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» LymeNet Flash » Questions and Discussion » Medical Questions » Is off balance Babesia or Bartonella symptom?

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Author Topic: Is off balance Babesia or Bartonella symptom?
SDAR
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[bonk] I had an appt with my LLMD and I am so confused!! My #1 symptom is off balance when I walk, it has destroyed my life for 3 yrs and at every appt with him we discuss it is not improving and I was confused if it was a Babesia or Bart symptom and asked him previously but dont think he ever really answered me.

I have been treating bart for over 9 mo and balance not improving. I was just changed to Rifampin last Month from Bactrim.

So when I asked him again yesterday if the balance is related to Babesia he said yes and I was so confused!!! So now I am on Azithromycin, Malerone and Bactrim DS and I pray it improves my balance. I also have slurred speech and dont know what caused that.

(breaking up the paragraph for easier reading for many here)

[ 03-16-2020, 12:26 AM: Message edited by: Robin123 ]

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Lymetoo
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I would say it's more likely to be from babesia. It was for me, but I don't think I ever had bartonella.

It takes a long time.

[group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

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SDAR
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Thank you I seem to feel more comfortable with answers from those who have Lyme rather than treat it which is sad to say.
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Bartenderbonnie
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For me the balance issues and vertigo were Lyme.
It was one of my first symptoms and very scary when you don't know what's going on. I went all the way to Cleveland Clinic to a Neuro Vertigo specialist who said I have vertigo, ugh.

I got a LLMD and it went away with antibiotic treatment in month 3.

One year later the dizziness, holding onto walls and vertigo came back but with sweats so I attribute that relapse with Babesia. All was fine after 4 months of Mepron, malarone and azith.

Alas it's back (with sweats) so I'm back in treatment.
I attribute this relapse due to termination of my IVIG due to co-pay issues. I have CVID and am on pins and needles with the corona virus.

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lindadanis
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why hasn't he tried coartem for Babesia? I am going to start pulsing it six days every three weeks. I have the exact samething. Terrible.
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SDAR
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quote:
Originally posted by lindadanis:
why hasn't he tried coartem for Babesia? I am going to start pulsing it six days every three weeks. I have the exact samething. Terrible.

I do not know and I am not familiar with that ABX. I have tried to keep it a day at a time but the days seem to be really long!!!
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lindadanis
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I feel for you., I really do. I have had the exact same symptom for three years and nothing has helped. Maybe you can mentioned this drug to see if he would try it. Prayers sent your way.
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MissVictoria
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Yes, tick-bourne diseases can cause balance issues. The inner ear controlls balance, so see an Ear Nose Throat Specialist and ask for a script for Vestibular Rehab. It is really helpful for regaining balance.
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MannaMe
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For my hubby the tipsy feeling was from Babesia. It got much better after treating for awhile.
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SDAR
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quote:
Originally posted by MannaMe:
For my hubby the tipsy feeling was from Babesia. It got much better after treating for awhile.

Did he happen to have any slurred speech?
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MannaMe
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No, no slurred speech. Shortness of breath and anxiety were some of his symptoms. The anxiety was a really big one.

Noise and light bothered him also. He wore sun glasses anytime he went outside. He couldn't drive and even just riding in a vehicle made him carsick.

The things moving past was too much for his brain to process.

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lindadanis
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Can u tell us what he used to treat Babesia. I was positive for that also and have terrible anxiety and dizziness. Any help would be appreciated.
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Robin123
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Here's another possibility to check out. I get dizzy when my cervical vertebrae are out of place, especially the top one, the atlas. You could go see a really experienced chiropractor who could check that out. When my chiropractor puts it back in place, the dizziness goes down immediately.

I think the slurred speech is due to brain inflammation from the Lyme. Meaning treatment that's right for you could stop it.

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MannaMe
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He used artemisinin to treat babesia. The babesia would flare up over the weekend and he followed someone else's advice on here.

They took artemisinin on the 3 days they flared. Fri, Sat & Sun. (I forget who it was) Anyway, after he did that it really seemed to help clear the babesia symptoms.

We also have Byron White's A BAB drops. I don't remember if he took it at the same time or it the A-BAB was later on. Probably later, as he is quite sensitive to lots of stuff.

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