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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » LLMD NEUROLOGIST Iin MA

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Author Topic: LLMD NEUROLOGIST Iin MA
Debpison
Junior Member
Member # 51964

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Either reinfected or flaring neuro symptoms. Need a LLMD neurologist thanks so much

--------------------
Deb Pettirossi

Posts: 1 | From MA | Registered: Aug 2019  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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Welcome to Lymenet Debpison

You need to be evaluated by a LLMD. Here's why;
http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13239

You can request a LLMD through ILADS here;
https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;
https://globallymealliance.org/education-awareness/find-medical-professional/

There is a message box where you can write you are seeking a Neuro LLMD.

Please be sure to research each LLMD. To do this, you can google for patient reviews or join your area's Lyme support groups. Here's your area's Lyme support groups;
https://rawlsmd.com/lyme-support

I will send you a pm.

Posts: 1830 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
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Welcome to Lymenet!

I don't know of any LL Neurologists in MA.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help. They would know better about MA.

Some more resources for you (including Support Groups info):
http://whatislyme.com/lyme-and-massachusetts/

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy them used on online.

Btw - I know you are new to Lymenet, but you should not use your real name, because this is a public forum with all sorts of people on it. Read this link about it:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=011844;p=0

To remove your name from the signature line, click on "Edit Profile" under Lymenet Flash in the top middle section of the Lymenet page.

Click on "Edit Profile" on the left-hand side, scroll down to "Profile Fields" then down to "Signature". Make your changes, then click "Update Profile".

Posts: 8569 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
tickbite666
LymeNet Contributor
Member # 43399

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There is a very well rated Neurologist at Falkner Hospital that also will see Lyme Patients referred to him by their LLMD. He doesn't treat lyme and co's directly, that's for your LLMD to do, but can help better determine neuro issues and treatment. He specializes in small fiber neuropathy, etc. and has authored many white papers on Lyme related neuro issues.

I made and appointment back in January, and best I could get was a November appointment. I heard last month that he has stopped taking new patients, but maybe that changed or his office can refer you to one of his associates.

Google neurologist at Faulkner Hospital, look up Dr PN. He is well published and not a true real LLMD, but I'll protect his identity anyway.

Posts: 111 | From ground zero | Registered: Mar 2014  |  IP: Logged | Report this post to a Moderator
   

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