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» LymeNet Flash » Questions and Discussion » Medical Questions » Anyone dealt with borrelial lymphocytoma?

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Author Topic: Anyone dealt with borrelial lymphocytoma?
Tincup
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Just curious... anyone have this?

What is it you ask? Good question...

For those who don't know...

It is caused by Lyme... one of the various "rashes" a person can get.

Described by the ducks...

It is a "bluish-red nodular lymphocytic infiltrate known as a lymphocytoma, typically
appearing on the earlobe or nipple, occurs in Europe but not the United States".

Well.. unbeknownst to him.. it DOES occur in the USA.

Here is another description:

"It is a bluish-red nodule or plaque with a size between 1-5cm, sharply demarcated, and
often with a slightly atrophic surface.


On palpation, BL is a soft and non-tender lesion. BL is located typically on the earlobe, breast (nipple, areola), and less frequently on the scrotum or the (anterior)
axillary fold."

Anyone have it?

[This message has been edited by Tincup (edited 29 September 2004).]


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caat
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Uhmmmm... I dunno. got a picture?

and what is the (anterior)axillary fold? OR what would that be on woman?


Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002  |  IP: Logged | Report this post to a Moderator
lymelady
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[This message has been edited by lymelady (edited 30 September 2004).]


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lymelady
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[QUOTE]Originally posted by lymelady:
[B]Hi Tincup,
So happy to see you back!

Yes. Early on before I even began to get sick from lyme but after the rash, I found a funny lump on my earlobe. Just as you described. After several weeks it went away.

Two weeks ago, I discovered, after my trip to J. clinic, I have the same type of lump/cyst in my groin area. It also appears to be going away or at least getting smaller.

I haven't given these lumps much thought, honestly, because the vertigo is so awful that if I found a racoon attached to my rear end, it would pale in comparision.

I also had a positve IGG 58, which is found often in Poland, according to a study I found.

Curious huh.
Lymelady


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treepatrol
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Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
TheCrimeOfLyme
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Yes


Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
Tincup
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Hey crime...

Cat got yer tongue? You feeling ok?

You seem rather quiet....

caat- You said..

"and what is the (anterior)axillary fold? OR what would that be on woman?"

HA!

I am not sure what the scrotum on a man would be compared to, in a ladies body parts...

And if I did.. not sure I would be able to say it polietly on a general forum??

I can say.. to you and Lymelady...

AFTER I comment on her remark...

"I haven't given these lumps much thought, honestly, because the vertigo is so awful that if I found a racoon attached to my rear end, it would pale in comparision."

HA! I about busted a gut at that thought!!!

I laughed all day! And kept looking around behind me real quick.. as if there were a racoon hanging off MY behind.

Funny thing too... you are exactly right!

That vertigo stinks!!!

Ok... where was I?

Oh... lumps in the groin area.

Have you considered Bartonella?

Just a thought!

Anyone else?

HA! A racoon on her rear end... hehehe


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TheCrimeOfLyme
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Hey Tc,

I was really not feeling well, but more in a bad mood so I just wrote yes.

I had the purple circular bump posted in treepatrols post as the first sign anything was wrong.

I had it on my BUTT. then, I got one close to my ear that an ENT wanted to take out- it went away with treatment.

Im on more treatment now for bart again. Hoping it will clear the rest of my sx up.


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caat
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Hmmm.... nope, don't think I've had that.

But I'll have to google it another day when it's not 3:50 in the morning. I don't know what a lymphocytoma is.

good night!


Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002  |  IP: Logged | Report this post to a Moderator
dal123
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Yes I deal with this quite often, Please see my post under the section w/ lumps and nodules under the skin. THis is fairly common and can reappear / disappear upon continued treatment. Please do NOT pick on these areas, massage, manipulate, etc as you will only spread pathogens / toxins from these areas to flee to other parts of the body. This is one reason why I am finding massage therapy / manual lymphatic drainage, some types of chiropractic adjustments contraindicated in these people - causes releases of pathogens / toxins faster than the body can eliminate and reabsorbes in other areas of the body. LBG treatments which aim at the deep lymphatic nodes, ie akin to opening the major traffic intersections of the body is a much safer and proven method. I would suggest you find a person in your area utilizing such equipment, apply remedies, etc during the treatment, do on a consistent basis and you will get better.
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RECIPEGIRL
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Up to the top for Eronvica to see the picture by Treepatrol posted here.
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paulscha
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Hello, I don't know if this is related, but I recently discovered several lesions on my bottom, surrounding the anus. They are a dull, dark purple, their surface is flat but the lesions are raised a bit from the surface of the skin. I went to a dermatologist and they were concerned it could be Bowen's, a borderline cancerous type of squamous cell lesion. A biopsy was taken and I should find out next week.

Am hoping this is not cancer. I saw a surgeon a few hours after the dermatologist, and the nasty buggers are on the inside too.

Cancer on top of Lyme seems just a bit much. I'll let you know what I find out when the pathologist's report comes in.


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kitsicox
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Answer to the womens anterior axillary region:

Anterior=Front
Axillary=Armpit(for lack of a better word)

Hope it helps.(lol


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Magdalena
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prshaw,

What are LBG tx's? An unfamiliar term. I instinctually knew not to get a massage although I feel as if I could really use one!

I have lumps EVERYWHERE. The ones on the back of my neck and shoulders extending down to my hips bother me the most. I do have them all over my torso and in the deep tissues of my legs and arms and breasts.

I realize that this is NOT what Tincup is referring to in this post, but your comment about LBG tx intrigued me.

Thanks,

Maggie


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map1131
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Old thread TC from you in '04.

