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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking good Bartonella LLMD central NJ

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Author Topic: Seeking good Bartonella LLMD central NJ
Peanutbutter
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Member # 51993

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Hi my daughter goes to college in South Orange, NJ. She presented overnight with what I recognize as Bartonella striations on her flanks, hip area. I know good Drs in PA but can anyone help with central eastern NJ.that understand s Bartonella?
I'm scared for her. Thank you. -Mom

Posts: 2 | From PA | Registered: Aug 2019  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Member # 49177

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Peanutbutter Mom

You can request a LLMD through Lyme Disease Association here;

https://lymediseaseassociation.org/doctor-referral/about/about-the-doctor-referral/

You can request a LLMD through ILADS here;

https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;

https://globallymealliance.org/education-awareness/find-medical-professional/

These are easy e-mail formats that you fill out. There is a message box where you can write you are seeking a Bartonella expert.

Make sure to research each and all doctors. To do this, Google for patient reviews. You can also join the Lyme support group that is close to the LLMD's practice.

https://rawlsmd.com/lyme-support

I will send you a private message.

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Peanutbutter
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Member # 51993

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Thank you!
Posts: 2 | From PA | Registered: Aug 2019  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Welcome to Lymenet! PM sent for CT.

Your daughter needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. She needs to go where they are. At least half of all Lyme patients travel out-of-state for proper care.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

Maybe they can help. They would know better about NJ.

Some more resources for you (including Support Groups info):

http://whatislyme.com/lyme-in-new-jersey/

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy them used on online.

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