LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter



Tax deductible

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.
In the United States, your donations are tax deductible.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Is this to much???

 - UBBFriend: Email this page to someone!    
Author Topic: Is this to much???
doshey
Member
Member # 46853

Icon 1 posted      Profile for doshey     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi,

I went to a new LLMD who is treating me aggressively. I want to hear peoples thoughts if it is maybe to aggressive or its still good etc.

Rocephin IV

Rifampin 300mg 2 times a day
Minocyclne 100mg 2 times a day
Zythromician 500mg 2 times a day.

He feels I also have bartonalla and babisia

Posts: 71 | From NYC | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would DEFINITELY ramp up slowly with the Rifampin. It can knock you down and out. Mino can also cause dizziness.

I see nothing there for babesia, so I guess he will treat that later?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94065 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow, you are on a lot! Usually my LLMDs have started me on new ABX one at a time so we can figure out how my body is responding to each one. How are you doing on all of these?
Posts: 2298 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Be absolutely certain probiotics are on board as well as:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.

HEARING PROTECTION is also vital - be sure to read through the Tinnitus thread in that set above.

There are things you MUST do to protect your ears.

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Backing up, aggressive treatment is needed at times, still always start low and slow - with one thing at a time for a couple days to help your body ease into it (it still won't be easy).

To start out at top dose can cause a lot of stress for your body.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
doshey
Member
Member # 46853

Icon 1 posted      Profile for doshey     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks everyone for the advice.
Lyme too- doesn't zythromicin help fight babysit?

Keebler, I am on probiotics and other detox things like glutathione. What should I do for my ears? I never heard that before.

Posts: 71 | From NYC | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
More nutritive liver support that will feed the liver / kidneys. Glutathione is good, of course.

But on-going, several times a day: It may be less expensive to help the liver make glutathione with Milk Thistle, etc. The liver support link above has more detail.

Be sure to read through this for other ways to protect ears, too, in action. Ear plugs, muffs, etc.:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Doshey .. Zith combined with artemisinin will fight babesia.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94065 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
WPinVA
Frequent Contributor (1K+ posts)
Member # 33581

Icon 1 posted      Profile for WPinVA     Send New Private Message       Edit/Delete Post   Reply With Quote 
Or Zith combined with Mepron for babesia. But maybe he is going to add something else later... like you said, you're on a lot and sometimes you can't attack it all at the same time.

I guess the biggest question I would have is why the Rocephin and the mino at the same time? I believe they both go after the Lyme.

The Rifampin is for bart and the zith could be the beginning of your babs tx.

Posts: 1737 | From Virginia | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
doshey
Member
Member # 46853

Icon 1 posted      Profile for doshey     Send New Private Message       Edit/Delete Post   Reply With Quote 
WPinVA- That is a good question about the Rocephin and Mino. I will have to ask my doctor.
Posts: 71 | From NYC | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
doshey
Member
Member # 46853

Icon 1 posted      Profile for doshey     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi everyone,

My husband is very nervous that I am on 4 different antibiotics. Can people please post about how many antibiotics they were on at once?

Were you on 2 or 3? What's your opinion on being 4 is it normal? Please help me calm him down.

Thanks

Posts: 71 | From NYC | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
The most I was ever on is 3. 4 seems like a lot to me. Sorry, that is not the answer you were hoping for. Maybe some others will chime in here.

Here is some good info on the various combinations. Also, you could take part in the Webinar that this doctor opens to the public on Wed. nights and ask him his thoughts on the antibiotics you are taking.

http://www.treatlyme.net/treat-lyme-book/kills-lyme-germs-a-brief-antibiotic-guide?rq=antibiotics

Posts: 2298 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Nula
LymeNet Contributor
Member # 38409

Icon 1 posted      Profile for Nula     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think it's a lot, doshey. Honestly, I couldn't have handled four antibiotics at the same time.

I never took more than three at a time. And I was barely able to handle that.

That doesn't mean you won't be able to handle it. Everyone is different. But it is a lot. And, frankly, I'd never start with 4. Like Keebler said, starting low and slow is important.

IV Rocephin is tough. Combined with the other three, I think it's too much.

Not a doctor here, just a patient who's gone through a lot in the past six years ...

--------------------
I appreciate all your replies. If it takes me a while to respond, it is either because I'm too sick or because I am unable to log in. From European servers, Lymenet is very frequently inaccessible for days at a time ...

Posts: 235 | From Europe | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
doshey
Member
Member # 46853

Icon 1 posted      Profile for doshey     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Nula and Keebler,

I was started slow. I was originally on 2 antibiotics then a 3 and now I just got yesterday my pic line and started Rocephin.

Right now I'm handling it all. My husband just thinks its way to much and not good for the body.

Posts: 71 | From NYC | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was on 2 at one time. Also took Diflucan with those, I think that was for gut protection. I took Zith and Flagyl together.

