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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Help in MA, CT, or even NY! Seeking a Lyme Disease or Chronic Disease Specialist

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Author Topic: Help in MA, CT, or even NY! Seeking a Lyme Disease or Chronic Disease Specialist
Tom845
Junior Member
Member # 51313

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Hi, I am in the greater Boston area. I have had Chronic Lyme and have been going through the ringer for some time now.. 8 years off and its back again. Currently seeing a doctor that has me on a regimen of 4 antibiotics (doxy, rifampin, clarithromycin and nystatin, etc.) along with a several supplments. I am seriously scared for my health and have not been able to see an end to this. The antibiotics have helped a little bit but with elevated liver enzymes high enough to stop treatment for a week or so and restart. I am now considering to stopping treatment and seek new help. They make me feel absolutely horrible .. chest pains, stomach problems and irritability. While being off them, I feel better with the exception of the myalgias, various arthralgias and lack of energy throughout the day. I am willing to seek help at any cost. Can anyone please recommend/refer me to a LLMD or specialist in the Boston Mass or surrounding areas that has helped with this disease in this stage. Looking for someone with knowledge and experience with their recommendation.

--------------------
Tom

Posts: 1 | From CT | Registered: Mar 2018  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
LymeNet Contributor
Member # 49177

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Welcome to Lymenet Tom845

So sorry to hear about your long journey.
TBI'S cause so much sufferring throughout the world.
We are in this together and will help any way we can.

Some of the BEST LLMD's are located on the east coast.
You state money is not an issue so I feel confident that you will find help.

That said, it is up to YOU how you should proceed.
Do you want to stay on antibiotics only ? Add in holistic methods, alternative therapies, stem cells, ozone, bee therapy, hyperbaric oxygen, herbals., treatment centers.. . .
You see, all these can be implemented if you have money.

You can request an LLMD from Global Lyme Alliance here;

https://globallymealliance.org/education-awareness/find-medical-professional/

( There is a place to write a message. Write your lack of progress and desire to find the BEST in innovated treatment.)

I will also private message you.

Good luck and we are rooting for you.
Please check back to us on your progress.
We LOVE Sucess stories !!!! [group hug]

Posts: 974 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
   

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