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» LymeNet Flash » Questions and Discussion » General Support » Poughkeepsie Journal: Review of Lyme disease treatment leaves out patients

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Author Topic: Poughkeepsie Journal: Review of Lyme disease treatment leaves out patients
KarlaL
LymeNet Contributor
Member # 29631

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Investigative report by Mary Beth Pfeiffer of the Poughkeepsie Journal on the lack of balance, conflicts of interest, and the lack of patient representation on the IDSA Guidelines Review Panel. Please like, comment, and share this article, as we need to bring national attention to this issue.

KarlaL

VIDEO: Review of Lyme disease treatment leaves out patients

For the video and complete article, go to:
http://www.poughkeepsiejournal.com/story/news/local/2015/05/30/lyme-disease-panel-charged-biased/28218615/

Mary Beth Pfeiffer
Poughkeepsie Journal
9:54 p.m. EDT May 30, 2015

She comes from a state with fewer than 10 Lyme disease cases a year. She has not been involved in Lyme disease causes, but rather in funding cancer research.

Yet she has been named "consumer representative" on a panel that will rewrite treatment guidelines for a tick-borne illness with 20,000 reported cases in the mid-Hudson Valley from 2007 to 2013 — and 300,000 nationwide annually. This while federal standards say the panel should include not one but two people to represent the public: "a current or former patient and a patient advocate."

As it stands now, it has neither. . . .

For the video and complete article, go to:
http://www.poughkeepsiejournal.com/story/news/local/2015/05/30/lyme-disease-panel-charged-biased/28218615/

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KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
Abxnomore
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Excellent article. Thanks for posting it.
Posts: 5186 | From Lyme Zone | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Ann-Ohio
LymeNet Contributor
Member # 44364

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She is just a brilliant writer. Be sure to check out some of the other links in the article and on the page.

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Ann-OH

Posts: 786 | From Ohio | Registered: Aug 2014  |  IP: Logged | Report this post to a Moderator
   

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