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» LymeNet Flash » Questions and Discussion » Medical Questions » I'd like to do a poll on GFR/kidney function

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Author Topic: I'd like to do a poll on GFR/kidney function
dontlikeliver
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As I've recently found out I have GFR on the low side, but do not yet know what it means in my particular case, or if it means anything in my case; I've also learned a bit about the test and about kidney disease.

It appears that a lot of people have a low GFR (but not necessarily kidney disease). It can have a number of causes, and Lyme might be one.

I am curious how many among us chronically ill with Lyme have a low-ish GFR, and how many have had it further investigated and if so, what have you been told/had done?

To calculate your GFR, take your
Serum Creatinine (which is listed on labwork when you have bloods done) and enter it into this calculator:

http://nephron.com/cgi-bin/MDRD_NKF.cgi

You then just enter your sex, race and age and it calculates your GFR for you.

Perhaps you could just post here, when you've used the simple calculator, what your GFR is, and what your age and sex is, so that we can get a better idea of people's GFR's in different age groups.

DLL

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Nori
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What does GFR stand for?

--------------------
Nori

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dontlikeliver
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It stands for Glomerular Filtration Rate.
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dontlikeliver
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I can see this is a very exciting topic for most [Wink]

Anyone? Anyone?

DLL

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alliebridge
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Mine came out calculated as: 75 ml/min/1.73 m2

I don't know what it means though.

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lymie tony z
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Hey there liver,

I don't think it's cuz folks are'nt excited about this topic...however...who has been tested lately and have their blood tests handy?

I'll keep it in mind when I go to gastro at end of month.

We(lymies) have a good understanding that lyme affects internal organs...with special attention to the kidneys....whether it's the filtering of toxins or cystic form of disease....

What we don't know is why!

Hope you get some feedback on your poll.....zman

--------------------
I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman

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dontlikeliver
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Thanks for your responses.

I am just interested in seeing of generally, we as chronically ill (infected) people have lower than normal GFRs.

Some of us get our bloods done monthly while on abx, which is why I thought that perhaps there will be a few who do have their blood work on hand.

DLL

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johnlyme1
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My Serum Creatine during my IV blood draws were from .9 to 1.2 but most of the tme at 1. this gave a range from 78 to 89 on the GFR. What is a good GFR?
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dontlikeliver
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Very interesting.

"Normal" is around 100+ depending on age and sex.

I think it may be the disease itself which throws it off.

DLL

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dontlikeliver
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Normal values are: (from www.nephron.com)

Reference Table for Population Mean GFRs From NHANES III1
Age (Years) Average GFR
20-29 116 mL/min/1.73 m2
30-39 107 mL/min/1.73 m2
40-49 99 mL/min/1.73 m2
50-59 93 mL/min/1.73 m2
60-69 85 mL/min/1.73 m2
70+ 75 mL/min/1.73 m2

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alliebridge
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This means my level would be ok if I were over 70 years old.

Unfortunately, I'm in my 30s. [Frown]

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dontlikeliver
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Having a low GFR is confusing because you can be perfectly healthy apparently and have a low number. But, having asked a couple of friends with Lyme what theirs was, it was low also, so I think that it does not necessarily mean that we have diseased kidneys, but that the Lyme is doing something to keep the numbers down

I AM NOT A DOCTOR, and was only asking out of my own curiosity here.

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liz dobell
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Hi there, [hi] My GFR came up at 88 (based on blood tests taken a month ago) - so i guess i'm on low side too for my age (27) was your GFR much lower than this then?

hope you sort out any worries [Smile]

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dontlikeliver
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Hi,

Mine, 3 weeks ago, was 67. I'm 37.

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Squeegee
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Mine is 79. I am a 56 year old female.
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dontlikeliver
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So, so far we are all 'below normal' level. Why?
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dontlikeliver
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Does anyone else know their Serum Creatinine and/or GFR levels?

I am finding it very interesting that so far everyone who replied has a below normal one.

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sandygf
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My GFR is 70.22, should be much higher at my age of 50.

I will have it checked again in a month or so.

Sandy

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5dana8
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my GFR is 56 and 81 within a 6 month period taken every 2 weeks.

On all the lab slips I have saved my average creatine at 1.1 and dips to 0.8

But it says on the lab slips that the normal creatine mg/dl range is 0.5-1.5. So according to whoever makes up these numbers my kidney function was always within normal limit.

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dontlikeliver
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Dana,

So do you mean that your GFR has gone up in the last six months, to 81 - or did you mean a flucutation between these numbers, not necessarily going up, but up and down?

Even 81 is not within normal limits unless you are perhaps over 80 years old.

Just had mine rechecked, and it has not budged. Still on 67. I am now waiting for some other results also, but had an Albumin Creatinine ration test, which apparently was OK. So, fingers crossed, this does not mean doom and gloom.

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cantgiveupyet
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On my labs that were run in April my creatining serum was .8

my GFR calculated to be 90 ml/min/1.73 m2

im 30 years old so this is low.

there is a note on my labcorp test that says if persistent reduction for 3 months or more and is less then 60 defines CKD and greater to 60 may also have CKD if evendence of persistent proteinuria is present.

they said more info can be found at www.kdoqi.org

My kidneys and bladder are heavily involved with lyme...

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

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dontlikeliver
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I'm bringing this one back up because since I did this thread, my kidney function has gone down another 10%, to 58 (GFR=58).

One is expected to drop 1% per year on average. In the last year I have dropped 18%.

I still have not been seen by Renal specialist, but hope to be able to soon.

I don't know if Lyme has caused it, genetics or whether the treatment for Lyme itself has caused or contributed to this. I hope to find out soon.

I don't want to stop Lyme treatment because I don't want to be ill with Lyme, but I also would like to keep my kidneys....

Does anyone else here have chronic kidney disease?

DLL

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clpgotlyme
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I am 46 and mine is 82. No wonder I feel older!
Cindyu

--------------------
Cindy

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dontlikeliver
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Got an appt with Renal Specialist on Friday. Hope to get the scoop then.

Anyway, it's interesting that virtually all of us so far have a lower than normal kidney function.

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vachick
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Mine was 94 when I had my blood taken a few weeks ago. It has been lower in the past. I am 43 years old.
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trueblue
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Hi DLL,
I just did that calculation because I had copies of my blood work handy.

In January the GFR came out to 63 but in May it was 76.*

I'll get new results this week, now I'm curious how much this number fluctuates.

Good luck with the Renal specialist. Please let us know the scoop and I hope it's a good scoop.
[group hug]


*I am 49, those look like pretty low #s to me.


(My dad had kidney disease in his later years. At some point they noticed he only had one working kidney and realized the other was slowing down. They had no explanation other than perhaps the other one never worked, maybe the years of BP meds with diuretics in them, or perhaps the blood supply was nicked during his by-pass surgery years before.)

--------------------
more light, more love
more truth and more innovation

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Thereminator
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Hey DLL...as you know Im 48 and my static GFR is 96,so Im close to normal on that reading.

Do you think your kidney malfunction is from Lyme,ABX or both? [confused] Alan

--------------------
Charter member of the ~ Delux Toasting Club ~
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"Take No Prisoners"

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pingpong
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.


Assess glomerular filtration rate of the kidney

I resurrected this thead so the gfr can be had at the link provided to do so.

happy new year!

--------------------
pingpong

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