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» LymeNet Flash » Questions and Discussion » Medical Questions » Paralyzing Brain Fog

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Author Topic: Paralyzing Brain Fog
Clint31
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I have been having brain fog BADLY the last few months; more than usual, more than the last several years.

I do things like call people the wrong names. I open the fridge looking for my wallet. I have to close my eyes and think sometimes to have a conversation. I mix up words. I pull into the wrong neighborhood.

This brain fog can also accompany a migraine type headache. Advil will help the headache; but not the brain fog. If I don't take advil, the headache will last into the next day.

I think its one of a few things. But wanted feedback from others....

1) chemicals/toxins from die off. I read that when you have die off from yeast or other things it creates formaldehyde?

2) My LLMD has determined I have epstein barr within my central nervous system... he detected it there. He has also told me the severe epstein barr I have going on can cause brain fog in and of itself

3) I am starting to get MS and this is just a beginning stage symptom (Have other accompanying symptoms of MS - itching, tingling, pins and needles in the feet and hands, dizziness)

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DX'ed Lyme Disease: 7/7/2008
DX'ed Babesia, Epstein Barr, Liver Parasite 8/15/2013.

Posts: 739 | From Columbus, Ohio | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
bluelyme
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Ms is Just lyme or cpn ...are you treating ? Bvt has helped with my fog immensly...also the cns fomula fom jernagin I hear is good ...I notice mine is better after asparugus

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Blue

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Clint31
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Ms is just Lyme?

So is this just being thrown around as facts in these parts now? I ask because I am not here a lot anymore

--------------------
DX'ed Lyme Disease: 7/7/2008
DX'ed Babesia, Epstein Barr, Liver Parasite 8/15/2013.

Posts: 739 | From Columbus, Ohio | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
TF
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Over 10 years ago some lyme doctors were saying this and the evidence I read was compelling.

It is most likely that MS is simply lyme disease. So, if I were you, I would forget MS.

I have known a person who was told that they had MS. After more than a year of that diagnosis and painful injections each moringing into her upper legs, she was told that she did not have MS after all. When I asked what made it go away, she said she had taken antibiotics.

And, this woman was young--in her 30s. It was a terrible blow to have been told that for a number of years at her age, and right after having a baby!

So, from all that I know, I think that MS is really a misdiagnosis of something else (probably lyme) and is doing people a great disservice.

I would NEVER accept a diagnosis of MS. MS is a diagnosis of exclusion, meaning that the doctor has checked every other possible illness and ruled them out. So, it is an "I don't know what is wrong with you" diagnosis.

AND, you have to have at least 2 episodes of it for them to be sure it is MS. Ha! My friend had that, and still her "MS" went away.

So, the idea that there is even such a thing as MS is really weak. It looks just like lyme on a spine and brain scan, MRI.

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Jordana
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I was having unbearable brain fog, exhaustion and depression during and after my last round of tetracycline and rifampin. When I stopped these I was still Gone.

It's a little less than four weeks later and I happened to get a bottle of Gabamax Gabatrol powder in the mail. I started taking it to replace benzos since I'd been cut off.

Lo and Behold after taking it three times a day after ONE day my brain kicked right on.

Drugs killing infections. Messes with neurotransmitters. Brain does not switch back after a bunch of microglia blow up.

Rebalance neurotransmitters.

Profit.

I am not sure if increasing GABA would work for you because I have no idea if that's what ultimately happened. Neurotransmitters are dependent on other neurotransmitters so the GABA could have just flipped a switch that normalized something else.

But it might be worth it to experiment.

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foxy loxy
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Happy to hear this Jordana! [Smile]

I too think the Gabapentin(Neurontin) I am on is helping some of the brain fog too. I think your right on about the messed up neurotransmitters.

Clint31, I see you have been diagnosed with Babesia. This infection is well known to cause neurological head problems. (headaches, migraines)

If you haven't tackled this co-infection, I suggests you do so as fast as possible and hit it hard with MULTIPLE meds... mepron, azithromycin, clindamycin, artimesinin, and cryptolepis...

btw, M.S almost always starts out relapsing and remitting or so my neurologist said. They were scared I had it because my mom has it.


She has also tested positive for lyme after being diagnosed with classic M.S. for years. Her new odd head symptom went away on antibiotics but her old classic M.S. symptoms didn't change.

She even tried Ivermectin with not a bit of success.

Obviously, Lyme can mimic M.S. to the T, but I still feel true M.S. either is different than Lyme, or has another component to it.

Who knows though, if we would run more testing on her would we find more infections? uuuuugh

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Clint31
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My babesia is gone from what they can tell and has been for a while.

--------------------
DX'ed Lyme Disease: 7/7/2008
DX'ed Babesia, Epstein Barr, Liver Parasite 8/15/2013.

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tulips
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Cat's Claw has always gotten rid of my brain fog. Lately, I've started drinking a cup of Cat's Claw tea every morning and I am surprised to be able to say that I've started feeling pretty good overall.

Foxy Loxy, I recently started having cramping in my feet at night - the tops of my feet were ice cold and they were painful to walk on. I did a "search" on Lymenet and found two people who said they had painful feet

as a result of taking Cryptolepis which surprised me because I've taken it successfully for quite a while now but I stopped taking it and last night, my feet were almost back to normal - not everyone might be affected by Crypto but I was.

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foxy loxy
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Clint31,

If you have M.S. style symptoms, you could try LDN. (low dose naltrexone)

My mom and sister are both on it with GREAT success. It has stabilized my mom, and basically cured my sister who was getting so bad she could hardly hold her baby....

Wonderful drug with little to no side effects...

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spinning122
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tulips, I had the same experience with Crypto, burning cold feet/lower legs.

It cause numbness and tingling and weird shooting pains and I had been on it for months (it works really well for Bab!) before I figured out what was going on.

I was scared of these symptoms but as soon as I stopped the crypto these feelings stopped. I can bring it all back with even a couple drops of crypto.

I think it is so important not to underestimate side effects/adverse reactions to herbs and pharm drugs...

My doc had never heard of anything like my reaction to it but it seems that you had a similar experience..

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