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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Lyme HELP in MA

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Author Topic: Lyme HELP in MA
Stevie
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Member # 50896

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Hello everyone. I've ended up here after exhausting ALL options possible. I'm writing on behalf of my boyfriend, so let me tell you a little about our situation. Diagnosed in June, did multiple rounds of doxycycline, and then did cefuroxime for 28 days (only one dose a day, we do believe it should've been two) and after ending treatment, all the ailments are back. Face numbness, lack of appetite, cloudy brain, extreme arthritis pain, etc. He has had to drop out of school, leave work, and is feeling so down and hopeless we no longer know where to turn. He just recovered from a spinal surgery, and I just recovered from cancer. We have zero money to pay out of pocket for lyme treatment, we're 27 with no family around, and cannot for the life of us find a doctor locally who will accept insurance. PLEASE, please, any help...
Posts: 2 | From Mansfield, MA | Registered: Oct 2017  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet!

I don't know of any who accept insurance. Contact the MA Lyme Support Groups I listed below to ask if they know of someone.

Your boyfriend needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help. They would know better about MA.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

Here is a link found on Lymenet for "Financial Help and Other Information":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=023463;p=0

The Lyme Disease United Coalition has good information for financial resources on their website:

http://www.lduc.org/lyme-disease-resources

Scroll down for financial help, etc., available from several sources.

The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need. I think coverage is up to 75%.
View on www.lymetap.com

"Help For You" link here...

https://sites.google.com/site/marylandlyme/help-for-you

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

Posts: 8308 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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