees, fatigue, wrists problems, little stuff.

Summer '99 I was attacked by 12 bites I thought were chiggers. Covered with clear nail polish like my sister said. When I got lyme educated my LLMD said nope, those were deer ticks/nymphs that you blocked with nail polish.

Exactly 3 weeks later, the flu-like illness from he!! sent me to my knees. I knew day 1 that this was not the flu.

42 year old woman know what flu feels like. 10 days later I went to my PCP and told him I had food poisoning. He said nope, your sx say to me lyme disease. Abx were started immediately. I was already chronic.

I took abx from 7/99-5/03. I changed treatment in 03, if abx hadn't killed it by now? I went alternative.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6394 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
yankees237
LymeNet Contributor
Member # 25791

Icon 1 posted      Profile for yankees237     Send New Private Message       Edit/Delete Post   Reply With Quote 
lymeinhell and kd....your posts made me feel better......

lymeinhell please let me know what else your llmd

says about the brain fog feeling...and by the way -

that is a great way of describing it "drunk" -

thats exactly how i feel. ive actually gone weeks

without having it recently - but unfortunately i

got sick each time and then it resurfaced [Frown]

Posts: 132 | From jersey | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622

Icon 1 posted      Profile for lymeinhell     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yankee, glad to give you a bright spot.

Brain fog has many causes. For me, it was a rule out and fix, little by little.

I was SOOO yeasty, that I literally would get drunk after eating. The candida would turn the food to alcohol.

And it messed with my blood sugar ( would drop to the 40's after eating), so #1 was fix yeast, and start taking cinnamon pills after each meal to help balance sugar.

I took diflucan, Oil of Oregano, and grapefruit see extract.

The drunk feeling started to go away after 2 mos or so, but I would still hit this really tired omg I have to sit down patch mid day. (Which was awfully inconvenient since I worked throughout this. )

And that's where NADH came in extremely useful. We reasoned that my cells were literally running out of energy before my day was physically over (was shown some good research on it but can't recall right now from where).

So added in CoQ10 from Allergy Research (big $$) and NADH (from Enada), and within a couple weeks, it didn't happen any more.

So if it's only happening sometimes, perhaps you could correlate to your dietary intake? Do you keep a food log? It might be extremely helpful to you to do so. Are you eating to your food type and condition? Meaning, low carb, high protein, sugar free?

If it were me, I would examine your diet and see if there is a pattern, and then address yeast. But that's just IMHO.

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

Posts: 2257 | From a better place than I was 11 yrs ago | Registered: Sep 2003  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
yankee, I'm sorry I didn't have a feel good story for you. This is my experience therefore I'm not so sure it's all gone if there is still sx.

Yes, stopping abx and doing things like super detox, herbs, attacking yeast, grapefruit seed is all good ideas.

I'm saying don't loose site of sx, no matter how sutle they are. Drunk feeling reminds me of babs sx. Foggy head is lyme, IMO.

I only have brain fog, fatigue, knee pain, neck pain on my lyme cycle. Or if I let myself do too much life for a couple days.

I took rifampin in '10 to see if I could get rid of bart sx in GI. It did while I was on them for 3 mths and then came back within 2 weeks of stopping abx.

Lyme sx on Rifampin was daily battle. Lyme doesn't like me to treat bart with rifampin. Rifampin also is known to hit lyme forms.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6394 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
arenele
Junior Member
Member # 29360

Icon 1 posted      Profile for arenele     Send New Private Message       Edit/Delete Post   Reply With Quote 
yankees237, check for presence of chlamydia pn.

I would assume that you no longer have
Bb.

Posts: 8 | From Poland | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.