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Topic: Western WA looking for LLMD
Member # 50814
09-05-2017 03:13 PM
Looking for one in WA in the Puget Sound area (Tacoma).
I've had ongoing symptoms like many, and no diagnosis. Standard Lyme tests have been performed, but have come back negative. I'm not sure that they are conclusive though. I've been dealing with this for 10 years, and it's steadily getting worse.
Posts: | From 1 PNW | Registered: Sep 2017
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Frequent Contributor (5K+ posts)
Member # 9256
09-05-2017 06:50 PM
Welcome to Lymenet! PM sent for WA.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment. Here is a link for them: http://www.lymenet.org/BurrGuide200810.pdf Unfortunately, LLMDs are far and few between. You need to go where they are. Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this: "Why Lyme Doctors Don't Take Insurance" http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0 When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this. Check the online state Lyme groups at: https://groups.yahoo.com/neo/groups/WashingtonLyme/info Maybe they can help. Some more resources (including Support Group info): http://whatislyme.com/lyme-in-washington/ Note: There are no Lymenet groups for Washington state listed. Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information. Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon. View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
Posts: | From 8326 Illinois | Registered: May 2006
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