Welcome to lymenet. You are within a 1 hour driving distance to some of the best LLMD's in the country. Research any LLMD's that are provided and make an appointment ASAP as there is sure to be a waiting list. Ask to be put on their cancellation list as this sometimes can get you a sooner appointment.
Get your finances in order as Lyme disease is expensive (LLMD's don't accept insurances). Start a folder to include all previous testing/blood work, medical procedures/ medical providers seen. This can save you money sometimes.
You can request a LLMD through Global Lyme Alliance here;
You must become your own healthcare advocate. Learn all you can about Tick Borne Diseases. Utilize Lyment's 'search' engine function for any questions you may have or post your question in Lyment's open forum and one of the dedicated members will offer their own experiences. We love to help !
Good luck to you. I will send you a private message.
Posts: 1571 | From Florida | Registered: Nov 2016
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.