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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Looking for LLMD infectious illness specialist WA state

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Author Topic: Looking for LLMD infectious illness specialist WA state
Aziza19
Junior Member
Member # 51931

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Hi, and thanks for looking

My primary care physician wants me to check if IV antibiotics can help with neuroburreliosis. Anyone has some leads in the Puget Sound Region or WAshington State?

Thanks so much for your help!

Aziza

--------------------
Aziza

Posts: 1 | From Port Townsend WA | Registered: Jul 2019  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Welcome to Lymenet Aziza19

You need to be evaluated by a LLMD.
Only a licensed medical practitioner gave give medical advice.

You can request a LLMD through ILADS here;

https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;

https://globallymealliance.org/education-awareness/find-medical-professional/

Many LLMD'S don't participate with insurances. Here's why;

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/25539?

You must become your own healthcare advocate. Start researching all you can about vector borne infections. Lyment is a valuable resource website. Utilize the 'search' function for the latest published research.

You can also join your area's Lyme support group. Many Lyme sufferers in your area can give you their first-hand experiences with the LLMD'S in your area. Here's the Seattle/Washington Lyme support group;

https://m.facebook.com/groups/WashingtonStateLymeDiseaseSupport/?ref=br_rs

I will send you a private message. Good luck.

Posts: 1725 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for WA.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

There was a good one in Seattle, but he closed his practice.

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:

https://groups.yahoo.com/neo/groups/WashingtonLyme/info

Maybe they can help. They would know better about WA.

Some more resources (including Support Group info):
http://whatislyme.com/lyme-in-washington/

http://www.lymenet.org/SupportGroups/UnitedStates/Washington/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence" DVDs. Check your local library or buy them used online.

Posts: 8494 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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