Hello everyone. I've ended up here after exhausting ALL options possible. I'm writing on behalf of my boyfriend, so let me tell you a little about our situation. Diagnosed in June, did multiple rounds of doxycycline, and then did cefuroxime for 28 days (only one dose a day, we do believe it should've been two) and after ending treatment, all the ailments are back. Face numbness, lack of appetite, cloudy brain, extreme arthritis pain, etc. He has had to drop out of school, leave work, and is feeling so down and hopeless we no longer know where to turn. He just recovered from a spinal surgery, and I just recovered from cancer. We have zero money to pay out of pocket for lyme treatment, we're 27 with no family around, and cannot for the life of us find a doctor locally who will accept insurance. PLEASE, please, any help...
Posts: 2 | From Mansfield, MA | Registered: Oct 2017
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I don't know of any who accept insurance. Contact the MA Lyme Support Groups I listed below to ask if they know of someone.
Your boyfriend needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Scroll down for financial help, etc., available from several sources.
The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need. I think coverage is up to 75%. View on www.lymetap.com
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posts: 8326 | From Illinois | Registered: May 2006
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