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» LymeNet Flash » Questions and Discussion » Medical Questions » Shapiro now on Lyme Working Group

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Author Topic: Shapiro now on Lyme Working Group
Keebler
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HHS has made no formal announcement yet he's announced on IDSA website. Trying to sneak it under the radar, it seems


https://www.lymedisease.org/shapiro-tbdwg/

If true, Shapiro on TBD Working Group will outrage Lyme community

By LymeDisease.org - News - May 17, 2019

The Infectious Diseases Society of America (IDSA) has announced on its website that

Yale pediatrician Dr. Eugene Shapiro has been named to the federal Tick-Borne Disease Working Group.

So far, there has been no confirmation of this from the Department of Health and Human Services (HHS).

If true, this development will likely spark outrage in the Lyme community, where Shapiro is widely viewed as working against the interests of patients. . . .

[read just why this would be such a devastating appointment]

. . . Seeking confirmation

LymeDisease.org has contacted HHS for clarification, but we have not heard back yet. As of this writing, we do not know who else has been named to the Working Group.

[full article at link above]


https://www.idsociety.org/idsa-newsletter/may-15-2019/idsa-member-appointed-to-tick-borne-disease-working-group/

IDSA website - May 15, 2019

IDSA Member Appointed to Tick-borne Disease Working Group

IDSA member Eugene Shapiro, MD, FIDSA has been selected to serve on the second session of Department of Health and Human Service’s (HHS) Tick-borne Disease Working Group,

which resumes its activities with an in-person meeting in Washington, DC on June 4. . . .


. . . However, we expressed serious concerns about the report’s recommendations to

require insurance companies to cover any treatment prescribed for Lyme disease, and

to protect physicians from any professional repercussions for administering ** potentially harmful treatments to patients that have no evidence-based research behind them. **

HHS did not publicize this report and it has received very little attention from policymakers.


[end excerpts from IDSA -- poster's note: their spin makes no secret of their view, which is harmful to the truth. Many of the statements by this group are outright lies.]
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Posts: 47625 | From Tranquil Tree House in my dreams | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
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Again, for anyone here who might be new to lyme or other tick-borne infections -- or who just has questions, the BEST places to start:

www.ilads.org

ILADS - International Lyme & Associated Diseases Society


http://www.ilads.org/education/physician-training.php

ILADS Physician Training Program


https://www.lymedisease.org/

Lyme Disease.org - a top patient education organization


http://www.lymediseaseassociation.org

Lyme Disease ASSOCIATION
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Keebler
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https://igenex.com

IGenex Labs - Diagnostics for Lyme & other Tick-Borne Diseases


http://www.anapsid.org/lyme/lymeseroneg.html

Reasons for False Negative (Seronegative) Test Results in Lyme Disease
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duncan
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Selected by whom? Approved by whom?
Posts: 218 | From Unitied States | Registered: Jul 2015  |  IP: Logged | Report this post to a Moderator
Keebler
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The IDSA acting on its own, it seems. "Appointed" and "selected" are in the IDSA announcement but the process in which that happened seems obscured by design.

LymeDisease.org will likely have some follow-up to this soon.
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duncan
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Obscured by design seems a natural fit with the entire TBD fiasco.

I don't recognize the IDSA's right to do this unilaterally anymore than I would nominating myself to the task force - or anyone from any TBD advocacy without peered consent.

I suspect someone gave their imprimatur to this, and I'd be curious as to who it was.

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Robin123
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How could someone like him get on the working group?? Who appointed him? And why? He works for insurance companies and denies Lyme patients treatment.
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Bartenderbonnie
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I don't know how Shapiro got on the TBI Working group, but one thing is for sure. . . HE WANTS TO BE ON IT !

He self-serving EGO requires it, his conflicts of interests and politically corrupted cronies NEED reinforcement to deny, deny, deny the existence of persistant chronic TBI's.

Sorry, the science is on OUR side.

That's why he's getting sued as we speak in Texas;
https://www.courthousenews.com/wp-content/uploads/2017/11/LymeDisease.pdf

(I LOVE posting this link💚)

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Robin123
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He should be barred from being in the group. He works for people who don't want to recognize Lyme and co's.
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Tincup
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TIME SENSITIVE

Say NO to SHAPIRO!

Please sign the petition, then spread far and wide and encourage others to do so.

Thank you!

Link To Petition & Information

https://www.change.org/p/tick-borne-disease-working-group-remove-eugene-shapiro-from-federal-tbd-working-group-135a8441-163f-4277-8f22-523e92b9ecf2?recruiter=73619306&utm_source=sh are_petition&utm_medium=copylink&utm_campaign=share_petition&utm_term=triggered

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Tincup
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To have a chance to be on the TBDWG you must be nominated and/or you can nominate yourself. (Time/dates announced in advance.)

It's a lot of paperwork- I've done it for someone I thought would be a good person to represent us.

The nominee SHOULD know this is happening because there is a lot of personal info that must be submitted- I believe tax returns or income type questions? may be some of the things asked?

(I forget all the details right now & am too tired to look it up again.)

So unless you are the person or can get that info easily, the nominee would typically be advised they are being nominated.

That person is vetted and checked for various things according to the federal rules and regulations, then selected if they qualify.

Obviously, being a stinking pig isn't something that would disqualify someone or he would have been skipped over.

As of right now ONLY Shapiro and IDSA have announced he has been selected. BUT....

As much as Mr. Pinocio Shapiro Nose lies, that might not even be true.

ALL of the nominees have not been officially announced yet- it is a work in progress.

Who knows, we might get a couple more monsters on there!

[Eek!]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Robin123
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That person is vetted...

Shapiro doesn't pass vetting. He's got a zillion conflicts of interest.

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t9im
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Hi Everyone:

8 years ago there was a good article in the Yale News that was very supportive of Dr. J. Then below the online article there were many supportive posts except for 1 by a WillyLomein.

We thought WillyLomein was Dr. Shapiro due to the content of the post and Yale connection.

https://yaledailynews.com/blog/2011/04/05/amid-medical-controversy-children-saved/

Here is the post:

WillyLomein • 8 years ago


Shame on the YDN for feeding the "chronic Lyme disease" trolls with this twaddle. As easy as it is to be seduced by a senior citizen in a track suit preaching anti-establishment medical truths, I expect more skepticism from someone with Ms/Mr. Stephenson's talents as a journalist.

Putting "children saved" in the headline based on the assertions of Dr. Jones and a student whose improved life-trajectory may or may not have had anything to do with these "treatments" is simply irresponsible. In fact, Dr. Jones has done more harm than good by pushing large and unnecessary doses of antibiotics on his patients over the years, to say nothing of the new strains of drug resistant bacteria he's created.

When long-term antibiotic studies have been done on former Lyme disease suffers with carefully diagnosed disease (e.g. validated biochemical tests, as opposed to the Jones telephone test) there is little to no benefit of treatment for ameliorating lingering symptoms. But because Dr. Jones's patients all think they have chronic Lyme disease from the get go and Dr. Jones evidently never bothers to test them for Lyme before starting treatment, this is irrelevant as it is very unlikely that any of them ever had Lyme at all. Just another physician getting paid while playing the schmucks.

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Tim

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