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» LymeNet Flash » Questions and Discussion » General Support » MS and Lyme

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Author Topic: MS and Lyme
HorseHelper
LymeNet Contributor
Member # 30255

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Is it possible, in your opinion, to be diagnosed with MS along with Lyme or after Lyme has been removed/healed after abx? I heard Lyme always continues to live with you.

Thx.
Horsehelper

--------------------
I'm glad to know I'm not alone
Some peace of mind I somehow find
Through folks like you with Lyme!

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
It's scary but true that, at this point in time there is no official cure for borrelia b. - however, there are many who have achieved steady and strong remissions.

Of those in remission or even who consider themselves "cured" most keep up excellent health habits and, if any symptoms pop back, attend to those quickly so as to never go back to where they were. Many remain on supplements for quite some time to ensure continued success.

I would listen ONLY to an ILADS-educated lyme literate doctor

OR one trained in Chlamdyia Pneumonia as with site below -

regarding whether MS is/was a misdiagnosis or if, after lyme and other tick-borne or other chronic stealth infections have been thoroughly addressed, the symptoms of MS (or lyme damage by any other name) applies in this case.

Mycoplasma strains can also cause what appears to be MS.

======================================

http://www.ilads.org/search/search.php?zoom_query=MS&x=0&y=0

CONTROVERSIES IN NEUROBORRELIOSIS - by Audrey Stein Goldings, M.D.

Updated October, 2002 - Two page article

Excerpt:


The objectives of this article are to cover issues related to Lyme disease that are not even-handedly addressed in the current literature. It will:

1. Present a practical approach for making the diagnosis of neuroborreliosis,

2. Explore the other side of the post-Lyme syndrome (i.e. the likelihood of chronic ongoing infection),

3. Discuss the relationship between MS and Lyme . . . .

===========================

Chlamydia pneumonia (Cpn) can also cause a misdiagnosis of MS. Treatment for Cpn has seen many a formerly diagnosed "MS" patient drop that diagnosis and move on.

It's absolutely vital to study this site:

www.cpnhelp.org

Cpn Help


http://www.cpnhelp.org/wheldon

Wheldon protocol (has helped many with "MS")

===============================

http://www.rain-tree.com/myco.htm

Mycoplasmas - Stealth Pathogens

-By Leslie Taylor, ND - January, 2001

--------------

http://betterhealthguy.com/joomla/151mycoplasma

Garth Nicolson - Mycoplasma - Often Overlooked in Chronic Lyme Disease

Public Health Alert / July 2009

--------------

http://www.immed.org/illness/Neurodegenerative%20Diseases.html

Neurodegenerative and Neurobehavioral Diseases

- by Garth Nicolson, Ph.D.

======================================

Not just to help diagnose, this article helps the lyme patient to better understand the scope of lyme in their daily life:
-------------------------

http://cassia.org/essay.htm

When To Suspect Lyme Disease - by John D. Bleiweiss, M.D.
-

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
Thanks to HALEY for bringing this to our attention.

MYELIN SHEATH & MITOCHONDRIA SUPPORT discussed here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/113095?#000002

Topic: Interesting link - doc with MS gets cured with diet


http://www.youtube.com/watch?v=KLjgBLwH3Wc&feature=share

VIDEO, 17 minutes. TED Talk in Iowa City - Terry L. Wahls, M.D


http://www.amazon.com/Minding-Mitochondria-2nd-progressive-wheelchair/dp/0982175086/ref=sr_1_1?ie=UTF8&qid=1322805441&sr=8-1


Minding My Mitochondria 2nd Edition: How I overcame secondary progressive multiple sclerosis (MS) and got out of my wheelchair.


Terry L. Wahls, M.D. $38.00 & this item ships for FREE with Super Saver Shipping.

Publication Date: April 1, 2010

You can look inside this book and read 23 reader reviews, each 5 stars.

Author's web BLOG for 2008-2010:

http://terrywahls.blogspot.com/


http://www.terrywahls.com/

Terry Wahls, M.D. official website

========================================

- Carol in PA adds:

That article has a link to an article about repairing mitochondrial function with NT Factor. This helps fatigue.

http://www.prohealth.com/library/showArticle.cfm?libid=15150

Repair Damaged Mitochondria and Reduce Fatigue Up to 45%

- by Karen Lee Richards, August 6, 2010

========================================

http://icmr.nic.in/ijmr/2006/august/0804.pdf

THE REQUIREMENTS OF PROTEIN & AMINO ACID DURING ACUTE & CHRONIC INFECTIONS

Indian J Med Res 124, August 2006, pp 129-148

- by Anura V. Kurpad

Fifteen pages of text.

Excerpt from abstract on page one:

. . . In general, the amount of extra protein that would appear to be needed is of the order of 20-25 per cent of the recommended intake, for most infections. . . .

[note: see what author states about lysine supplementation appearing to help immune function.]
-

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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There are also other things to consider, including CELIAC than may be the underlying diagnosis for some who have been misdiagnosed with MS.

Celiac can certainly cause neurological damage.

You will find many links from a search at Google of: Celiac, MS

------------------

http://www.ncbi.nlm.nih.gov/pubmed?term=celiac%2C%20MS

PubMed search of medical literature:

Celiac, MS - 53 abstracts

--------------------

You can certainly be assessed for celiac and gluten sensitivity (two different things). But know that celiac can be triggered by various infections.

