LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter



Tax deductible

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.
In the United States, your donations are tax deductible.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Mild Hyperbaric Treatment (Page 47)

 - UBBFriend: Email this page to someone!   This topic comprises 48 pages: 1  2  3  ...  44  45  46  47  48   
Author Topic: Mild Hyperbaric Treatment
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks so much for this info kgg and Hominahomina! It is so very helpful! I am so grateful for this support!

The oxygen concentrator arrived today, so we ended up re-positioning the chamber so that the zipper is directly on top and that seemed to make it a lot easier to work with the zippers, but a bit more awkward to get in and out like you said, kgg - I don't mind though! [Smile]

I really appreciate hearing the order you do things too as it gives me confidence that I am doing things correctly. I have a remote for the compressor and I think I will get one for the concentrator too.

Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wanted to clarify something about what I do when starting a dive
When I say I wait a few minutes before I turn on the oxygen concentrator I start the concentrator well before the chamber gets to full pressure maybe 3/4 full so the pressure from the chamber won't backup into the concentrator and do damage

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
It is best to turn your concentrator on before you get into the chamber, and turn it off after you get out.

This way, there is no risk of backpressure from the chamber damaging it, as the zipper is open and there is zero backpressure in both instances.

If you use a remote once you are inside, you run the risk of forgetting, waiting too long, or even falling asleep before you turn it on. (It is ok to use a remote for the compressor, just make sure you attach it somewhere so you don't fall asleep and roll over on it and turn it off accidentally.)

Plus, concentrators have a warm up period while they reach optimum oxygen purity. You want to monitor this by waiting for the yellow light to turn off (on the AirSep) before you get in your chamber.

Posts: 1440 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:


If you use a remote once you are inside, you run the risk of forgetting, waiting too long, or even falling asleep before you turn it on. (It is ok to use a remote for the compressor, just make sure you attach it somewhere so you don't fall asleep and roll over on it and turn it off accidentally.)

Plus, concentrators have a warm up period while they reach optimum oxygen purity. You want to monitor this by waiting for the yellow light to turn off (on the AirSep) before you get in your chamber. [/QB]

I have not had any of these problems using a remote with my concentrator
I start my concentrator before full pressure giving it enough time to warm up I have had no problems with the concentrator succesfully completing the oxygen purity check so far so I don't worry about that while using the remote but you make a good point phoiph that it is good to check it from time to time

Thanks for mentioning it

[ 01-15-2020, 05:27 PM: Message edited by: Hominahomina ]

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you both! Yesterday was the first day we attached and used the concentrator. I did not know you should warm it up first! I think the yellow light was on for a while when I was in there yesterday. [Frown]

So it sounds like I should first turn on the concentrator, then get inside the chamber, zip it up, and once it is zipped up, turn on the compressor?

I think I have read in numerous posts when first getting started with mHBOT, to leave the mask by my side when the chamber is being filled and my ears are adjusting, but to keep the mask on at the end of my dive while it is decompressing. Is there any danger in wearing the mask right away? Or not using it while decompressing?

It is interesting that my first 3 dives, which were in a doctor's office, I was instructed to wear the mask for the entire 45 minutes. I was okay with this, but don't want to run into any issues now that I am doing this on my own from home.

Either way, I do understand about opening the valve to slow down the speed of the compression if my ears or sinuses are becoming painful.

My concentrator is a DevilBiss unit. I am not sure if there is a difference between that and the AirSep, as far as the yellow light and the way they both work. We did have it set at 8.

If anyone here has been using the DevilBiss concentrator, it would be great if you could chime in. Thank you so much!

Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
dbpei,

You can turn on both the concentrator and compressor before you get in the chamber. That way, you will always have good air flow as you are taking your time to zip in.

There is no problem with wearing the mask as you are compressing, but it may be difficult to clear your ears while wearing it, as sometimes you need to open your mouth wide, wiggle your jaw, etc.

Keep the mask on while decompressing.

As we discussed on phone/email, it may be a good idea to start slowly in the beginning, and ramp up to wearing the mask the entire hour.

Even though you were fine wearing the mask the entire time during your 3 sessions, many people will hit a wall and crash after 2 weeks or so of overdoing it in the beginning. There is no way of knowing how you will react, so better safe than sorry.

