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» LymeNet Flash » Questions and Discussion » Medical Questions » Xifaxan for sibo

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Author Topic: Xifaxan for sibo
6Hypnone
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My lyme doc wants to put me on this for 14 days, then change to a similar herbal. I know its a different abx in that it's not absorbed in the gi.
Any side fx? I'm not even sure yet if my insurance will cover it. She said many insurances have issue with it for some reason. Figures.
I also have candida and am on megaspore

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Lymetoo
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Let's see... It makes candida worse, it kills off all kinds of beneficial bacteria.

What else would you like to know?

That it made me way way worse and 10 years later I'm still mad at that doctor??

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--Lymetutu--
Opinions, not medical advice!

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sammy
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Have you already seen a GI doctor & been diagnosed with SIBO? Before taking any medication or treatment, you should always have all the proper testing done to verify the suspected diagnosis/ cause of your symptoms.

Xifaxan is a super powerful & sometimes dangerous antibiotic that can bring great relief or misery. It has to be used with caution & care.

I’m sorry if this is hard for you to hear right now. I just don’t want you or anyone like you to get hurt.

Take care

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Lymetoo
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Amen.

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--Lymetutu--
Opinions, not medical advice!

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6Hypnone
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Worse than any other broad spectrum abx? She said it's not the same as other abx. Plus testing is too expensive. Shes basing on symptoms.
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Lymetoo
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That was what my doctor did to me. No testing. He just assumed.

All I can say is that it made everything worse and now 10 years later I have so many food sensitivities that it has made my life very difficult.

I can't so for sure that is was the abx, but nothing has been right since and I have not seen that doctor since.

I knew right away that it made everything worse.

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nomoremuscles
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I used xifaxin a couple of times, normal dose the first time, then double dose -- all as per Pimental's lab. It helped for about a week, then the microbes regrouped and things went back to being very bad.

Did it make me/gut worse?

Don't know. Very hard to say, as my gut was already wrecked from extended ILADs-style abx Lyme trx.

I have only tolerated a small handful of foods for about 10-15 years now. Lost tons of weight, and have terrible autoimmune syx in muscles, esp legs, from almost any food reaction.

Currently looking into a peptide LL-37, which seems to correct gut function by sending signals to cells to repair damage, while killing bad bugs and encouraging the growth of helpful ones. Some have had food intolerances turn around using this stuff, and some have had their autoimmune syx reverse. But it's relatively new, and very hard to find reliable accounts. Terrified of possible reactions.

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Robin123
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FYI - Donna Gates and Jill Carnahan both address SIBO - you could take a look at their websites. Also Josh Axe is good on healing the gut. And Green Med Info is a good site for researching.
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6Hypnone
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I know my regular ND can treat sibo with just herbals. And this doc was gonna switch to that after 14 days. But I'm sure if I said I was uncomfortable she'd go another route.
Why is this one worse than other abx?
Looks like Jill recommends xifaxan too as far as abx.

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Lymetoo
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I don't know, 6H .. but it's like "nomore" said .. Helped at first. (like a week or so)

Then it all got way worse. Believe me, you do not want to be down to 5-10 foods to be able to eat.

[ 02-14-2019, 03:47 PM: Message edited by: Lymetoo ]

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Opinions, not medical advice!

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6Hypnone
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I'll ask my ll.

5-10?

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nomoremuscles
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Hi 6Hy,

Lymetoo is right about this.

You don't want to screw up your gut flora any worse, if possible. My gut was so bad at the time that I felt like I had no choice but to do the xifaxin. And, as I said, it was a VERY temporary fix, about a week and I was back to being terrible.

Also, regarding Donna Gates -- I haven't read her stuff in a while. But when my gut first started going off, around 2002, I got her book (Body Ecology Diet) and followed it to the T. Bone broths, veggies, sea salt, all of it. Didn't help one bit.

Over the next years, following the advice religiously, I watched my tolerated list of foods go down, one after another, till I was left with two. Think of that: two foods. Now I tolerate a few more, but reading people say they are down to 5-10 foods ... well that sounds heavenly to me.

I think BED, and other recommended approaches to gut health, will work for fairly healthy people with a bit of gut trouble, gas, bloating, etc. But once the flora is shot, none of that stuff works. I haven't spoken to anyone with a wrecked gut that got fixed by any of this.

Some people have suggested that many (or most) of our chronic syx may be being caused by the gut and not the Lyme and co's. I am at a point now where I think this idea is more right than wrong. I can provoke classic "bartonella" syx by eating certain foods. Same goes for Lyme syx, babesia, and so on. I don't know what's going on with this, but I am having more and more trouble believing the standard chronic Lyme argument at this point. If you'd asked me 10-15 years ago, I would have been completely certain that the prevailing ILADS dogma was correct. But now?? No idea anymore.

Once the gut went, my thyroid went, hair started falling out, skin got screwy, autoimmune sys started including spasticity, neuropthy -- everything collapsed.

I think now that the gut may be the ticket to the whole thing. But, who knows, my own experience may be clouding my judgement. Either way, I wish you the best. I understand how miserable this can get. Good luck with whatever you choose.

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Lymetoo
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I was also on the BED diet .. it just made the histamine issue worse.

What my concern is about the abx is that it must kill off specific beneficial bacteria that we REALLY need.

There is not enough research to really know what it kills off and what it does NOT kill off.

I also cannot digest oxalates very well .. so look that up and see what foods are left. (nothing)

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--Lymetutu--
Opinions, not medical advice!

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