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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Oregon/Washington Morgellons Lyme Doctor

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Author Topic: Oregon/Washington Morgellons Lyme Doctor
pamcoco
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Member # 52092

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I am seeking a Lyme doctor in northern Oregon or Southern Washington. I would especially appreciate any referral for a doctor experienced in successfully treating Morgellons.

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http://www.infopop.com/

Posts: 1 | From Forest Grove, OR | Registered: Feb 2020  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Welcome to Lymenet pamcoco

You can start by connecting with your area's support groups.
Oregon;
http://whatislyme.com/lyme-in-oregon/
Washington;
http://whatislyme.com/lyme-in-washington/

Here is a great post concerning all things Lyme in Oregon;
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/28526?#000000

Here is a free e-book offered by a doctor who has Morgellens.. She wants it to be a world-wide "viral" book to raise public awareness. It is a most detailed source, please copy so you can refer back to it;
https://www.scribd.com/document/82388506/FiberDisease-Morgellens-by-Nancy-Knilans-ND

You can request a LLMD through ILADS here;
https://www.ilads.org/patient-care/provider-search/

You can request a LLMD through Global Lyme Alliance here;
https://globallymealliance.org/education-awareness/find-medical-professional/

I don't know if you would need a referral as most LLMD'S don't participate with insurances. It is usually all out of pocket due to the Infectious Disease Society Guidelines (IDSA). This explains it further;
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/25539?

Please utilize lymenet's 'search' engine located in the middle of the page. It contains valuable patient experiences that you will find nowhere but here!

Good luck and let us know how your healing journey progresses. We are all in this together. 💚

Posts: 1949 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Welcome to Lymenet! PM sent for WA (also DC & CA).

I don't know of any LLMDs in OR or any doctors in WA or OR who treat Morgellons.

Read the book "Morgellons: The Legitimization of a Disease" written by Dr. S., one of the top Lyme-literate health practitioners.

This was written by a well-seasoned Lymenet poster who knows about Oregon:

"There are no LLMDs in Oregon - the Oregon Medical Board is harshly against the idea of "chronic lyme" & even untreated or undertreated or ineffectively addressed Lyme. They often punish doctors who treat, important to know.

They also want to ignore other tick-borne infections.

Be careful when in typical doctors' offices about mentioning Lyme - it's sad to say but there is the risk of being written off as a loon and then discounted. There may be a few "safe" places but just be careful until you know more about their stance.

However, there are several excellent LL NDs in Oregon, and in Portland, too. ND are naturopathic doctors. NDs can prescribe Rx in Oregon. A few NDs are covered by some insurance, too, though for a restricted set of things. And an ND can also be one's PCP."

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Contact the OR and WA Lyme Support Groups. They would know better abut OR and WA:

http://whatislyme.com/lyme-in-oregon/

http://whatislyme.com/lyme-in-washington/

http://www.lymenet.org/SupportGroups/UnitedStates/Washington/

http://www.oregonlyme.com/supportgroupsinoregon.html

Search for local/state Lyme FACEBOOK groups, too.

Where ever you see any location or set date for any meeting, CONFIRM FIRST with a leader that such detail is still valid. Support Groups can change location / times.

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?" They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used online.

View "Under Our Skin"
https://m.youtube.com/watch?v=2JgR_Jfbhv8&noapp=1&client=mv-google

and "Under Our Skin2: Emergence"
https://drive.google.com/open?id=1iAzRksyHfSNWBGsHcugYl9a8WQ9TnDCW

Posts: 8627 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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