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» LymeNet Flash » Questions and Discussion » Medical Questions » cpap with oxygen

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Author Topic: cpap with oxygen
LymeNet Contributor
Member # 25434

Icon 1 posted      Profile for 2young2dieMom     Send New Private Message       Edit/Delete Post   Reply With Quote 
anyone with lyme need a cpap with oxygen? I'm still hoping I have lyme and not als. my breathing is deteriorating so much.

Dxd ALS 3/2010
Dxd cllinical Lyme 4/2010
Positive for Protomyxzoa but absolutely nothing else in Igenex

Posts: 416 | From central ct | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 8671

Icon 1 posted      Profile for sk8ter     Send New Private Message       Edit/Delete Post   Reply With Quote 
Have you been tested for scleroderma??/It is usally lyme can affect your lungs and heart bigtime..a CT scan of your lungs is the only way to see it ,,,NOT an xray...

A full Pulmonary Function test will show what your DLCO is...If it has dropped rapidly or is near 75% you need to get to a scleroderma center,,Please get this checked out...

Even if you run a scleroderma blood panel and it is sero-negative you can still have the it...The lyme is the culprit but it can trigger this auto immune disease and it is even rarer than lyme !!!Of course they will want to treat with DMARDS drugs but a ABX protocol is available,,,see for info

Posts: 871 | From orange county, ca. | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator

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