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» LymeNet Flash » Questions and Discussion » Medical Questions » need your wise help, if i should test or treat in future?

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Author Topic: need your wise help, if i should test or treat in future?
Junior Member
Member # 51814

Icon 1 posted      Profile for dev999     Send New Private Message       Edit/Delete Post   Reply With Quote 
hi hope to get your thoughts on my predicament.

I was tested back in o6. and was treated. the very very short version, did bruner herbs for over almost 2 years, then Dr K's treatment for about 2 years as well. I did not get any better nor did I have a "result' in a die off that said "at least you know you got it"

as most of us know our symptoms look and can be a load of other things. mine very much so. I believe in chronic lyme but I also think that we might be able to live with a positive test and it might not be the thing/things that is kicking our booties.

( I am including that little thought for reference of why I am pondering this but not to create a conversation weather that is true or not) just need your thoughts about my results and testing.

my doc who ordered the test told me its positive but not much else then I went to dr K who muscle tested me and told me I had lyme and 5 co-infections.

I know muscle testing has/is helping people but for me I just don't feel it holds up to lab testing. But I also don't know if this test shows enough to prove that " I have it" esp since I didn't get even a little better or worse for that matter.

If you have ever been treated by Dr K's protocol you know that its big! you are taking rounds of antibiotics and tons and tons of complementary things.

I did every single thing to the letter just to add that I really worked at both treatment protocols. I didn't expect a miracle but did expect some change after all of it.

I am going to do a "go fund me" to see if I can drum up some money for one last treatment round.

I am in bad shape on all fronts and really only have one more attempt left in me. if its going to be "lyme focused" I want to be sure that the lyme is worth the pain time and money.

REALLY appreciate your help and expertise, so many here are super sharp and well I am as with it as a ball of hair these days.

lyme IgG western blot
41 kDa ++
58 kDa +

Lyme IgM

31 lDa ++

41 kDa IND

66 KDa +

I was negative for bart Babesia and ehrlichiosis and of course since I didn't have 5 bands considered negative for burgdoreri.
thank you so much!!!!!! dev

(breaking up the post for easier reading for many here)(Robin) .. edited name of LLMD per LN rules

[ 01-30-2019, 11:31 PM: Message edited by: Lymetoo ]

Posts: 3 | From california | Registered: Jan 2019  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (1K+ posts)
Member # 49177

Icon 1 posted      Profile for Bartenderbonnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi dev999 and welcome to Lyment.

Did your treatment protocol(s) look anything like this?

Posts: 1716 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi and welcome - you've got positive Lyme bands. The CDC sets the bar too high, asking for 5 bands. Many think that having even one Lyme-specific band means positive.

Am sending you a private message -

Posts: 12714 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
What are your main symptoms?

Opinions, not medical advice!

Posts: 93715 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator

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