It would be a good idea to consult NewTowne regarding your concentrator and how it should be used with a chamber (i.e., PSI settings, care, etc.) since that is where it was purchased. My understanding is that Marie at NewTowne has had training by the manufacturer.

Posts: 1440 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks, as always, Phoiph. I agree with you that it would be wise to take it slow. I am so grateful for your guidance. (and so many here, sharing their knowledge and experiences...) [Smile]
Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
carbokitty
Member
Member # 40537

Icon 1 posted      Profile for carbokitty     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi everyone!
Just reading this last thread here.
We had a major car accident on our way to CA. The car is totaled. The concentrator May have sustained damage-it’s likely although we are not at our destination yet and I haven’t had a chance to asses. But my husband said it traveled like a bullet between us and hit the dash at the time of impact.
So I just want to clarify that I can dive w/o extra oxygen, once we are able to get the chamber set up-right? I’ve always had access to oxygen.
We’re ok-in relative terms. I have a broken foot and am very sore in general. Looking forward to diving again as I expect it to be healing.
Carbokitty

Posts: 68 | From WI | Registered: Apr 2013  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow, Carbokitty, I am so sorry to hear that, and glad you are relatively OK.

If you find an authorized repair shop for your concentrator in CA, they might be able to provide a loaner (or rental) for you if yours needs repairs or servicing.

Yes, it is OK to dive with just room air/pressure (it still raises the ambient oxygen level), but I would get the oxygen back in as soon as you can.

Wishing you a speedy recovery.

Posts: 1440 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Kaibyrd
LymeNet Contributor
Member # 45606

Icon 1 posted      Profile for Kaibyrd     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh Carbokitty, I’m so sorry to hear this! I’m glad y’all weren’t hurt worse. I had fears of a wreck when we traveled with my hbot during Christmas. I hate it actually happened to you. Prayers you heal quickly!

--------------------
KB

Posts: 121 | From Northern VA | Registered: Apr 2015  |  IP: Logged | Report this post to a Moderator
carbokitty
Member
Member # 40537

Icon 1 posted      Profile for carbokitty     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks so much for the kind words, KB.
We had a wonderful 8 days of travel before that-not much traffic, no bad weather. A dream actually.
I’m going to need some help (hypnosis, EMDR, etc) to get over the PTSD and anxiety as a passenger. But we are very fortunate. Happy to be alive!
Happy diving everyone!
Carbokitty

Posts: 68 | From WI | Registered: Apr 2013  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
carbokitty, glad you are okay! [group hug]
Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
Carbokitty
That is distressing to hear
What happened?

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
Kaibyrd
LymeNet Contributor
Member # 45606

Icon 1 posted      Profile for Kaibyrd     Send New Private Message       Edit/Delete Post   Reply With Quote 
I’m sure you will need a lot of TLC and other forms of help after such an experience, CK. Have you ever heard of tapping? I used it after a close friend committed suicide and it helped some until I could go for counseling. There’s an easy video on thetappingsolution dot com if you’d like to give it a try. Take it easy hon!

--------------------
KB

Posts: 121 | From Northern VA | Registered: Apr 2015  |  IP: Logged | Report this post to a Moderator
elsworth
Member
Member # 51880

Icon 1 posted      Profile for elsworth   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have a 34" Newtowne. The paint stick is very helpful in negotiating the zipper follies. I also found an oven mitt to be indispensable. The oven mitt holds the zippers open, so you don't tear up the zipper cords. The paint stick gives the outer zipper that last little umph at the end. And as kgg noted, zipping up halfway before fully getting in and lying down is helpful also. The zipper follies are quite distressing. I think it could be a new sport at the X-games.
Posts: 14 | From Tennessee USA | Registered: Apr 2019  |  IP: Logged | Report this post to a Moderator
carbokitty
Member
Member # 40537

Icon 1 posted      Profile for carbokitty     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you everyone! I’ve now been advised not to discuss.
Thanks for the tapping suggestion, KB.
I have an EMDR appointment for next Friday. Tomorrow I will have surgery on my foot. Hope to get back in the chamber by Monday. (Fingers crossed)

You guys are so creative with the zippers! Yes, I had almost wished I’d spent the extra money for the other zipper set-up, but now it’s all routine and am grateful to have what I have.

