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» LymeNet Flash » Questions and Discussion » Medical Questions » increase of lyme symptoms due to weightloss?

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Author Topic: increase of lyme symptoms due to weightloss?
Edessajarrue
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Could weightloss force lyme & co-infections to become active?

Do the bugs hide in adipose tissue?

Would losing excess weight actually force spirochetes hiding in fat have to find another place to live?

Been wondering this for awhile.

Thoughts?

-ede

Posts: 138 | From Eden Prairie, MN | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
Green_Where_You_Water
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Thats an interesting thought.

I recently lost a large amount of weight in a short period of time. About 6 pounds in less than a week

I am a naturally petite person though and didn't have too much to loose. I am 5'"2" and currently weigh 104 , I weighed 109 a week ago ,which is a large amount of weight for a person my size.

This weight loose is probably mostly due to the fact that I am bed ridden and unable to make it to the kitchen on my own. Although I also have 0 appetite so its not like Im starving.

I am home alone for most of the day and eat very little and have a very weak appetite the past few weeks.

My symptoms have gone from horrible, to 100% bed ridden though in the past week that I have lost so much weight, haven't considered the possibility that it could be due to weight loose though until I came across your thread.

As for an answer, Im not sure. But I haven't lost a ton of fat if that was your question. I didn't have much to loose. Its mostly been muscle.

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bluelyme
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Im with green , my loss is more of a wasting ..i think bugs can hide anywhere in red cells white ,soft ,nerves marrow you name it they're there.exercise with adrenal exhaustion is contraindicated .

..however is needed to build mitochondria. ...i have stayed the same weight but i see its muscle off limbs and more in center do to inactivity. .it feels like whipping a horse that has no more giddyup...

periactin may help with appitite green? Are you treating now edessa?

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Blue

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purplehaze
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yes I'm very familiar with this weight loss situation

Green_Where_You_Water, just like you numerous times over the last 3 years I've lost 6/7 pounds in the space of 4/5 days, gradually gain it back again only to lose it again in that sequence
thing is, my appetite is normal or even above normal and I eat quite a lot
but I'm skin and bone with no body muscle at all like as though I'm being eaten away by some treacherous monster/parasite/critter

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bluelyme
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Purplehaze...have you tryed rifampin,? Have you treated for parsites.?..my legs and arms are as you decribe ...i did find this case of a guy stopping it with bartonella treatment
http://jnnp.bmj.com/content/63/2/257.full.

also http://www.lymeneteurope.org/forum/viewtopic.php?t=5777

I must figure this out. there was a thread a bit back where people had ideas ..it has to be nerve or liver protien small vessel vasculitis or some other means ..its the wasting that cmv causes in immunocomprised ..said er nurse when i first noticed it

this thread tulips said babs causes muscle wasting
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/132135#000008

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Blue

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Keebler
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While sudden / drastic loss or gain can either be common with lyme / TBD for unexplained reasons, that one post above highlight another common problem: bed-ridden, unable to eat for various reasons . . . .


For those who can't get enough food, often enough, it may not be lyme or other TBD causing some of the harsh problems - but or &/or PORPHYRIA.

For those with porphyria, a disorder of the liver where key enzymes are missing and excess toxicity occurs, this can be awful, dangerous and even life threatening. Some with lyme can have a "secondary porphyria" of sorts.

Food matters greatly, especially good carbohydrates, even simple sugar can save a life in a porphyria attack [there are better ways to prevent the attack but, if a life threatening situation, seriously, even IV Glucose may be required &/or IV Heme). And liver support. More detail in next post.
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[ 03-17-2016, 05:00 PM: Message edited by: Keebler ]

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Keebler
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Start here:

http://www.cpnhelp.org/secondaryporphyria

Secondary Porphyria: what you should know before starting a CAP (combined antibiotic protocol)

Similarities to the Cpn protocol / issues.

[Of course, the diet suggested is far from what I do and it is very adaptable with healthy choices. It's the concept, though, that is key: carbohydrates do matter. Be sure they are included with protein and good fat.

But, if porphyria is an issue, it may be hard to manage certain red meats. Still, never cut back on good food balance and be sure it's spread out evening throughout the day and a little in evening.

There are at least 11 types of porphyria. Tests MUST be urine, blood AND stool. No one test can tell all yet there is no test that is a guarantee to identify it, either.

The missing or deficient enzymes are not the digestive enzymes that many take. At least last time I checked a few years back, there are no commercially available enzymes that can replace or replenish those the liver can't make in the case of porphyria.

There are some nice herbal supports, though.

My files are a jumble and I can't find where I put my links set for this topic.

http://flash.lymenet.org/scripts/ultimatebb.cgi/ubb/search/search_forum/1

Search Medical Forum in Subject Line for more about PORPHYRIA
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Keebler
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Glucose stability also a major consideration that requires food from all three food groups, several times a day. It takes very little deviation from ideal food intake / timing to upset the balance.

And, either direction can cause not just feeling awful but damage that can just snowball.

So often, good food within a good GLYCEMIC INDEX way of thinking can turn things around (at least to the "new" normal for those with other complicating factors).
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Keebler
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Edessajarrue,

My replies were more about some of the other situations described by other posters.

Back to the original question, though and - I'd guess - regardless of the reason / cause or even the dangers / damage the various causes could bring about . . .


"Could weightloss force lyme & co-infections to become active?

Do the bugs hide in adipose tissue?

Would losing excess weight actually force spirochetes hiding in fat have to find another place to live?" end quote

My impression is that ANY upset in a cordial environment can cause spirochetes to look for a more stable room, so to speak. I have read they hate heat, vibration and even cold so they burrow deeper in the body in search of calm.

It may be that as the "room" (fat cell) goes through changes the spirochetes will move. I've not read this exactly, though, and I'm sure someone has addressed it.

You wonder: " hide in adipose tissue?"

They can hide anywhere and zoom in and out when they want. They tend to go for the quieter, calmer areas.

other question:

It may be in the "The PotBelly Syndrome" book as the author does talk about how lyme can cause huge weight gains for no apparent reason (he does not discuss loss as I recall). But he may talk about various things still relevant in the weight loss arena.

I have that book and will look over it later. You pose some good questions.

FWIW, I got nowhere with a cross search at Google with:

spirochetes "shrinking fat cell"

Sometimes, just right words will pay off, though.
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bluelyme
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Thank you keebler ...

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