More here:

www.celiac.com

www.celiacsolutions.com

Also search Google for: HIDDEN SOURCES OF GLUTEN

and compare the lists from all sites

=================================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA's Thread:

OTHER tests to consider (such as Mycoplasma, Cpn, HHV-6, etc.)
-

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
"Excitotoxins" can cause what may appear to be MS and other neurological conditions.

You probably are clear of additives but, just to be sure:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=029690;p=0

Excitotoxins; MSG; Aspartame; & "Natural" Flavors

---------------

http://www.huffingtonpost.com/2012/02/09/ramen-digestion_n_1263825.html?ref=mostpopular

June, 2011, Sept. 2011

Stephanie Bardin

2011 TEDxManhattan

What Happens In Your Body When You Eat Ramen And Gatorade
-

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
And MOLD can also cause severe neurological problems.

How do you do with scents? If you have any degree of chemical or mold sensitivity, I will post some excellent links in that area.

In the meantime, here's a start:

http://lisanagy.com/
-

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Lymetoo
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Member # 743

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I have some links on MS and Lyme, but cannot access them right now.

Welcome back, horsehelper! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
Adding some links here for anyone else who may be exploring the actual roots of "MS" symptoms and looking for a good LLMD for assessment:

------------------------------------------

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

(What ILADS is) . . . WHY you need an ILADS-educated, Lyme Literate Doctor - starting with assessment / evaluation.

=======================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

Diagnosing Lyme Disease (&/or whatever else is going on)

=======================

Detail about a new Borrelia Culture Test here:

http://betterhealthguy.com/joomla/lyme-disease/testing

Testing options - See #15


http://www.betterhealthguy.com/joomla/blog/256-advanced-lab-borrelia-culture-a-game-changer
Advanced Lab Borrelia Culture: A Game Changer


Specifics on the new test:

http://betterhealthguy.com/joomla/blog/248-new-borrelia-culture-test-available

and

http://www.researchednutritionals.com/information.cfm?ID=255
-

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
Excitotoxic reactions?

Caution with these Amino Acids: Aspartate; Glutamine; and Phenylalanine
-----------------------------

This information is especially for those with the diagnosis of any neurological condition, or with any degree of:

toxicity, exhaustion, anxiety, irritability, agitation, panic attacks, tremors, startles, or seizures:

it is best to avoid these three particular amino acids (other than in normal doses from food or maybe in a balanced formula with other amino acids & other nutrients, but not above the average daily dose.

Even at that, some people need to avoid excess foods that contain one or both of those as they can be too stimulating for the brain when it's already overstimulated from neuro-toxicity issues.

=========================================

http://www.itmonline.org/arts/glutamine.htm

AMINO ACID SUPPLEMENTS I: GLUTAMINE

with Reference to the Related Compound Glutamate
by Subhuti Dharmananda, Ph.D.

[Just beyond half-way down, see the section:]

Excerpts:

. . . GLUTAMATE IN NEUROLOGICAL DISEASES . . .

. . . In some neurological diseases, it is found that glutamate levels in the central nervous system become unusually high at sites of pathology.

This can occur, for example, if the rate of degradation of glutamate is slowed by an impairment of the enzymes that are involved.

Also, glutamate is excreted by immune cells that take part in inflammatory processes; the result is high local concentrations at the neurons in progressive neurological diseases such as MS and ALS. . . .

. . . The excess glutamate at the neuron acts as a poison; at high enough levels, the nerves exposed to glutamate can be completely and permanently damaged, so that they are no longer capable of transmitting signals.

Thus, while glutamate is a major component of the body, and an essential part of the nervous system, high levels localized in the nerve cells can be quite toxic . . . .

. . . Laboratory research has revealed that in the progressive, debilitating disease ALS, one of the many processes involved in disease progression appears to be damage of nerve cells by accumulation of glutamate.

In relation to multiple sclerosis, changes in control of glutamate homeostasis in the central nervous system might contribute to demyelination of the white matter of the brain (19).

[poster's interjection: lyme also causes demyelination, what that is:

http://en.wikipedia.org/wiki/Demyelinating_disease ] - article continues:

Based on preliminary animal studies, it has been suggested that glutamate dumped by immune cells can exacerbate the nerve damage (20). . . .

. . . The role of glutamate in neurological disorders has raised the question as to whether persons with such neurological diseases might have to be careful

not to get high levels of either glutamine or glutamate via their diet and/or by taking glutamine supplements. . . .

. . . - full article at link above.

==================================================

http://www.drlwilson.com/articles/epilepsy.htm

EPILEPSY AND SEIZURES - by Lawrence Wilson, MD

Excerpt:

[section] DIETARY ASPECTS OF EPILEPSY

Food reactions can trigger epileptic seizures. The main culprits are the following foods that are rich in glutamate and aspartate, two very excitatory amino acids:

------ See list at link above -------

. . . and the entire article as it may not seem like it by the title as not all lyme patients experience seizures.

However, the content relates very much so to the neuro-excitatory problems seen so very often in lyme disease & heavy metal toxicity.

======================================

Terry Wahls, MD also discusses problem of excess glutamate / glutamic acid in those with MS or other diseases that are caused by or contribute to neuro-excitatory problems.

MYELIN SHEATH & MITOCHONDRIA SUPPORT discussed here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/113095?#000002

=====================================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=029690;p=0

Excitotoxins; MSG; Aspartame; & "Natural" Flavors
-

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ESG
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glad I found this .... thanks
Posts: 424 | From Connecticut, USA | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
ESG
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Member # 4816

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can this get cross-posted over into Medical Questions?
Posts: 424 | From Connecticut, USA | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
   

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