LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Seeking a Doctor » LLND in Oregon- Pdx

 - UBBFriend: Email this page to someone!    
Author Topic: LLND in Oregon- Pdx
WhitneyS
LymeNet Contributor
Member # 25666

Icon 1 posted      Profile for WhitneyS     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi all, I've been treated for Lyme by an ND for the last 10 months and am feeling stalled out with my current ND. Can someone send me a list of people treating Lyme in Portland OR?

Thanks!

Posts: 841 | From CA | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
SashaC
LymeNet Contributor
Member # 18968

Icon 1 posted      Profile for SashaC     Send New Private Message       Edit/Delete Post   Reply With Quote 
Try posting this in "Seeking a Doctor." You will get helpful responses there.
Posts: 151 | From SW US | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
WhitneyS
LymeNet Contributor
Member # 25666

Icon 1 posted      Profile for WhitneyS     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks
Posts: 841 | From CA | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
As you may know (since you ask for a LL ND), there are no LLMDs in Oregon. However, there are a few ILADS-educated LL NDs.

Be very aware, though, that there are some NDs who say they are lyme literate but are barely such. So do find one who is ILADS-educated and keeps up with ILADS conferences, etc.

And there is the occasional MD who thinks they know about lyme but after about one minute of conversation, it's clear they do not. The IDSA has a real stronghold in Oregon and does not want MDs to learn about and address chronic lyme or other tick-borne infections.

Still, there may be one or two in your area who is at least "lyme friendly" and not kick you out the door for mentioning the word but would not have the necessary knowledge (or be allowed) to actually treat with long-term combinations and rotations, etc.

It is important, though, to be aware that if you are seeing an ILADS-educated doctor and doing the best you can with self-care and Rx and supplements - that treatment can stall for long periods of time but that does not necessary mean that you are not winning the battle.

For some, it can take several years of just trudging ahead before they experience a steady and long-standing remission.

For all your options in PDX and in neighboring states, contact OLDN:
-------------

http://oregonlyme.org

OLDN: Oregon Lyme Disease Network

----------

Also check out:

http://health.groups.yahoo.com/group/OLDN/

OLDN - Yahoo web forum / bulletin board

========================

SW WA Lyme Network

Email: swwalymenetwork@gmail.com

------------------

Excellent reputation in the Seattle area:

http://www.thehealingartspartnership.net/index.htm

=========================

http://www.lymedisease.org/

California Lyme Disease Association (CALDA)

==========================

You might want to skip down to the articles and books here for a frame of reference:
-----------

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/13964?

Topic: How to find an ILADS-educated lyme literate (LL) professionals in these areas:

Naturopathic doctor (ND); Acupuncturist (L. Ac.), a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, . . .

. . . Holistic MDs, and also Doctors of Osteopath (DO) and Doctors of Chiropractic (DC), etc.

** Includes many professional links, articles and books on complementary / integrative methods - & RIFE links -- all by LL authors.

Also included are basic links explaining the principles of herbal medicine.

BODY WORK considerations (geared to lyme patients) are discussed; with links.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD or LL ND should know about:
----------

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
WhitneyS
LymeNet Contributor
Member # 25666

Icon 1 posted      Profile for WhitneyS     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Keebler,
Thanks, I have been tested for those and am positive for EBV (now lower levels), HHV6, and Clymidia P.

Posts: 841 | From CA | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Moving to Seeking a Doctor

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94228 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Cpn and HHV-6 changes everything, as you probably know. You need a doctor who is expert in those areas, too, not just lyme. Just addressing lyme will not be enough at this point but the good news is that the Cpn protocol is so similar and many with lyme also have Cpn.

But the Cpn protocol is very specific and a lyme protocol may not adequately address Cpn.

There is one MD in Washington state who is reported familiar with Cpn, however, it seems that Oregon MDs are not. Still, the OLDN would know more about that for MDs and NDs. You need a doctor who know all about all of these.

Does your ND have you on either the Wheldon or the Stratton protocol - or a combination as detailed at www.cpnhelp.org ? Hope so.

In addition, I assume your ND has you on a PORPHYRIA management protocol as that is essential with the Cpn treatment.

I sent you the name of one LL ND who is very familiar with that and has experience with it.

================

* www.cpnhelp.org

Cpn Help

* http://www.cpnhelp.org/?q=node/70

Physician's page

* http://www.cpnhelp.org/secondaryporphyria

Secondary Porphyria: what you should know before starting a CAP - as when treating Cpn

-----------------

This thread here at LymeNet also discusses the many effects of porphyria and secondary porphyria:
---------

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/91842?

PORPHYRIA
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
littlebit27
Frequent Contributor (1K+ posts)
Member # 24477

Icon 1 posted      Profile for littlebit27   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sending you a PM.

--------------------
*Brittany Lyme Aware on FB*
http://littlebithaslyme.wordpress.com/

Posts: 2310 | From Southeast | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.