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» LymeNet Flash » Questions and Discussion » General Support » Ice Bucket Challenge for ALS

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Author Topic: Ice Bucket Challenge for ALS
linky123
Frequent Contributor (1K+ posts)
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Is this lyme? Wish he could be looked at by a llmd.

http://bostinno.streetwise.co/2014/08/18/pete-frates-icebucketchallenge-awareness-for-als-espn-sportscenter-video/

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'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28

Posts: 2607 | From Hooterville | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I thought the same thing.

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--Lymetutu--
Opinions, not medical advice!

Posts: 94170 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Dekrator48
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I posted this link to Pete Frates fb page...of Dr David Martz speaking about how he was diagnosed with ALS, had negative lyme tests, but eventually recovered with help from a Phila Dr who prescribed multiple long term antibiotics and found Lyme via PCR.

It may not be his personal page, but hopefully it helps get the word out.

https://www.youtube.com/watch?v=UY9FdULDV6M

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The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
steve1906
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Dekrator48, Great idea, that's always an eye opener!

Steve

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Everything I say is just my opinion!

Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Good job! Thanks for the link!

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--Lymetutu--
Opinions, not medical advice!

Posts: 94170 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
droid1226
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I wrote a comment on the ESPN article about how many ALS patients I've noticed from New England and how it's also has the highest incidence of tickborne illnesses. It got 21 thumbs up. More than any other comment. People know somethings up.

One guy replied with a valid point. He said I was boring people with genetic and predisposition points. Which I probably was but 21 people agreed and read my little essay. Once you damage that myelin sheathe or the spinal cord, whether it be football or infection. It can be called whatever it wants. If it continues to degenerate, it's ALS, possibly getting worse from lyme. If it's damaged, it's MS. Mostly.

People know this, or are catching on

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Marnie
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No. Different pathogen and underlying genetic predisposition.

BUT...

Google these words:

MitoQ ALS

I PROMISE it will blow you away!

ANOTHER (of many) diseases/underlying genetic problems -> "mitochondrial dysfunction".

They also need to look at a *very* unique component in "pot". Isolate it. *Beyond* these:

CBD and THC .

Okay, I'll give you a clue:

http://www.truthonpot.com/2013/08/10/is-cannabigerol-cbg-the-ultimate-cannabinoid/

Posts: 9399 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I've been posting ALS/Lyme links on ice bucket challenge videos that I "share" on FB.

Spreading the word.

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--Lymetutu--
Opinions, not medical advice!

Posts: 94170 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
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This is the best video, most honest, heartfelt and spirit enriching that I've seen in a very long time. This young man is simply amazing as is his mother (and likely his grandmother was, too).

Please watch it all the way to the end. It's well worth the time and attention. Scroll down a bit to click onto the cute guy in the funny bikini. (No, it's not like that!)

http://www.upworthy.com/the-last-ice-bucket-challenge-you-need-to-see-and-you-really-should-see-it?c=hpstream

From Upworthy website - The Last Ice Bucket Challenge You Need To See and You Really Should See It

Video 6:51 Anthony Carbajal
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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