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» LymeNet Flash » Questions and Discussion » Medical Questions » Trileptal, Lamictal, Ativan

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Author Topic: Trileptal, Lamictal, Ativan
faithful777
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Has anyone had their LLMD put them on Trileptal, Lamictal and Ativan all at the same time on their first visit?

During the visit we talked about being forgetful, losing my temper and panicking when I forget things but this group of drugs all have drowsiness as a side effect. I am never going to be able to feed myself.

I tried the Trileptal, and had tingling all over, all night long. I did not sleep most of the night and when I did, I had night mares and was yelling in my sleep. So that drug is not going in my mouth again!!

Just taking 1/2 of a 25 mg Lamictal helped me sleep better, but they want me up to 3 tablets twice a day in the next three weeks.

The ativan is an anti anxiety drug and they make me depressed. I use ashwaganda for controlling my temper and it isn't perfect, but it really helps a lot. I don't want to take the ativan.
Has anyone else been on these drugs?

Is it normal to get so many on the first visit? Do you stay on these the whole time you are being treated for Lyme? I just think I am going to cause more issues being on so many different drugs.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2679 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
sutherngrl
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Don't know why you would take "TWO" drugs that are basically used for the same thing. Trileptal and Lamictal are both anti-seizure drugs.

I took Lamactil for a while for a mood disorder, but had a reaction to it and had to change to Risperdal. I also take an antidepressant with it, plus Xanax. But I am in the process of weaning off of the Xanax.

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Susie R
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Wow...trileptal and lamictal are both anticonvulsants used to treat seizures (especially temporal lobe seizures) and off-label, as mood stabilizers in bipolar disorder.

My son, who has been ill with TBD for many years before diagnosis, had lots of problems with agitation and aggression because that are responding to antibiotics. But he'd been managed for many years psychiatrically with Lamictal, Tegretol(related to Trileptal), Klonopin (related to ativan) and other psychotropic drugs.

But most doctors, I think, would prescribe one medication at a time. Especially with Trileptal and lamictal, both of which have rare but potentially very serious side effects. (Sodium depletion with Trileptal, and Stevens-Johnson syndrome with Lamictal). Both are metabolized in the liver and induce enzymes which complicate the prescribing of both of them. Even experienced psychiatrists wouldn't start both meds at the same time. One after the other, not uncommon, but not at the same time.

My .02 cents, fwiw.

I hope you feel better soon.
susie

Posts: 234 | From albany, ny | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
faithful777
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They wanted me to start the Trileptal for one week and then start the Lamictral. I could not tolerate the Trileptal at all.

When you are in pain all the time you can't help being grumpy sometimes. I try not to be agitated but sometimes it is like a boiling pot I can't stop. I am better taking the ashwaganda and would rather take supplements instead of more drugs.

I am extremely sensitive to all drugs and usually have to take the smallest dose. I am not even on antibiotics yet. I am supposed to start those in October.

I am going to call the doctor's office tomorrow and tell them I am not going to take the ativan. They wanted to give me Klonipin and I said I would not take it. In the past, I took cymbalta and it made me feel like the end of the world was near. I don't need to feel worse.

I also have worked extremely hard to lose weight. I packed on a lot of pounds when I got sick and I am not putting them back on because of prescribed medications. I have lost 120 lbs in the past 19 months. They are not coming back.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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MannaMe
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My husband was on ativan for anxiety. He says it did take the edge off, but didn't take the anxiety away completely. He eventually weaned off of it by himself. It wasn't easy - had to take it slowwwwww due to the withdrawal.

So if you can get help from a supplement - by all means go for it! Some people have an awful time getting off benzo meds.

Posts: 1455 | From USA | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
faithful777
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I spoke to one of the nurses today about not being able to take Trileptal. They are checking to see if the doctor wants me to try something else.

The idea behind the anti seizure drugs is to get pain under control before antibiotics are started. Die off causes pain issues so they want pain under control before you start antibiotics. I have so much pain all the time so I am going to try and take the drugs they prescribed. They also prescribed supplements too. I already take so many.

I see Dr. J in DC so I am going to have to trust that he knows what he is doing.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2679 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
hulagrrl
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Hi.

It's funny, I was about to post a question about the exact same medication regimen. We've surely got the same mid-Atlantic region doctor. At the first visit I was recommended to start Lamictal, Neurontin, and Ativan at least a month before any antibiotic treatment would begin.

My question is this:
Is this standard among physicians who are treating for Lyme? I've never heard of it. Don't other people just go on the antibiotics straight away? I have a lot of apprehension about adding three new medications to my already extensive medication cocktail. I'd really rather not. And yet, nobody else so far has been willing to treat me for this infection, so at the moment it seems I have to do their treatment or no treatment.

