LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter



Tax deductible

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.
In the United States, your donations are tax deductible.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Is fatigue and brain fog mandatory for Lyme

 - UBBFriend: Email this page to someone!    
Author Topic: Is fatigue and brain fog mandatory for Lyme
mattnapa
LymeNet Contributor
Member # 26414

Icon 1 posted      Profile for mattnapa     Send New Private Message       Edit/Delete Post   Reply With Quote 
So I have a weakly positive western blot test for Lyme and have some paraesthesia, tinnitus, hyperaccusia eye floater, twitchiness,wavy line and occasionally systemic sensitive skin. My new LLMD is discounting Lyme mostly on the basis that I do not have serious fatigue or brain fog. I do not really have a problem with it since I think they idea is that Lyme could come back into focus if nothing else is found to be the cause. But I am curious in general what people think about that.

Also I get the impression he is looking for a bit of a single bullet cause. Perhaps this is because I had a pretty strong sudden onset of much of this ten years ago, and that could be a rationale for a single cause. He also seems dedicated to making a specirfic diagnosis as opposed to shotgun type therapy, and I think that tactic almost requires a single agent.

Posts: 357 | From California | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
miles2go
Member
Member # 20119

Icon 1 posted      Profile for miles2go   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Have you had abx treatment in the past? If you are young and have a robust immune system,that might explain not having fatigue and brain fog. Do you remember having had Lyme fog and fatigue in the past? If so, maybe the abx partially killed the spirochetes but you're still dealing with floaters, tinnitis and parathesia. Wavy lines? Do you mean in the eyes? If so, you should see an opthalmologist. Maybe you should get a 2nd opinion from another LLMD who would clinically diagnose your symptoms.
Posts: 75 | From Va. | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
miles2go
Member
Member # 20119

Icon 1 posted      Profile for miles2go   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thought I should add this just in case: If the wavy lines are in your eyes, I had dark wavy lines in the eyes one time and it turned out to be a retinal tear - a retinal tear needs a repair on an emergency basis.
Posts: 75 | From Va. | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've heard others here say that they had plenty of energy.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 93950 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
onbam
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I have no fatigue but plenty of brain fog. No given presentation is necessary for Lyme; it can attack any part of your body.
IP: Logged | Report this post to a Moderator
mattnapa
LymeNet Contributor
Member # 26414

Icon 1 posted      Profile for mattnapa     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for the responses. The wavy lines are only in certain situation where the borders of certain things tend to wiggle a little. It usually goes away if I close one eye. Others here have said I shouild see an opthomologist as well , but perhaps they thought I was describing this othe wavy phenemenon which seems to be an emergency. At best I think they will tell me I have MS or something so I do not see much point in going. It has not really worsened in 7 years or so, but it does concern me some.

I am 51 have never had abx, but have always been the type to really go at it in sports and exertion in general. Not sure if an attitude can overcome fatigue in some. but I am a rather willful type at times

Posts: 357 | From California | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
jenniferk32
LymeNet Contributor
Member # 30718

Icon 1 posted      Profile for jenniferk32   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I really don't know- I've always pushed myself past my fatigue because I have to, being a single working mom. Plus I go to the gym 4-5 times a week even when I'm super tired and it gives me more energy. But I REALLY became exhausted daily once I started treatment.

My llmd says it's because the abx, herbs and such bring the Lyme out of your joints, tissues, brain and wherever else it's hiding into the blood stream where your immune system can fight it. Fighting it wipes you out.

Your llmd should know that there is no standard, textbook case of lyme, everyone experiences different things. Plus he/she should know that the tests for it are not very reliable.

Also according to my LLMD, Lyme does not like to be in the bloodstream where antibodies can attack it. It likes to hide as I mentioned above. So that could be why you don't show much in the way of antibodies.

He should test your CD57 levels. Low levels are particular to Lyme. In Kenneth Singleton's book "The Lyme Disease Solution" he lists all the reasons a test can be negative.

Maybe you need to see a new LLMD.

Posts: 107 | From Hesperia, CA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
Look into ammonia and ways to detox it
Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

Icon 1 posted      Profile for bcb1200     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have all of your symptoms and I never really had bad fatigue or fog.

It is definitely lyme, babs, and bart for me.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3097 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2019 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


Home | Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Webmaster