My best,
Carbokitty

Posts: 68 | From WI | Registered: Apr 2013  |  IP: Logged | Report this post to a Moderator
carbokitty
Member
Member # 40537

Icon 1 posted      Profile for carbokitty     Send New Private Message       Edit/Delete Post   Reply With Quote 
Dbpei-
I went to the hardware store and bought some bendable plastic coated wire and replaced the fabric pull on the middle zipper on my 34" Newtowne. The fabric one kept getting caught in the zipper teeth.

I can do it all myself now but I always welcome my husband's help when he is around. I turn on both the compressor and concentrator then climb I'm and put the mask on. He zips the outer two zippers and I do the inside one (he doesn't always zip the middle one all the way but I can do that. Since its happened quite a few ti,es, I try to check it before I zip the inside one fully. I also can hear air leaking and I have a pressure gauge on my phone and can see that the pressure is not going up.)

I bought a remote but never figured out how to set it up. LOL.

It does get easier. Hang in there. I like the idea of the gloves! Great idea!

Carbokitty

Posts: 68 | From WI | Registered: Apr 2013  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for the good tips, carbokitty. It is getting a little easier, but I am still feeling very dependent on my husband to help me.

I will have to look into that pressure gauge app! I hope your foot surgery goes well and the mHBOT helps you to heal faster!

Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Broxin
Member
Member # 52040

Icon 1 posted      Profile for Broxin     Send New Private Message       Edit/Delete Post   Reply With Quote 
Elsworth, what is the oven mitt used for? I dont quite understand
Posts: 68 | From Germany | Registered: Nov 2019  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
In the Newtowne chambers the zippers are pulled on hard plastic loops. The kind of are rough on your hands. So the oven mitts protect your hands.
Posts: 1538 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Marnie
Frequent Contributor (5K+ posts)
Member # 773

Icon 1 posted      Profile for Marnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Another GREAT benefit of HBOT is this:

Mechanism of Hypoglycemia in HBOT

The complex changes in glucose metabolism during HBOT have not been fully elucidated. However, studies have shown an increase in activity of insulin-receptor sites and changes in insulin sensitivity due to

***upregulation of PPAR-γ*** signaling associated with hyperbaric oxygen.


https://tinyurl.com/ttk4lhm

Look closely at other things that are PPAR gamma (y) agonists (helpers)such as
THC and

OTC *honokiol*

and others....

Because:

Treatment of Borrelia burgdorferi-Infected Mice with Apoptotic Cells Attenuates Lyme Arthritis via PPAR-γ.


These results suggest that clearance of AC plays a role in the resolution of inflammation during experimental Lyme arthritis through the

***activation of PPAR-γ.*** PPAR-γ agonists, such as rosiglitazone, may therefore be

effective treatments for inducing arthritis resolution.

https://tinyurl.com/wyf9jld

I need it to deal with my C Pneumoniae triggered problems....happened to find out it can also help lyme.

Get PPARy up.

Posts: 9393 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
elsworth
Member
Member # 51880

Icon 1 posted      Profile for elsworth   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Broxin,

The oven mitt is used to help get the outer zipper closed without tearing up the pull cord of the outer zipper on the middle zipper. As you close the outer zipper, you slide the oven mitt along the middle zipper to hold it open so the outer pull cord does not snag in it. You could do it with your hand, in theory. But the middle zipper would gnaw on your hand something fierce.

Posts: 14 | From Tennessee USA | Registered: Apr 2019  |  IP: Logged | Report this post to a Moderator
carbokitty
Member
Member # 40537

Icon 1 posted      Profile for carbokitty     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi all~
Post accident, I started to dive again at a nearby clinic. They have a side entry chamber and were able to assist me getting in. It felt sooo good to be back in.

I missed 18 days diving. Do I start counting over again? Or where I left off? (I had done 205 dives prior to the break)
Because of their schedule and my driver's (husband [Wink] , I'll be able to dive 4 times a week, one hour each time, with oxygen.

Carbokitty

Posts: 68 | From WI | Registered: Apr 2013  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
If this was me, I would just keep counting from 205.
Posts: 1538 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Kaibyrd
LymeNet Contributor
Member # 45606

Icon 1 posted      Profile for Kaibyrd     Send New Private Message       Edit/Delete Post   Reply With Quote 
I agree, keep going. I no longer count. I’m in it till I get better.

