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Topic: Needing a doctor: Columbus, Ohio
Member # 51889
04-26-2019 02:38 PM
I'm researching for my adult son who has fibromyalgia but has also been told he likely has chronic lyme as well. Thank you Billie
Posts: | From 1 OH | Registered: Apr 2019
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Frequent Contributor (5K+ posts)
Member # 9256
04-26-2019 05:16 PM
Welcome to Lymenet! PM sent for OH.
Your son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment. Here is a link for them: http://www.lymenet.org/BurrGuide200810.pdf Unfortunately, LLMDs are far and few between. Your son needs to go where they are. At least half of all Lyme patients travel out-of-state for proper care. Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance": http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0 When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this. Check the online state Lyme groups at: https://groups.yahoo.com/neo/groups/OhioLyme/info Maybe they can help. They would know better about OH. Some more resources for you (including Support Groups info): http://whatislyme.com/lyme-in-ohio/ http://www.lymenet.org/SupportGroups/UnitedStates/Ohio/ Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information. Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence" DVDs. Check your local library or buy them used online.
Posts: | From 8466 Illinois | Registered: May 2006
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Member # 44364
04-28-2019 11:47 AM
Sending you a private message.
Posts: | From 545 Ohio | Registered: Aug 2014
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