LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Severe Bartonella (what would you do?)

 - UBBFriend: Email this page to someone!    
Author Topic: Severe Bartonella (what would you do?)
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have an absolute severe case of Bartonella (flare ups everyday) that can cause encephalitis and land me in the hospital at the snap of a finger.

I tried Rifampin (with doxy) and it was amazing. 90% of my symptoms cleared up with Rifampin. But Bart became resistant after 2 months and the Rifampin was worthless. Literally slowly stopped working and encephalitis symptoms crept back.

Now I'm taking Houttuynia (HH2 caps) and it's helping... but again I feel as though Bart is finding ways around it or even developing some resistance (I thought they used Houttuynia FOR resistant Bart strains)


Anyhow... what would you do in my situation?
It's becoming a matter of life or death and my family is discussing options. I can't ignore Bartonella for a single day or major CNS symptoms come on and I lose 5 lbs & end up in ER with swollen CNS and brain and feelings of going into shock [Frown]
Bart Encephalitis (Dr S talks about it in his book)

I really can't see an LLMD until April.
I'm seeing a Naturopath right now but quite frankly they don't know much about Bart. They have me on Amoxicillin + Zithro + Plaquenil. It's just not touching Bart.

I pray to God that Houttuynia (HH2) continues to help and keep Bart at bay. And hopefully Bart can't/won't develop a resistance to it. I take 8 caps a day and sometimes 12 caps if Bart comes on before bed (which it usually does)

This is awful & at 28 years old I feel my days are running short.

Other options if all else fails...?
Ozone?
Colloidal Silver?


I dunno [confused]

**edited name of LLMD**

[ 01-14-2012, 02:46 PM: Message edited by: Lymetoo ]

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
jackie51
Frequent Contributor (1K+ posts)
Member # 14233

Icon 1 posted      Profile for jackie51     Send New Private Message       Edit/Delete Post   Reply With Quote 
Have you tried Cipro or Levaquin?

What about Byron White Formula A-bart?

I know nothing about ozone or collodial silver. I don't recall either being mentioned in Dr. B's guidelines.

Posts: 1374 | From Crazy Town | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
jackie81
LymeNet Contributor
Member # 27031

Icon 1 posted      Profile for jackie81     Send New Private Message       Edit/Delete Post   Reply With Quote 
Iam sorry you are going through this.

What are your symptoms of bart?

Like Jackie asked have you tried levaquin?

Posts: 573 | From Out there somewhere | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Colloidal silver will not work in my opinion. Hubby even did that IV. And he did a few IV blood ozone treatments -- very expensive and I don't think they did much either.

In my opinion you need to attack bart in multiple ways.

As I said before I think either cipro or levaquin or factive would be helpful.

Or if you are going the herbal route then cryptolepis might work.

But if the brain is too inflamed then I think you need something like IV rocephin while you also take the bart drugs. According to Dr B rocephin is bacteriostatic for bart. The first time hubby did rocephin years ago it did help, but symptoms came back within a week of stopping the rocephin. But that was the only med he was taking at the time.

I don't know if bicillin would help or not -- hubby never tried that.

If you do not have the herpes virus then I would try the amino acid arginine with your other treatments.

If you have any left then add back the rifampin. Sometimes combos of meds can work when the single med does not.

I would also increase your antioxidants to help detox the brain. Vitamin C, CoQ10, pycnogenol (pine bark extract).

If you are not doing so I would add in lumbrokinase or wobenzyme -- but go slow on the doses. You need something to help clear up cellular debris and open up bloodflow so the meds can get to the bacteria.

Sorry things are so bad.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
Member # 16556

Icon 1 posted      Profile for glm1111     Send New Private Message       Edit/Delete Post   Reply With Quote 
A strong combo of antiparasitic herbs and high dose salt/c knocked out my bart and babs. (ramped up slowly of course with salt/c) Perhaps Ivermectin with doxy could help.

I would definitely give this a try. Very upset to hear you are not doing well. I am going to pm you. [group hug]

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
One more thing I am not sure if I mentioned before. You could try stephania tincture from Woodland Essence. I don't really think it will get the bart, but it does cross the blood brain barrier and will help with the brain inflammation.

I would also stack most of your meds late in the day and especially before bed. Bart is supposed to replicate over night.

I know with hubby we sure are glad to be rid of the nightly waking up seizure-like episodes that lasted for almost 10 years before we got rid of his bart or whatever it was. He has been off seizure-meds for over a year and the lab has not seen what they thought was bart on his bloodslides in over a year.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for help yall


Seibert,

Cryptolepis helped your hubby for Bart?

And do you think IV may be necessary to treat a Bart this bad?
I guess I will have to try Levaquin soon. Tendons be damned.

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would take Levaquin. That's how I got rid of bart. (Then, followed up with Bactrim DS.)