--------------------
KB

Posts: 121 | From Northern VA | Registered: Apr 2015  |  IP: Logged | Report this post to a Moderator
carbokitty
Member
Member # 40537

Icon 1 posted      Profile for carbokitty     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks MG and KB.

Carbokitty

Posts: 68 | From WI | Registered: Apr 2013  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
Has anyone developed a plan to fight the coronavirus in case it spreads to our area?
Thanks

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I basically will treat it just like I do the flu season here in Maine. I have stocked up on food items and other daily items. I shop at low people times, typically first thing in the morning. I use the wipes for shopping cart handles. Then use the hand gel when I get in the car. Then wash my hands at the sink once I am home. I wipe down common surfaces of the house with Lysol wipes. And lastly, keep my fingers away from my face. And no, I am not OCD about germs. But this has become my flu season approach, especially since I do not get the vaccine.
Posts: 1538 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Kaibyrd
LymeNet Contributor
Member # 45606

Icon 1 posted      Profile for Kaibyrd     Send New Private Message       Edit/Delete Post   Reply With Quote 
I do much like kgg only using the DoTerra On Guard products as well. They have tiny beads you can pop in your mouth as well as a spray you can use on your hands. I don’t get the flu shot either.

--------------------
KB

Posts: 121 | From Northern VA | Registered: Apr 2015  |  IP: Logged | Report this post to a Moderator
Peimomma
LymeNet Contributor
Member # 45177

Icon 1 posted      Profile for Peimomma     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi everyone,

Hope all is well with the divers. I’m doing great but have come to ask:

Does anyone have or know a Lyme doctor in the UK?

TIA

Posts: 212 | From AZ | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would consider this doc who treats chronic illnesses:

https://drmyhill.co.uk/wiki/Main_Page

Posts: 1440 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Peimomma
LymeNet Contributor
Member # 45177

Icon 1 posted      Profile for Peimomma     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you

The page says she not excepting new patients 😩

Posts: 212 | From AZ | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
Maybe the office can give a referral?
Posts: 1440 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Peimomma
LymeNet Contributor
Member # 45177

Icon 1 posted      Profile for Peimomma     Send New Private Message       Edit/Delete Post   Reply With Quote 
True, I’ll pass the info on to the individual.
Posts: 212 | From AZ | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
Peimomma
LymeNet Contributor
Member # 45177

Icon 1 posted      Profile for Peimomma     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes on the Coronavirus and it’s what I use for all viruses every year with colloidal silver.

https://thesilveredge.com/colloidal-silver-beats-coronavirus-the-clinical-documentation/

Posts: 212 | From AZ | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Peimomma:
Yes on the Coronavirus and it’s what I use for all viruses every year with colloidal silver.

https://thesilveredge.com/colloidal-silver-beats-coronavirus-the-clinical-documentation/

Peimomma
What brand do you use and at what concentration?

Thanks

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
Peimomma
LymeNet Contributor
Member # 45177

Icon 1 posted      Profile for Peimomma     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have the generator from the silver edge, the link I posted above. He has a lot of great info.
Posts: 212 | From AZ | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Peimomma, ILADS has done conferences over in the UK. I bet they have names of docs as well.
Posts: 1538 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Legolas
Junior Member
Member # 45737

Icon 1 posted      Profile for Legolas     Send New Private Message       Edit/Delete Post   Reply With Quote 
To all the people diving with hyperbaric oxygen:

DO NOT COMBINE DISULFIRAM WITH HYPERBARIC OXYGEN!!!

I started diving with no symptoms and 1 hour later my feet were burning like hell. I could barely walk when i got out of the chamber because of that instant neuropathic pain.

The hyperbaric oxygen causes oxygen radicals which in combination with disulfiram cause nerve damage.

It's now a couple weeks later and i largely recovered from it though. But don't make the same mistake!

Posts: 6 | From Belgium | Registered: May 2015  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
That is awful! I am glad you are mostly recovered! I had read something about this. Thank you!
Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Kaibyrd
LymeNet Contributor
Member # 45606

Icon 1 posted      Profile for Kaibyrd     Send New Private Message       Edit/Delete Post   Reply With Quote 
I’m so sorry Legolas! I’m glad you’ve recovered.

