posted
my regular doc is demanding i take this, it's a corticosteroid. isn't that a no no?
Posts: 147 | From youngstown | Registered: Oct 2011
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posted
Alot of people can't take it, I'm one of them. Some people do well on it.
Look up the side effects.
Posts: 789 | From CT, | Registered: Jun 2006
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
No, it's not a corticosteroid, it's a mineral corticoroid. ANd it's essential for many of us, if we don't want to pass out every time we are upright!! If you need it, it can make a huge difference.
Posts: 3771 | From around | Registered: Mar 2008
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Take it if you can't tolerate upright position. I do and it helps, though only slightly, but I'll do anything even for minimal improvement.
Mineralcortical steriods are very important to your body. Your adrenal gland may not be making enough.
Posts: 1358 | From Midwest | Registered: Apr 2009
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posted
I was supposed to take it but it made me puff up and then made me ravenously hungry. I couldn't stand it and stopped the drug.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Does that mean that taking adrenal support will help? I'm concerned that if I take one of the herbal or homeopathic adrenal support formulas, it will cause my body to produce _more_ adrenaline; it's when I produce adrenaline that I have a terrible reaction.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
My issues were I couldn't stand without fee like I was going to pass out, I have passed out, racing heart, confusion, sweating.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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canbravelyme
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Member # 9785
posted
Are you on Florinef now? To what extent / how did it improve your quality of life?
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Chootik, Florinef is to RAISE your blood pressure, in general, or to raise it because it DROPS while standing.
You shouldn't take it if it goes up when your stand. I'm no doctor, but I think they prescribe beta blockers or calcium channel blockers for your condition.
Posts: 1358 | From Midwest | Registered: Apr 2009
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Rivendell, my problem is that my blood pressure normall is already on the low side so taking Beta Blockers would make it worse.
My pressure only goes up after standing for a while or if I haven't eaten in a few hours. IT's probably adrenal and dehydration issue that has to be fixed.
Prob. Florinef would be the thing for me as you say. But it seems to be helpful to people.
Posts: 247 | From Ca | Registered: Feb 2007
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Did you read where someone was saying that if you clear the kidney and liver channels, this improves?
I'm starting there.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
I'm sure my whole body needs a cleanse.
Posts: 1358 | From Midwest | Registered: Apr 2009
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Chootik,
You might try increasing your salt and water intake first. That helps to increase blood volume and blood pressure, and for many that is all they need to do.
But if you use Florinef, it will raise your blood pressure, so the standing would increase it even more with your condition, I would think.
do you see a cardiologist? They may know the best approach.
Perhaps the cleanse that canbravelyme mentions would help.
I'm getting off the computer now. I'm getting dizzy.
Taking electrolytes but I think I need to take more water too.
I just feel my whole system is out of whack! I think I am low on a lot of the minerals will order a multi-mineral supplement that used to make me feel really good, I should start taking it again.
Working on liver detox now. I have to up it probably.
The funny thing is I saw the Cardiologist last week but totally forgot to mention this. I had a sharp pain in the back by the left shoulder blade so went to get that looked at and forgot to mention this. He is really not very caring so probably would just shrug his shoulders and say I'm fine!!
Anyways, Merry Christmas to you too.
Posts: 247 | From Ca | Registered: Feb 2007
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