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» LymeNet Flash » Questions and Discussion » Medical Questions » Mayo clinic

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Author Topic: Mayo clinic
abbyjo
LymeNet Contributor
Member # 16073

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Does anyone know how accurate Lyme testing is done through Mayo Clinic compared to others? Thanks!

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abbyjo

Posts: 230 | From Southern CA. | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
Rumigirl
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Whew, no way, jose!! That's one of the worst possible places to go for that! Steer clear. They are Lyme deniers.
Posts: 3595 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Previous experiences from Lyme sufferers;

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/134914?#000002

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/114609?#000000

Mayo is a waste of time.

Posts: 1514 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Lymetoo
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ZERO validity

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--Lymetutu--
Opinions, not medical advice!

Posts: 93439 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
BobG
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Probably uses the CDC criteria (not originally meant to be diagnostic) for Western blot to deny sufferers proper diagnosis.
Posts: 349 | From Massachusetts | Registered: Dec 2012  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Let's put it this way: They sure aren't going to use Igenex!

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--Lymetutu--
Opinions, not medical advice!

Posts: 93439 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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As we all say: HOLD THE MAYO!!!
Posts: 8402 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
abbyjo
LymeNet Contributor
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Thank you so much for the input! Someone I know, (mostly through fb) just had her daughter tested there and it was negative.

She says she feels confident in their negative result. So frustrating because her daughter is very ill with all the crazy Lyme symptoms and of course her doctors are all scratching their heads.

I have Lyme so I know the struggle. I tried to tell her to go through igenix and gave her a list of LLMD’s in her state. Unfortunately she’s relying on what her doctors are telling her. [Frown]

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abbyjo

Posts: 230 | From Southern CA. | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
   

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