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» LymeNet Flash » Questions and Discussion » Medical Questions » What IV antibiotic helped your gut symptoms the most?

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Author Topic: What IV antibiotic helped your gut symptoms the most?
beaches
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I'd like to know if anyone has had a particular IV abx or combo of abx that significantly helped GI problems (along with cognitive stuff, etc).

How long before you saw improvements?

Thanks in advance...

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beaches
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Anybody?
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Hoops123
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I'd like to know as well
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faithful777
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For me it is IV clindamycin, ceftin, batrim ds, and pulsing flagyl. I also did B12 injections daily with deplin.

Improvements were within a few months.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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beaches
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faithful, how much B12 each day (and assuming the methylcobalimin shots) and how much deplin? Did you try folapro or MTHFR-5 before going on the deplin?

Also, were you on all those IV meds at once?

Would you mind telling what GI symptoms (and other symptoms) were alleviated?

Thanks so much.

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droid1226
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rocephin has cured my gastro problems. but that's about it.

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

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beaches
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Thanks droid. That's good to know. Would you mind telling what your gastro symptoms were?

Hope you find something else for the other stuff.

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faithful777
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quote:
Originally posted by beaches:
faithful, how much B12 each day (and assuming the methylcobalimin shots) and how much deplin? Did you try folapro or MTHFR-5 before going on the deplin?

Also, were you on all those IV meds at once?

Would you mind telling what GI symptoms (and other symptoms) were alleviated?

Thanks so much.

Yes I was on all those meds at once. The only med that was IV is clindamycin, all others were orals. Forgot to mention I was on mepron at a high dose too. I have an LLMD who is aggressive and is getting me well.

I take 1/2 cc methylcobalamin and the dose per cc is 20 mg so I am taking 10 mg a day.

I take 15 mg deplin. I tried all the other otc folate supplements and although they are less expensive, they just don't do it for me.

A year ago, all I could eat was eggs and yogurt and everything else I ate pretty much made me feel sick.

I just had a physical LLMD appt a couple of weeks ago and 3 oral meds are going to change. I no longer herx from Flagyl at all. In fact, nothing makes me herx anymore.

Babesia is still kicking my behind. I am actually on oxygen because my pulsox is low. Changing to malarone now. Flagyl is being replaced with tindamax and ceftin is being replaced with cefdinir.

A year ago I could not tolerate the cefdinir but now I think I will be okay taking it.

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Faithful

Just sharing my experience, I am not a doctor.

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Tammy N.
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Abx wipe out your gut. There is no way around it. The only real way of truly fixing your gut is to get off abx.

Most gut issues indicate parasite infections. It's impossible to keep parasites at bay when the gut is off. Maybe try treating for parasites and see if your gut issues resolve. I have heard many positive stories of others fixing their guts (and other symptoms) by going after parasites.

Best to you.

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faithful777
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Not true, if you take a good amount of probiotics you can protect your gut. Also, diet is key to all of this. My LLMD treats for parasites but the best thing I ever did was go on the Geno type diet which is the next generation to the blood type diet.

It started healing my stomach even on all those drugs.

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Faithful

Just sharing my experience, I am not a doctor.

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beaches
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Faithful, thanks for your reply. I am assuming you have a MTHFR mutation as you are on the B12 and the Deplin??

Do you have a CBS mutation and/or SUOX? Just asking b/c you mentioned the Bactrim. If my questions are too personal, I apologize in advanceyou can just PM me if that is better.

I am heterozygous for the CBS mutation and Ive never had a problem with Bactrim or any food high in sulfur.

I will have to channel some extraordinary math skills (which I am now lacking, and come to think of it, Ive never had extraordinary math skills lol) to see how your daily B12 dose compares to the weekly one.

Did you tolerate the Deplin w/o side effects? Just today I learned that folate can cause anxiety.

Im nowhere near 15 mg of folate, but experienced random anxiety attacks out of nowhere and for no good reason.

I used to get these attacks from Lyme itself years ago but that hasnt happened in a long time. These recent attacks began when I started supplementing with the folapro. I worked my way up to 2400mcg, or 2.4mg. So apparently I am sensitive to this and I will have to watch my dose closely.

