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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking Dr - DC/MD/DE/VA/NJ

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Author Topic: Seeking Dr - DC/MD/DE/VA/NJ
TheGreek
Junior Member
Member # 47797

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Some of you have replied to me about doctors near Washington DC area and I thank You, I am now widening the net to Maryland, Delaware, Virginia, and NJ.

Just to sum up my case. 20 years....initially 2 years undetected until facial palsy and + Western Blot...my case was sent to CDC.

I just got off orals for 2 weeks and instantly tested positive for lyme disease triggering a letter from the CDC (on a 20 yr olf infection treated multiple times!)

I have a massive nuerological involvement. Being treated with alinia now; but may end up needing a DR willing to do some major IV cleanup.

I own my own HBOT low pressure chamber, but my brain illness is so severe, a week of treatments leaves me with massive headaches, sweats from the immune response.

I had a SPECT scan from Fallon 15 years ago; the results were severe disruption of..well whatever. Can only imagine what it looks like now!

I've had success in past with IV and HBOT in past but am about 5x worse now than I have EVER been. (We are still hopefull Alinia will part of the puzzle).

(breaking up the post for easier reading for many here)

[ 04-17-2019, 04:03 PM: Message edited by: Robin123 ]

Posts: 5 | From Maryland | Registered: Apr 2016  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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You can request a LLMD through ILADS here;

https://www.ilads.org/patient-care/provider-search/

Sending pm for Maryland, New Jersey, Virginia.

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Robin123
Moderator
Member # 9197

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Hi - best if you repost your medical situation in Medical Questions - people will respond to you there - and when you do, please break up your text so people can read it easier. Thx - hope you find the doctor who can help.
Posts: 12682 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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