I've already take similar medications for migraine preventative and pain management (in fact, I'm already on two drugs that are quite similar to those prescribed, and I don't know why they would be duplicated). So I asked my neurologist and primary care for opinions as to adding these three medications additionally. After one dismissively told me I was "veering off into voodoo", he opined that Lamictal was a dangerous choice, and Lyrica was a safer choice. And that there was no need to add multiple medications at the same time. But then he also said "I can't evaluate this because I don't know what they're treating you for - an infection that doesn't exist!"
When I questioned the llmd about the Lamictal side effect risk, they came back with a new program of Lyrica, Trileptal, and Ativan. Again, three new drugs.... Then, yesterday my primary care said "why Lyrica? That'll make you too drowsy- Savella is a better choice." I'm not really getting anywhere.

What do people think about this pre-antibiotic treatment neuropathic pain management medication business?

Faithfull777, what are you going to do?

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faithful777
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The doctor said that being in a lot of pain prior to antibiotics is going to put too much stress on the immune system unless you address pain and sleep.

The antibiotics work better when the body isn't going through all that inflammation. The die off from the Lyme is going to create it's own issues and if your pain level isn't in a good place when you start, you won't be able to handle the antibiotics.

There are many people who are seeing this same doctor that I have connected with that ARE getting better. I am going to have to trust that.
The cocktail they prescribe is supposed to work together to get you out of pain and allow better sleep so you can eventually heal.

I am going to try the drugs. I am in horrible pain all day and night. I am not having any problems with Lamictal and actually have slept better this week because of it. I haven't gone up to the full dose yet, but if the pain stops, I will be relieved. I am going to trust Dr. J.


I did horribly on Lyrica. If you are talking about Topamax for migraines, I had to get off of that too.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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sk8ter
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Have you tried LDN for pain...it is a miracle...
Low Dose Naltraxone...ask your dr about it.

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MannaMe
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ask a pharmacist about the combination of drug safety. They know more about drugs than doctors do.
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jwall
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I have the same dr. and I refused the drug cocktail - scared me honestly...however I am in severe pain much of the time. It really stinks that our options are take a ton of drugs and become zombies to numb the pain or to be in severe pain because nothing else works. I too am extremely sensitive to the antiseizure class of medication. I guess I am just hoping and praying that the pain will subside on its own eventually, but the pain makes life and treatment extremely difficult.
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faithful777
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quote:
Originally posted by sk8ter:
Have you tried LDN for pain...it is a miracle...
Low Dose Naltraxone...ask your dr about it.

I have already gone the LDN route and it didn't help me at all. I did sleep better, but that is all I got from using it for over 6 months.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2679 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
faithful777
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quote:
Originally posted by jwall:
I have the same dr. and I refused the drug cocktail - scared me honestly...however I am in severe pain much of the time. It really stinks that our options are take a ton of drugs and become zombies to numb the pain or to be in severe pain because nothing else works. I too am extremely sensitive to the antiseizure class of medication. I guess I am just hoping and praying that the pain will subside on its own eventually, but the pain makes life and treatment extremely difficult.

I have been in such extreme pain for so long, and I can't stay like this. My quality of life when I hurt like this is nil.

I am going to see if I can tolerate at least one of the anti seizure meds. I won't take all of the drugs they recommend for pain, but this doctor treats a lot of people successfully. I have emailed many of them, and they are all doing okay and getting better.

I know this particular doctor doesn't like narcotics, but I am already getting them from my neurologist for herniated discs in my neck and back. They only take the edge off, but I might be able to change to another narcotic that works better. I do not have side effects from vicodin at all.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2679 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
jwall
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I did agree to take neurontin - wouldn't treat me otherwise. It seemed to help a little, but I was still in so much pain once I started antibiotics. Now I am weaning off - I just don't like the way it makes me feel, but I have severe spinal, neck, head pain. Cognitively I am much clearer though - that is a plus. It is very hard to live with this pain. I have been treating with Dr. J for 12 months now and am getting better, slowly, but surely. :)My neighbors treated with him and are well and happy now. Took a long time though! He is an excellent Dr. and doesn't want us to be in pain.
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Beachinit
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Plain dextromethorphan that I bought at Walmart
was helpful for pain relief when magnesium glycinate was not completely effective. No euphoria, just some pain relief but must keep the dose below a few hundred milligrams to avoid
undesirable effects.

--------------------
Ideas not advice.

Posts: 448 | From Downeast Maine | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
   

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