LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter



Tax deductible

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.
In the United States, your donations are tax deductible.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Alzheimers, Kristopherson, Lyme

 - UBBFriend: Email this page to someone!    
Author Topic: Alzheimers, Kristopherson, Lyme
TrekCoord
LymeNet Contributor
Member # 48888

Icon 1 posted      Profile for TrekCoord     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've been seeing quite a few posts on Facebook about this Alzheimer research group or that clinical trial for prevention of Alzheimer's

I have been posting on almost every one that Lyme Disease should be tested for and then putting in a link or two about Kristopherson's misdiagnosis of Alzheimer's which was actually Lyme Disease.

Don't know if it will do much good, but perhaps someone will actually do some research.

--------------------
I still have a good time wherever I go!

Posts: 137 | From Lost Wages | Registered: Oct 2016  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler         Edit/Delete Post   Reply With Quote 
-
Thank you for doing that. What you are doing really matters. For anyone with energy and access to which ever reply options there are, please continue. The ILADS.org and LymeDisease.org links are also very important - or at least the names of these key groups to find the right detail.

Too many think the CDC will have what they need and just stop there.

As to "someone doing research" Alan MacDonald's work is stunning in this connection.

Oh, I see now you were talking about readers / individuals doing their own personal research to find the real information. The best source to date:

https://alzheimerborreliosis.net/

Alzheimer Borreliosis

Welcome to the website of Alan B. MacDonald.

I am hospital pathologist by trade and my world is microscopic images. . . .
-

Posts: 47584 | From Tranquil Tree House in my dreams | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler         Edit/Delete Post   Reply With Quote 
-
I don't post in other places, have zero social media access to do so. So, for others who do, if it is workable, I hope these links will help. Sometimes, though, just the name of the organization can be posted in the reply sections as links won't go through. That's still vital, though.

Sometimes, with the www. omitted, the main part of the address with the .org (or whichever it is) might post. That might speed the reader along if they know that much.


Some top informational sources to consider including in any postings:


http://www.ilads.org

ILADS - International Lyme & Associated Diseases Society

http://www.ilads.org/education/physician-training.php

ILADS Physician Training Program


https://www.lymedisease.org/

Lyme Disease.org - a top patient education organization


http://www.lymediseaseassociation.org

Lyme Disease ASSOCIATION


https://globallymealliance.org/

Global Lyme Alliance
-

Posts: 47584 | From Tranquil Tree House in my dreams | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
SOMEONE will pay attention, Trek! Even if you save one person, it's worth it..

--------------------
 -
oops!
--Lymetutu--
Opinions, not medical advice!

Posts: 93615 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tom Grier is on facebook now and posts regularly about research. His own and others

I know two top notch llmd s who post also.

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13686 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
BugBarb
LymeNet Contributor
Member # 210

Icon 1 posted      Profile for BugBarb     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was on Namenda, an alzheimer's drug, for the cognitive problems I had when my lyme was the worst. Fast forward a few years and I had to get a new neurologist. She didn't think I needed the namenda anymore so she gave me a standardized memory test. I passed, so no more namenda. I am a lot better than when I started on it. My memory isn't 100%, but it's around 90% which is pretty good.
Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

Icon 1 posted      Profile for Bartenderbonnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
UPDATE;

Kris Kristopherson is doing GREAT !

https://tinyurl.com/yyr9fd4c

Posts: 1642 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
aklnwlf
Frequent Contributor (1K+ posts)
Member # 5960

Icon 6 posted      Profile for aklnwlf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Great job TrekC! My sister read a book by the fiction author Amy Tan who mentioned in her forward the struggles she had with Lyme disease.

I had a lot of Neuro symptoms similar to hers, and that's how I FINALLY got started on the right path to diagnosis and treatment.

[woohoo]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 4382 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
That's awesome, Bonnie!

AK.. I have one of her books. I still haven't read it. [Frown]

--------------------
 -
oops!
--Lymetutu--
Opinions, not medical advice!

Posts: 93615 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2019 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


Home | Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Webmaster