--------------------
KB

Posts: 121 | From Northern VA | Registered: Apr 2015  |  IP: Logged | Report this post to a Moderator
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
Legolas, were you using mild HBO or a high pressure chamber? Also, may I ask what dose of DSM you were taking?

It is clearly contraindicated for the big chambers but the jury is out regarding mild HBO.

Perhaps I should repost this: DSM blocks Superoxide Dismutase which protects against Oxygen toxicity, hence the contraindication.

Here is a study that addresses that: https://www.ncbi.nlm.nih.gov/pubmed/6244385

Posts: 488 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
Have any of you that have been diving long term had problems with cataracts? My eye doc thinks I would benefit by cataract surgery, but I don't know if they have worsened because of mHBOT (I've only done about 30 dives so far) or if it is just the natural progression of these cataracts. I already had them before I started mHBOT, but they seen to be bigger now.

I want to be able to continue diving for many months, but am afraid if I have cataract surgery, there might be a period of time that I cannot do mHBOT dives (before or after the surgery). My eye doc is going to try to research this and let me know at my next visit in the spring.

Anyone have experience with this?

Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
dbpei~

There is some concern that high pressure hyperbaric (HBOT) can "ripen" already existing, mature cataracts, but my understanding is that it does not cause them over the short term.

That said, the lens of the eye is very sensitive to free radical damage. (This is why wearing UV blocking sunglasses outdoors is thought to help prevent cataracts.)

To my knowledge, there is no literature on cataracts with mild hyperbaric. It may help to know I have been doing mHBOT for about 9 years now without issue.

Many people with chronic illness have genetics that cause them to be more susceptible to free radical damage in general, as their detox/antioxidant mechanisms are not functioning properly. Although mHBOT causes necessary free radical production, it also helps to open these detox/antioxidant pathways to compensate. It is all about balance.

I am very doubtful that 30 mHBOT sessions would have worsened your cataracts. That said, in your situation, I would suggest preventing any 02 that escapes the mask from directly blowing into your eyes over the long term. You can purchase inexpensive goggles (without side vents) from any home improvement store. These will fit over reading glasses and are adjustable with an elastic strap.

(FYI, this is a non-scientific suggestion, and is not intended to reduce free radicals which are internally produced, just to reduce the direct exposure of the permeable cornea/lens to the O2).

Judging from others' experiences, there will be a waiting period before resuming mHBOT after cataract removal. Just let your ophthalmologist know that the pressure is 4.2 PSI, and roughly equivalent to 10-12 ft. underwater.

Posts: 1440 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hello Folks
It has been a while since I read over the all the posts here
I was wondering if any of you have treated Bartonella with mHBOT and have you used anything else for Bart?
Thanks

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
Homina,

Yes, I recovered from severe Bartonella with mHBOT; it is the only thing that worked.

Posts: 1440 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Phoiph:
Homina,

Yes, I recovered from severe Bartonella with mHBOT; it is the only thing that worked.

Thanks Phoiph
Can you tell me
What were your symptoms with Bart?
What other things did you try for Bart?
What other (co) infections did you have before you started mHBOT?

I am reasonably sure you have already told the group all this I just don't remember

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
Phoiph, thank you for your thoughtful response. I will give those goggles a try and hope for the best. It is good to hear that after all of the time you have spent diving there was no damage to your eyes. I have read that people actually have better vision after using mHBOT, so that is my hope.
Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
dbpei...Another option is using N-acetylcarnosine eye drops like Can-C. The active ingredient is an antioxidant that works locally to protect the eye.
Posts: 488 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
dbpei...Another option is using N-acetylcarnosine eye drops like Can-C. The active ingredient is an antioxidant that works locally to protect the eye.
Posts: 488 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks, Digby! I will look into this!
Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just finished my 33rd dive and I have to tell you all, it is totally helping!!!!! My tinnitus is so much more tolerable and I feel different and better!

My guess is that the mHBOT has been hitting areas that antibiotics and herbs could not reach. I feel things happening in my most symptomatic areas (left side of skull, sinus, ear, face...) I know it is too soon to know for sure.

But I can't keep this in any longer! (afraid I would be jinxed if I spilled this too soon!) Thank you Phoiph - for sharing this invaluable mode of healing with us!

Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by dbpei:
I just finished my 33rd dive and I have to tell you all, it is totally helping!!!!! My tinnitus is so much more tolerable and I feel different and better!

My guess is that the mHBOT has been hitting areas that antibiotics and herbs could not reach. I feel things happening in my most symptomatic areas (left side of skull, sinus, ear, face...) I know it is too soon to know for sure.

But I can't keep this in any longer! (afraid I would be jinxed if I spilled this too soon!) Thank you Phoiph - for sharing this invaluable mode of healing with us!

Nice to hear Can you tell me
How long are your dives and how often?
What antibiotics and herbs were you using ?
What ATA are you diving at?
Thanks

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hominahomina, Here are some answers to your questions.... I don't know how to highlight things, so instead will use quotes.

"How long are your dives and how often?"

I have recently gotten up to a full hour with my mask on the entire time. I am trying to dive daily, but have had to miss a day or two weekly.

"What antibiotics and herbs were you using"?

I am using no ABX now, but have been taking Crypto-plus and Biocidin. I finished Biocidin about 2 weeks ago and I am going to let Crypto-plus run out and see how I do without it. I have been on multiple herbs and ABX in the past (both oral and IV) but have not been taking them for a few years now.

"What ATA are you diving at?"

1.3 ATA

I have a feeling mHBOT is so different for each person. And the way I feel also seems to change from day to day, even hour to hour. I am not feeling as well this morning as I had been last night when I wrote, but am still trying to stay positive and I hope to be able to use mHBOT for the long haul.

Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
carbokitty
Member
Member # 40537

Icon 1 posted      Profile for carbokitty     Send New Private Message       Edit/Delete Post   Reply With Quote 
Congratulations, dbpei!

I still consider myself a newbie at 215 dives. There has definitely been a bit of up and down for me as well along this path. Although I recently had a health set back with the car accident, my gut stuff for which I originally started mHBOT (well, I started for mold exposure but stayed for gut symptoms) have been stable for quite awhile now. I am grateful for this therapy.
Hang in there! Phoiph always reminds us-2 steps forward, one back. But the overall movement is forward. Glad you are here.

Carbokitty

Posts: 68 | From WI | Registered: Apr 2013  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks dopel

carbokitty
Are you diving an hour each dive and how often do you dive?
I am also still young as a diver at around 200 dives
I still get a lot of dieoff but it is not a bad as before so I think that is progress.
diving at night makes it easier to go to sleep

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
carbokitty
Member
Member # 40537

Icon 1 posted      Profile for carbokitty     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Hominahomia and all~

I was diving daily, except for the occasional 2-4 day trips out of town. Starting Jan 5, I ended up with 18 days away from diving because we were driving cross country and then had the car accident.
After that, I was able to go 4 times a week to a nearby clinic and dive for 1 hour a day. Since 2/5, I've been able to get back into my own chamber where I am able to do 1 hour dives with oxygen daily again.

As I said before, my body, etc is different now than it was a few weeks ago, pre-accident. I am dealing with detox from anesthesia and drugs. I am unable to move/exercise to any degree. (I have just moved from a knee scooter to partial weight bearing with 2 crutches). So I'm now detoxing from all that without the benefit of moving my qi (Chinese medicine term). I am attempting to support my detox as much as possible with some liver herbs, a homeopathic remedy for drainage, lots of water and "walking" within what I am able to do.

I find later dives wake me up or cause me to wake up earlier in the morning so I attempt to dive earlier in the day, before 3 as much as possible. We are all different, aren't we?

Best of luck in your journey.

Carbokitty

Posts: 68 | From WI | Registered: Apr 2013  |  IP: Logged | Report this post to a Moderator
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
FYI, The Ben Greenfield podcast has done one on mHBO with Jason Sonners, DC, DIBAK, DCBCN.

It's interesting but I kept wishing I could add my 2 cents all the way through. Here's the link: https://bengreenfieldfitness.com/podcast/recovery-podcasts/hyperbaric-oxygen-therapy/

One bizarre take away is that Ben occasionally sleeps for 8 hours in his tank!

Posts: 488 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm assuming he is using it the way some athletes do; without supplemental oxygen, just compressed air...
Posts: 1440 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
He wasn't clear on that. Normally he uses O2 but he didn't say if he did for the long sessions.

