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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD in NY, NJ or CT

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Author Topic: Seeking LLMD in NY, NJ or CT
mamabear
Junior Member
Member # 49934

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Hello,
I am looking for a LLMD for myself in the NY, NJ, CT areas.


I was treated for Lyme 18 months ago with 4 weeks of doxy but testing at that time showed that I've had Lyme in the past. I was not aware of or treated for Lyme previously.


I have been sick with autoimmune problems/fibromyalgia for over 15 years and now I think it may have been Lyme all along.


Hoping to find help! Thanks

Posts: 1 | From New York | Registered: Feb 2017  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for NY & CT.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by the top LLMD, Dr. H titled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8107 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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