Can't remember what I took after that, I think Malarone for Babs was next. Also took a few others over a couple of years. It was so hard on me, but everyone is different.

After that I went to just Doxy, for 2 and 1/2 years. That's what seemed to work for me; but then again I'm sure the first 2 years of meds played a huge role.

I couldn't have handled 4 at one time and I have to agree with your husband, that's a lot for a body to process. It's just my opinion, but I think people can get well on an easier regimen.

I don't see how an already sick body can handle all that at once.

Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
gz
LymeNet Contributor
Member # 43818

Icon 1 posted      Profile for gz     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think it depends on whether or not the treatment is appropriate and the individual circumstance.

When I first started out I could barely handle the first abx and had difficulty with each addition to the regimen. I strongly believe detoxing is of the first utmost importance.

I'm currently on 4 abx plus Plaquenil, stopping every couple weeks to pulse Coartem. Periodically I treat with parasite meds too. For the most part I have been slowly improving in fits and starts.

Everyone is different with what needs treated and the kind of treatment that can be used. I know others who are also on combos of abx+antimalarials. I don't think 4 meds is all that unusual.

Posts: 472 | From US | Registered: May 2014  |  IP: Logged | Report this post to a Moderator
doshey
Member
Member # 46853

Icon 1 posted      Profile for doshey     Send New Private Message       Edit/Delete Post   Reply With Quote 
Gz,
Thank you for the reply. How long have you had Lyme for? I am detoxing as much as I can. Do you feel the 4 antibiotics at once did any damage to your body?

Posts: 71 | From NYC | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
gz
LymeNet Contributor
Member # 43818

Icon 1 posted      Profile for gz     Send New Private Message       Edit/Delete Post   Reply With Quote 
At least 10 years or more, but probably decades considering childhood/lifelong exposure and symptoms. I got new sets of symptoms after a bite 6 years ago and the cookies really hit the fan after that.

I don't notice any outright damage from the abx. I suspect they may have helped me become low in B-12 which can lead to its own set of issues, but that could have been a longstanding issue before for all I know. We get most of our B-12 made by gut bacteria, so it makes sense that abx would cause us to become deficient in it.

I eat a very careful diet and take probiotics and some other supplements to protect my gut and prevent yeast.

I have histamine intolerance, but that was an ongoing issue long before I ever began treating for lyme. That actually seems to be improving for me, so I can't say the abx make it worse, they may even be making it better.

My first 2-3 months of treatment were impossibly rough. My detoxing included lemon water, chlorella, dry brushing, rebounding, daily epsom salt baths, and probably some other stuff I'm forgetting. At the same time I started treating for parasites I began doing coffee enemas and I turned a huge corner in my recovery.

Lyme and coinfections heavily burdens us with toxins, sometimes for years on end, which makes us very sick. Being sick we cannot clear the growing amount of toxins so we get sicker and sicker. It's a cycle that feeds itself until we interrupt it and find a way to get stuff to start clearing out.

Often we begin treating with abx when we are at our sickest and most burdened with toxins. Adding more on top will just make things worse. For me the coffee enemas were what got the toxins moving out faster than they could accumulate. I did them twice a day for probably 6 months, now just once or twice a week.

In the back of my mind I do worry a little there could be lasting negative consequences from the meds. But considering how sick I was from lyme, the consequences from not treating would have been most certain and severely devastating. The meds are just one of many tools I have found helpful in this journey to get my health and life back.

Posts: 472 | From US | Registered: May 2014  |  IP: Logged | Report this post to a Moderator
doshey
Member
Member # 46853

Icon 1 posted      Profile for doshey     Send New Private Message       Edit/Delete Post   Reply With Quote 
Gz, thank you. Are you still on antibiotics and if not, when did you finish them. Do you know anyone who had issues after taking 4 antibiotics?

I really appreciate your help. Also is your LLMD IN NYC? If yes can u pm his name? I'm curious if its the same one that I'm going to.

Posts: 71 | From NYC | Registered: Oct 2015  |  IP: Logged | Report this post to a Moderator
gz
LymeNet Contributor
Member # 43818

Icon 1 posted      Profile for gz     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am still actively treating with abx, antimalarials, supplements, and other things. My llmd is not in NYC.

I forgot that I probably did have a negative experience from an antibiotic, I think I was floxed a little bit from taking cipro. It affected my Achilles tendons, no rupture but feeling twingey and tight. It could have been much worse. It's improved enough that I don't think about it much anymore, and I'm back to doing what I was doing before the cipro, albeit very carefully and conscious of how those tendons are feeling.

The people I know personally on multiple abx are either on them and improving with treatment, or on and off abx (for reasons not related to the tx or abx). Most folks who pass through lymenet who got better on abx probably don't come back to post about it.

Posts: 472 | From US | Registered: May 2014  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2019 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


Home | Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Webmaster