You will almost always get some warning symptoms if tendon damage is going to occur. Be sure to load up 2 weeks in advance of the Levaquin with magnesium, etc. as advised on this site:

http://www.lymebook.com/antibiotic-treatment-for-babesia-bartonella-ehrlichia-co-infections

Do everything it says on this site regarding the levaquin. Lower dose, etc. if need be.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
TF,

Can you take magnesium while on Levaquin too?
(nevermind, I see Dr S says yes)

**Lymenet rules do not allow the posting of LLMD names**

[ 01-15-2012, 03:35 PM: Message edited by: Lymetoo ]

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Lala
LymeNet Contributor
Member # 29864

Icon 1 posted      Profile for Lala     Send New Private Message       Edit/Delete Post   Reply With Quote 
If you have significant encephalitis, you need to add something that penetrate the brain well and that is minocycline or rocephin.
Posts: 125 | From eu | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
robbiem
LymeNet Contributor
Member # 32092

Icon 1 posted      Profile for robbiem     Send New Private Message       Edit/Delete Post   Reply With Quote 
I agree with Gael --- perhaps it's time to hit a different infection and back away from the Bart, even though it's seems to be the thing that is most predominant in symptoms for you.

I had the same issue with Babesia. My LLMD backed me off of the treatment I was on for that, even though my symptoms were over the top, and instead we went after the parasites.

I felt infinitely better within just a few weeks, and oddly enough the Babesia symptoms all but subsided.

Posts: 192 | From New England | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
Dave6002
Frequent Contributor (1K+ posts)
Member # 9064

Icon 1 posted      Profile for Dave6002     Send New Private Message       Edit/Delete Post   Reply With Quote 
The Bart resistance developed to Rifampin or other medicines or the immune system probably is due to biofilms formation.

By attacking the biofilms, Bart may be accessible by the medicines and the immune system again.

That's what I am doing now and it seems working.

I don't have such severe symptoms as yours. It's hard to believe that such severe symptoms are from Bart

Posts: 1078 | From Fairland | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
Dave,

What are you doing to attack biofilms?
I have Lumbrokinase that I haven't used yet.

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
robbiem
LymeNet Contributor
Member # 32092

Icon 1 posted      Profile for robbiem     Send New Private Message       Edit/Delete Post   Reply With Quote 
canefan17

I have heard that aside from enzymes, that Molybdenum as well as Bismuth are promising.

Also something called Interface Plus -- which you need a prescription for, but can buy online.

Posts: 192 | From New England | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
Myco
LymeNet Contributor
Member # 9536

Icon 1 posted      Profile for Myco     Send New Private Message       Edit/Delete Post   Reply With Quote 
Cipro worked for me. No tendon problems when you take magnesium a few hours away from the antibiotics.
Posts: 761 | From USA | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
ihavelyme
Member
Member # 30170

Icon 1 posted      Profile for ihavelyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
I also suspect biofilms could be the culprit in this case.

Try some biofilm busters and then perhaps re-start the rifampin or even HH2 or A-bart.

--------------------
lyme, bart, myco, EBV, yada, yada, yada...

Posts: 40 | From nc | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
GiGi
Frequent Contributor (5K+ posts)
Member # 259

Icon 1 posted      Profile for GiGi         Edit/Delete Post   Reply With Quote 
Treat parasites the Klinghardt way.

Address KPU seriously before getting into more killing.

Address biofilm from all angles possible, to avoid shifting of toxic metals into the CNS. Make certain dental mouth is okay, including addressing wisdom teeth site, whether still there or not.

Address toxic heavy metals and allergies with Allergie Immun.

Look into new HK therapy, a way to get control of/reduce any cytokine storm.

Clear EMF from your home and check mold exposure. If you feel better away from home, these two may be contributing in a big way.

Learn energetic testing - a method that stops you from making major mistakes. And try to find a doctor who does it well.

Avoid going for the quick fix. There is none when it comes to a chronic disease or Lyme, whatever we still call this thing that is keeping us ill.

Don't insist it's Bartonella. We only can test for two of them, but know there are many others bartonellas. Same for Babesia. What makes us think everyone of them causes certain symptoms? We don't know what we have, can't test for them. Even testing energetically, meds cross over into different infections and work for different pathogens.

Treat it all in a gentle way. All need to be addressed alongside each other. Take a look at the KLC (Klinghardt Lyme Cocktail). Don't look for a homerun -

Give a good doctor or therapist a chance to learn how your body works before you run off to another to start a different treatment or take another's favorite thing. Your body is unique.
Patience.

Maybe rethink your approach.

Take care.

Posts: 9834 | From Washington State | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Dave6002
Frequent Contributor (1K+ posts)
Member # 9064

Icon 1 posted      Profile for Dave6002     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
I have an absolute severe case of Bartonella (flare ups everyday) that can cause encephalitis and land me in the hospital at the snap of a finger.
Such symptoms may point to allergy. Have you checked for allergy?
Posts: 1078 | From Fairland | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.