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» LymeNet Flash » Questions and Discussion » Medical Questions » Advice on Treatment

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Author Topic: Advice on Treatment
darrenj
Junior Member
Member # 51816

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I was hoping to get some advice on my symptom, test results and drs in the North Jersey/NYC area.

MDL labs
IgM faint signals at band 41,39,34,23
IgG faint signals at band 93,58,41

Symptoms
Unexplained Muscle pain in the thoracic and rib area on my left side. Muscle spasms throughout my back. Raynauds on my left two middle toes with intense pain. Feet always cold with numbness on and off.

Posts: 1 | From bergen county nj | Registered: Feb 2019  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Welcome to lymenet darrenj

Scroll down to "Western Blot Tests Explained."

https://sites.google.com/site/marylandlyme/lab-tests

Your reactive bands 23, 34, and 39 screams Lyme.

Take this test that was invented by a world renowned LLMD, Dr H, called the MSIS (multiple systemic infectious syndrome )

http://lymeontario.com/wp-content/uploads/2015/03/Horowitz-Questionnaire.pdf

You can request a LLMD through Global Lyme Alliance here;

https://globallymealliance.org/education-awareness/find-medical-professional/

You can request a LLMD through ILADS here;

https://www.ilads.org/patient-care/provider-search/

You must become your own health care advocate. Learn all you can about Tick Borne Infections. When a tick bites you, you are infected with multiple pathogens. . . It is NEVER just Lyme (Borrellia).

This is a Diagnostic Guide to Treating TBI's by another great LLMD pioneer .

http://www.lymenet.org/BurrGuide200810.pdf

Copy and paste that so you can refer back to it. I guarantee everytime you reread it, you will learn something new. It's so compressive and informative !

Start a folder with everything medical included. Copies of all blood tests, medical procedures, medical providers seen, all meds, all daily symptoms. Get your financial affairs in order, Lyme Disease is expensive to treat. Most LLMD'S don't participate in insurances unfortunately.

We are here for all questions you may have. Good luck on your healing journey.

I will send you a private message.

Posts: 1514 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

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Faint signals, is that a joke? If you take a pregnancy test does it show faintly pregnant.
No, it's either negative or positive.

You are producing anti-bodies to Lyme therefore you have been exposed. Lyme won't be the only bacteria(s) or viruses that will need treatment.

These labs that have changed the language on their testing results are criminal.

You need a Lyme literate doctor to help you. I highly recommend that you search the web for a local Lyme support group.

Today there are active support groups from coast to coast. They are the folks that know which doctors are treating in your area, or state, or a state near by.

They also know which doctors to avoid. Majority of these groups have Facebook private pages or private websites where you can communicate your needs with them.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6273 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet!

Here is the link for Dr. C's (one of the top Lyme-literate doctors) "Western Blot Explanation" for you to read:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=042077;p=0

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:

https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help. They would know better about their state.

Some more resources for you (including Support Groups info):

http://whatislyme.com/websites-and-support-groups-by-state/

www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the books written by the top LLMD, Dr. H. titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8402 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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Amen on the "faint signals" .. It's either THERE or it's NOT THERE.

--------------------
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oops!
--Lymetutu--
Opinions, not medical advice!

Posts: 93439 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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