I recently had new bite. Within 5 days I had lymphocytoma pop up on my left nipple.

Never had this before? Over the years I've had skin lesions but even those seem to have disappeared over the last 18 mths-2 yrs.

Now I do have something that has been going on with my elbows since '06. Recently my research said this was ACA....European borrelia?

What? In KY? Nothing I've tried has helped my elbows and then a couple months ago I started using Coconut Oil as my body lotion and really sopping it up on my elbows.

No itching, scaly skin or lesions that I've noticed in over a month. My elbows used to drive me crazy.

So tell me TC what you know about this lymphocytoma B. burgdoreri? I've been reading Dr B on-line info.

Only 14 threads on this site with this dx. Some really interesting reading from Melanie about 5 yrs ago.

Pam

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GretaM
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HA! So that's what they are....

Thanks for posting this Pam.

I had one on my ear. (Thought an infection from my earring). Went away.

Have one under my boob.

Several on the sides of my hips, and some on the outside of my upper arm.

Edited in to include: I guess I'll stop poking them and pressing them then...

I always thought these were bart nodules, but they are purple-ish.

Well, I'll be...

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map1131
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Mine on the nipple didn't have time to become purple. But as soon as I felt/seen what was going on, I smothered it in Tea Tree essential oil.

I love my tea tree. Within 4 hrs I was sitting in front of my rife machine running lyme feqs.

I still might need to go have mammogram (just had one in fall) on that breast. In fact I think it is worth the peace of mind to do that.

Pam

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OtterJ
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Up on the tea tree oil. I have a bump on the leg that was bitten. It is relatively hard and was reddish purple. I hope this doesn't spread. Doesn't look like an impacted hair follicle and is on the leg that was bitten--on my calf.
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map1131
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Waiting for Tincup to hop on the board. She'll see this 10 yr old thread of hers and say what the heck is this.

Tincup, where are you? I need your expertise.

Pam

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Tincup
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You're too funny! Got my attention though. And just for you I dug into some old and new research papers and actually READ them all! Here are my thoughts and conclusions. Take it or leave it.

1. Best literature is from Europe. The CDC/IDSA sucks at this as it does the rest of Lyme. The cure they say is supposedly 2 weeks of antibiotics. Where have we heard THAT before?

2. Combined with the elbow "stuff" you mentioned I am wondering if this Borrelia lymphocytoma is actually a new manifestation, from recent bite, or is a result of a chronic infection? Why?

In patients in chronic late stages the ACA skin and neuro manifestations can appear. With it, the Borrelia lymphocytoma can pop up, or not.

The elbow thing. Is it like this? Go about 1/2 way down and look at elbow pics diagnosed by those who don't know as a form of arthritis. My thought is the elbow thing is part of the chronic Lyme skin manifestations and/or ACA manifestations.

And yes, coconut oil seems to help!! You did good there!

https://picasaweb.google.com/AfterTheBite/LymeTBDRashes

3. I really need to say the Borrelia lymphocytoma should be treated with antibiotics. Doxy is suggested in the IDiots literature, but the old time way (European) of using a penicillin could be successful in kicking it down.

IF the elbow thing, and / or the Borrelia lymphocytoma is ACA or another Lyme skin/neuro manifestation, it is proof-positive the spirochetes are active.

4. The ding dongs at ho ho Hopkins, like Meyerhoff, who did this article, still says the lymphocytoma can only be found in Europe.

http://emedicine.medscape.com/article/330178-clinical

Well, fiddle on that. It is being seen here in growing numbers. And you in KY. Hmmmmm..... Most cases I've seen in the past are within 100 miles or closer of the Atlantic Coast, with exceptions, of course. I don't have a map in front of me MAP, but you might check distance for me just for fun.

Could the ACA late manifestations thought to be only from Europe be inland that far now? Yes. Could it have been brought into KY by way of horses being sent here from Europe to graze in your beautiful blue grass? Yes, in my opinion.

Could a dang dog on vacation from NY brought it your way, or a bird from the flyway drop off ticks carrying whatever strain is needed to produce those symptoms? Yes.

Could it be the Borrelia burgdorferi strain is the culprit rather than a mysterious "European strain" which the IDiots say it must be from? Most definitely.

Conclusion- Most of the literature that talks treatment is saying to treat with antibiotics. It may even, like the EM rash, go away without treatment.

I think YOU are doing a super fine job with it and paying it the mind it deserves. And I agree, for piece of mind and if you don't mind the mammograms, go for it.

I do not think it is a good idea to do a biopsy if you are ONLY looking for Lyme spirochetes. Little chance you'd find them with testing being so poor. If you want to rule out other things, then certainly do so.

I have no clue if I've answered the questions you have, but I did try. Ask more specific ones if you care to and I'll see what I can find.

In the meantime, it's Sunday and I have a chicken to cook.

[Big Grin]

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www.DrJonesKids.org
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Tincup
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OH! And just for you map, I posted a bunch of related abstracts and links to articles on the Maryland Lyme website. Here is the direct link.

https://sites.google.com/site/marylandlyme/symptoms-information/borrelial-lymphocytoma

Now, my chicken awaits!

[Big Grin]

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map1131
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Good thinking about the horses brought to KY from European. One smart cookie you are.

Now I have some European connections. My family came over on the Mayflower. I'm sorry wrong story.

Actually my German and English kinfolk came thru Ellis Island many years ago. Maybe they carried the bug with them. No, that's possible.

It's in KY folks. The European strain of borrelia is here. No doubt about it.

Thanks TC, I'll do some reading.

Pam

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