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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD in MD near Calvert County

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Author Topic: Seeking LLMD in MD near Calvert County
Tictictock
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Member # 51957

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Seeking LLMD near Calvert County MD. I have been to Johns Hopkins. Have been infected 20+ years, diagnosed 2 years ago. Treated with mountains of doxy, then 30 days of infusions. Doing better but still have significant problems. Thanks in advance.
Posts: 7 | From Port Republic,MD | Registered: Jul 2019  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
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Tictictock

Your post has me confused?

You went to John Hopkins and they treated you with mountains of Doxy and 30 days of infusions?
After you had gone undiagnosised for 20 years?

Sure doesn't sound like John Hopkins.

Due to the high number of complaints from Lyme patients and their families, it is NOT advisable to go to John Hopkins to seek treatment from Tick Borne Infections.

In 2008, then Connecticut Attorney General Richard Blumenthal launched an investigation into the Infectious Diseases Society claiming wide-spread conflicts of interest, including financial interests in drug companies, Lyme testing and patents, insurance companies, ect. A few of the IDSA doctors practice at John Hopkins.

They have actively attacked Lyme patients by denying the existence of chronic Lyme disease.

Would love to hear more of your treatment at their facility.

You can request a LLMD through ILADS here;

https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;

https://globallymealliance.org/education-awareness/find-medical-professional/

Be sure to research all LLMD'S.
Google for patient reviews. Join your area's Lyme support group to find out what Lyme patients in your area are saying about their LLMD'S. Groups;

https://rawlsmd.com/lyme-support

I will send you a private message.

Posts: 1769 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Tictictock
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I self diagnosed. Went to my regular doctor and insisted on a test. Tested positive for both long-standing and new infection. Was referred to infectious disease specialist.
Posts: 7 | From Port Republic,MD | Registered: Jul 2019  |  IP: Logged | Report this post to a Moderator
Tictictock
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I self diagnosed. Went to my regular doctor and insisted on a test. Tested positive for both long-standing and new infection. Was referred to infectious disease specialist.
Posts: 7 | From Port Republic,MD | Registered: Jul 2019  |  IP: Logged | Report this post to a Moderator
Tictictock
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After infusions I felt great for about two weeks. Symptoms began to return. I was then referred to Johns Hopkins where I have only been seen once. Was prescribed minocycline but could not deal with side effect of severe vertigo.
Incidentally, I went to 3 or 4 different doctors in the early and mid 2000’s to try to figure out what was wrong with me. They did various tests (except for Lyme tests) and pronounce me perfectly healthy. I continued to pester them for a time as I was suffering mightily. They finally sent me a letter declaring me a hypochondriac and stating that I should seek psychiatric help. I never went back to a doctor after that for more than 10 years.

Posts: 7 | From Port Republic,MD | Registered: Jul 2019  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Thanks for replying.
I doubt John Hopkins will treat you any further.
You need a Lyme Litterate MD.

I sent you a pm.
To acess your pm go to 'my profile' under the 'Post New Topic' located in the middle of the home page. It will show all in-coming messages. We don't publically print LLMD'S on open forum to protect them from the politics of these diseases.

Posts: 1769 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Tictictock
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I live in MD. I do not have the resources to travel to the west coast to see a doctor. I was hoping that there was someone on your lists in proximity to my home. Otherwise, maybe I’ll go back to Johns Hopkins and see if they can help me.
Posts: 7 | From Port Republic,MD | Registered: Jul 2019  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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I sent you Maryland LLMD'S on 7/29.
Posts: 1769 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Welcome to Lymenet!

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! "It's all in your head!" is a very common "explanation" when they don't know what's wrong with you!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MarylandLyme/info

Maybe they can help. They would know better about MD.

Some more resources for you (including Support Groups info):
http://whatislyme.com/lyme-in-maryland/

www.natcaplyme.org

http://www.lymenet.org/SupportGroups/UnitedStates/Maryland/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy them used on online.

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the "Edit Post" tab, make your changes, then click "Edit Post" at the bottom. Thanks.

Posts: 8529 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
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Here are some posts on Lymenet about Johns Hopkins:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=028407;p=0#000000

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/18159?

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=018150;p=0

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=018159;p=0

Posts: 8529 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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