I think everyone here knows that an 8 hour dive would be disastrous to a sick person. Ben Greenfield is absurdly health, so he seems to survive it well. Although we don't know if he is getting some occult oxidative damage.

Posts: 488 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, I hope everyone here understands that, but you never know about new people tuning in to the very end of the thread...

Looking forward to listening to the podcast, thanks, Digby!

Posts: 1440 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Digby:
FYI, The Ben Greenfield podcast has done one on mHBO with Jason Sonners, DC, DIBAK, DCBCN.

It's interesting but I kept wishing I could add my 2 cents all the way through. Here's the link: https://bengreenfieldfitness.com/podcast/recovery-podcasts/hyperbaric-oxygen-therapy/

One bizarre take away is that Ben occasionally sleeps for 8 hours in his tank!

I listened to most of it Thanks
What two cents Digby?
Also
Phoiph What did you think?

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hominahomina, sorry way too much to share. I would have to listen again and take notes. I just don't have the time or energy.
Posts: 488 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
Peimomma
LymeNet Contributor
Member # 45177

Icon 1 posted      Profile for Peimomma     Send New Private Message       Edit/Delete Post   Reply With Quote 
dbpei

I don’t know at what time you dive until the time you don’t feel well but this might help. Because I was journaling all my dives, my detoxes, and how I was feeling I narrowed it down to 7-9 hours after my chamber dive and the herxing would start. It would last for hours and after some detoxing would get better. Next day diving and the cycle would start again.

Posts: 212 | From AZ | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
Kaibyrd
LymeNet Contributor
Member # 45606

Icon 1 posted      Profile for Kaibyrd     Send New Private Message       Edit/Delete Post   Reply With Quote 
My herxing seems to be constant most days no matter what detoxing I try. About a week ago I decided to to take my mask off yet again and dive with the O2 flowing into the chamber. I’ve been feeling better since and feel like I may just need to continue this way because I’ve done this before, several times. I work back up to the hour with the mask or cannula on and then start feeling bad all the time again. I can’t live with this constant herxing, I need time without it to be able to cook so that I’m not eating restaurant food and to clean so I’m not breathing dirty air. Maybe I just need to dive with very low O2 all the time.

--------------------
KB

Posts: 121 | From Northern VA | Registered: Apr 2015  |  IP: Logged | Report this post to a Moderator
elsworth
Member
Member # 51880

Icon 1 posted      Profile for elsworth   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Listmates,

I just completed my 200th dive. All is well. I'd also like to report on an alternative ramp up schedule that I've followed. The ramp up schedule was just something that kind of happened organically. I didn't really sit down and work it all out beforehand. But it seems to have worked well for me. And following it, I had very few episodes of herxing, strange symptoms, or days where I just couldn't go. Here's what I did.

Dive #1 was a test dive. I just wanted to test things out. So, I dove 5 minutes at pressure with full mask O2. Things went well. But when I got out of the chamber, I was like, "Whoa!". I could really feel that I had done "something". And as I've reported before, that night I dreamed like crazy for the first time in 20 years. I could tell something was going on for sure.

So, I continued to dive for just 5 minutes at pressure with full O2 mask, until the fifth night when I broke my hand, as described previously. And again, I was like "Whoa!". This is a serious therapy I'm dealing with here !

I dove for 5 minutes like this for two weeks. Then cautiously increased to 10 minutes, at pressure, full O2 mask. I did that for two weeks, and had a few significant symptoms. Then I increased to 15 minutes. And by this time, six weeks in, I was beginning to formulate a plan. Increase by 5 minutes every two weeks, full O2 mask the whole time. And so that's what I did.

It took me 175 dives to get to a full 1 hour at pressure with O2 mask. In other words, it took me about six months to achieve the commonly recommended dose of one hour at pressure ! That's a long time. But I didn't have many symptoms along the way, and I never had to stop and regress.

Hope this helps someone. Blessings to you all !

Posts: 14 | From Tennessee USA | Registered: Apr 2019  |  IP: Logged | Report this post to a Moderator
elsworth
Member
Member # 51880

Icon 1 posted      Profile for elsworth   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
To be more clear, my diving schedule looked like this:

-5 minutes at full pressure, with O2 mask, for two weeks

-10 minutes at full pressure, with O2 mask, for two weeks

-15 minutes at full pressure, with O2 mask, for two weeks

-20 minutes at full pressure, with O2 mask, for two weeks.

