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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD in Southern California ASAP.

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Author Topic: Seeking LLMD in Southern California ASAP.
Ingmarino
Junior Member
Member # 51985

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I desperately need an LLMD in Southern California for my 20 yr old son. I live in Orange County but will drive however far necessary!!

I need a doctor willing to accept cash as our insurance doesn’t cover out of network. Paying is not the problem...finding a good LLMD who will accept a patient out of their network is the problem. Please help!!

My son tested positive for Lyme, has serious related neuropsychiatric symptoms beginning 7 months ago , but our Kaiser Permanente insurance will not recognize PANS PANDAS, and is calling the positive result for Lyme a probable false positive!! They won’t treat him unless he tests positive again in 1 month.

My son became debilitated overnight 7 months ago! I need help finding a doctor! He has lost life as he knew it, and his mind, overnight! Never used a single drug or alcohol. He had a great life ahead of him, was strong and healthy but now can’t think or function.

(breaking up the post for easier reading for many here)

[ 08-22-2019, 12:33 AM: Message edited by: Robin123 ]

--------------------
Hope4Help

Posts: 1 | From Cypress, CA | Registered: Aug 2019  |  IP: Logged | Report this post to a Moderator
Robin123
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We will help you! Sending a private message.
Posts: 12765 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Hi!

Welcome to Lymenet! So sorry about your son.

Your son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. Your son needs to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Here is a link for good information (you should also contact them for more):

http://www.childrenslymenetwork.org/

This is a link from that website specifically about PANDAS/PANS:

http://www.moleculeralabs.com/what-is-pans/

http://www.childrenslymenetwork.org/children-pans-pandas/

More about PANS/PANDAS:
https://sites.google.com/site/drjoneskids/panda

Links about teenagers and Lyme Disease:
https://www.lymedisease.org/45/

http://www.livingwithlymedisease.org/teenagers-with-lyme-disease.html

http://www.lymefight.info/lyme-disease-general-information/children-teens-and-lyme-disease/

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/CaliforniaLyme/info

Maybe they can help. They would know better about CA.

Some more resources for you (including Support Groups info):

http://whatislyme.com/lyme-in-california/

http://www.lymenet.org/SupportGroups/UnitedStates/California/

Here is a link for a book titled, "When Your Child Has Lyme Disease: A Parent's Survival Guide" which also might be helpful:

http://www.lymeliteratepress.com/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy them used on online.

Btw - I know you are new to Lymenet, but you should not use your real name if indeed you are, because this is a public forum with all sorts of people on it. Read this link about it:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=011844;p=0

To remove your name from the signature line, click on "Edit Profile" under Lymenet Flash in the top middle section of the Lymenet page.

Click on "Edit Profile" on the left-hand side, scroll down to "Profile Fields" then down to "Signature". Make your changes, then click "Update Profile".

You would have to contact one of the moderators to change your username.

Posts: 8553 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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