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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Looking for LLMD on Long Island

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Author Topic: Looking for LLMD on Long Island
Lo5182
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Member # 5998

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Hi all,

I'm looking for a LLMD on Long Island. I was treated for Babs from the ages or 13-21 on and off. The two doctors that treated me have retired and another moved out of state. I feel that now at 35, I'm starting to have symptoms again. Fatigue, insomnia, joint pain, depression, light headedness, etc.

Thanks in advance!

Posts: 22 | From Baiting Hollow, New York, USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
TF
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Sorry, I don't know anybody good there. Try contacting the support groups near you. See Support Groups on the left side of the page.

Contact those in other states also.

There is a really good lyme doctor in Connecticut, not far from Bridgeport. Let me know if you want the name. The wait to get in is 1 year, but if they have a cancellation, you can get in much quicker! This has happened for some people.

Posts: 9820 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
jory
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Hi Lo5182, I have a lead on an LLND in Great Neck, about 45 mins from Long Island. Personally I would choose an MD over an ND, and you would probably be better served by the ILADS-trained LLMD’s in NYC, but if you want the info I can pm it to you. I would also go with TF’s suggestion if you can travel!

Jory

Posts: 279 | From Montreal, Canada | Registered: Mar 2017  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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PM sent for CT.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between, so you need to go where they are. I don't know of any on Long Island and at least half of all Lyme patients go out-of-state for care.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 8308 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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