- Etc.

I continued to do this until I got to 1 hour, at full pressure (1.3ATA), with O2 mask.

[ 02-19-2020, 11:16 AM: Message edited by: elsworth ]

Posts: 14 | From Tennessee USA | Registered: Apr 2019  |  IP: Logged | Report this post to a Moderator
Peimomma
LymeNet Contributor
Member # 45177

Icon 1 posted      Profile for Peimomma     Send New Private Message       Edit/Delete Post   Reply With Quote 
Elsworth I love your schedule. It shows you have the patience required to get to full health. Many people hurry along the schedule when it’s meant to be a starting point and tailored to ones needs.

This is not an overnight healing, it’s a consistent and patient process that takes time. I hesitate to say a long time because in my 51 years of life, 2 years was nothing to get my life back.

Thanks for posting.

Posts: 212 | From AZ | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
Elsworth Nice work
At what ATA do you dive?
Thanks

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Digby:
Hominahomina, sorry way too much to share. I would have to listen again and take notes. I just don't have the time or energy.

Well you said two cents which made me think it was a little comment or two but in this case two cents is more

If you want to give just a small comment or two about your impression feel free

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Kaibyrd:
My herxing seems to be constant most days no matter what detoxing I try. About a week ago I decided to to take my mask off yet again and dive with the O2 flowing into the chamber. I’ve been feeling better since and feel like I may just need to continue this way because I’ve done this before, several times. I work back up to the hour with the mask or cannula on and then start feeling bad all the time again. I can’t live with this constant herxing, I need time without it to be able to cook so that I’m not eating restaurant food and to clean so I’m not breathing dirty air. Maybe I just need to dive with very low O2 all the time.

Just out of curiosity how many dives have you done so far and at what pressure ?
I ask because I still get dieoff but not as much as before Thanks in advance for your comment

Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
Kaibyrd
LymeNet Contributor
Member # 45606

Icon 1 posted      Profile for Kaibyrd     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hominahomina,

I never was good at counting my dives. I’ve probably missed 15-20 days since starting a year ago January so I’ve been trying to figure out what my body needs for quite some time now. I’m at the usual 1.3 ata.

--------------------
KB

Posts: 121 | From Northern VA | Registered: Apr 2015  |  IP: Logged | Report this post to a Moderator
Hominahomina
LymeNet Contributor
Member # 50825

Icon 1 posted      Profile for Hominahomina     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Kaibyrd:
Hominahomina,

I never was good at counting my dives. I’ve probably missed 15-20 days since starting a year ago January so I’ve been trying to figure out what my body needs for quite some time now. I’m at the usual 1.3 ata.

Have you tried NAC on an empty stomach a couple hours before a Coffee enema?
Posts: 175 | From California | Registered: Sep 2017  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
Peimomma, that timing you observed is very interesting! I will try to pay more attention to changes in the way I am feeling during the hours before and after my dives.

My favorite time to dive is late afternoon. I think it is because my body is craving a rest by that time and I welcome it. I feel so relaxed in there. But I usually end up listening to pod casts or audible books instead of sleeping.

It is my head and ear symptoms that are the most troubling for me and there have been a few days/nights following my dives that I felt almost normal!

I am almost up to 40 dives now and I am noticing a subtle improvement over time. There have been very few treatments that could give me this relief, even if for a few hours. I hope and pray that the mHBOT is hitting something that even the IV ABX could not.

Posts: 2301 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Kaibyrd
LymeNet Contributor
Member # 45606

Icon 1 posted      Profile for Kaibyrd     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Hominahomina:
quote:

Have you tried NAC on an empty stomach a couple hours before a Coffee enema? [/QB]
No, I have tried NAC years ago alone but not with a CE. I’m kinda afraid to take things on an empty stomach though. It doesn’t like that. I end up really nauseated.

--------------------
KB

Posts: 121 | From Northern VA | Registered: Apr 2015  |  IP: Logged | Report this post to a Moderator
  This topic comprises 48 pages: 1  2  3  ...  44  45  46  47  48   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2019 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


Home | Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Webmaster