Glad to hear you no longer herx! Ive always tolerated flagyl well. Then again I was only on it twice, both times for c. diff.

Sorry to hear about the lingering babesia. Sounds like youve got a strong strain of it if your pulse-ox is low. I hope the malarone helps. Will you be taking zith at the same time?

Thanks for your input and best of luck to you.

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beaches
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OK, so now I have more work to do! Need to look into that Geno diet.

My family's diet is pretty darn good---lean proteins, lots of fresh veggies and fruits, good oils, gluten-free, no soda, as organic as possible, etc.

We're very low on the junk food scale compared to the majority of people we know. Not an easy task when you have kids to feed.

Tonight the kids actually argued over who should finish the leftover salad, which is a little surreal.

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beaches
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Tammy, thanks for your input. I know what abx can do to the gut. I also know about parasites.
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faithful777
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I am heterozygous for MTHFR and so is my husband. Never had any issues going to 15 mg of deplin but I am sure you will eventually titrate to where you need to be. The B12 is what help make my brain cells work again.

Flagyl used to cause a major herx in me. Both my husband and I hated the two weeks we had to take it because we would get zinged with pain from somewhere at random.

I am treating Bartonella, Babesia and Ehrilichia for coinfections. I have been out of the country and all over the US and as you know, there are many strains of coinfections they can't even test for.

I can't take zith. It causes Q T prolongation with certain drugs and it conflicted with a muscle relaxer I was on. Found out the hard way as it caused all kinds of heart issues. The IV Clindamycin replaces that and hits Babesia.

No problems on the Batrim at all. My husband herxes like crazy when he takes the flagyl with the bactrim.

The oxygen got rid of a lot of pain I had in my muscles. I think this was going on a long time and no one ever took my pulsox when I had an appt. I got down to 78 in Colorado and went back to DC for my doctor visit where I still had a low pulsox at sea level.

Hopefully as we hit Babs harder, I can get off the oxygen soon. I feel good. Don't like being on a leash all the time tied to an oxygen concentrator but am grateful that I am not in pain.

The only thing I need right now is more stamina. My LLMD did all the neuro tests and I am much better and she said I as strong as an ox.

Before getting sick, I used to run a farm, train horses and run two businesses. I also worked out with weights 3-4 days a week. I am very anxious to get back to my life and right now, I can see it.

That is why we left tick endemic VA and moved to Colorado. Less of those nasty critters here and we feel better at a higher elevation.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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faithful777
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Random anxiety attacks can also mean your adrenals need support.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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Tammy N.
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Hi Beaches - sent you a PM.

Faithful - do you think Deplin is better than other brands? I thought with MTHFR we needed L-5-methyl tetrahydrofolate. Deplin says it is l-methylfolate. I wonder if it is the same, just abbreviated? Or if it is a different form?

I am homozygous for MTHFR and have been taking Falopro. My doc recommends the Thorne brand so I was going to switch. Wondering if Deplin is better somehow?

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Razzle
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Deplin is made by pharmaceutical company, and has a bunch of junk inactive ingredients. If it were me, I'd go with the Thorne Methyl-Guard.

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-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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faithful777
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Do the math,how many of the Thorne methyl guard do you have to take to get to 15 mg?? Deplin is L-METHYLFOLATE CALCIUM.

That is why I am using Deplin. The otc folate supplements don't give me enough and it costs much more to take 15 of those vs one deplin a day.

Two LLMD's told me to take Deplin as the best supplement for this.

If someone knows of another otc folate supplement that has more folate in one tablet, I am listening.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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Razzle
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Thorne also has a 5mg 5-MTHF capsule. See http://www.thorne.com/Products/Cardiovascular-Support/Circulatory_Health/prd~B132.jsp

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-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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faithful777
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I didn't know Thorne made one that was 5 mg but even at that dose of three caps a day, the cost would be more than three months of deplin.

There are two of us on IV plus all the orals and supplements.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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gigimac
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I am homozygous for cbs mutation but I have never noticed a problem with sulphur. I wonder why that is?

I have taken septra ds with no problem but am allergic to penicillin.

It makes me wonder if the 23&me test was worth it.

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