randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my bp has gone up again. 187/118...it's been up all day. took my clonidine. it's now 123/89. my dr wants to put me on lexapro cause he says its anxiety causing all this.
here's the problem. I have an endoscopy AND colonscopy together scheduled for wednesday. the test will take about 3 hours and I will be sedated.
I am scared to have tests, afraid i'll panic and blood pressure will go through the roof and me going to er. right now it's unstable and I could end up in hosital anyway.
I have an appt with cardiologist on thursday
should I cancel, and make the gastro office mad, until this bp issue resolves, or try to have it done and pray my bp holds.
also the colon prep is a nightmare and I'm not looking forward to it. last time I tried it I vomited it all up and they had to reschedule.
I could call gastros office first thing tomorrow and ask what to do I guess.
as usual, hes out of town. it's always worse when you are alone.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
jus got off phone. he said there was no way to do any procedure. said go to cardiologist and get this straightened out. until then monitor and if it hits 200 then get to er asap.
he said it sounds like thete is something causing this and they jus haven't found it. he said I probably need an extensive physical and bloodwork.
oh god.....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Find a doctor who understands this. It often goes with lyme / TBD so it would be great if you could find a true LLMD to suggest such a cardiologist yet, even if one is not somewhat lyme aware, I strongly suggest finding a doctor through this group:
Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System.
The Autonomic Nervous System controls the "automatic" functions of the body that we do not consciously think about, such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control.
People living with various forms of dysautonomia have trouble regulating these systems, which can result in lightheadedness, fainting, unstable blood pressure, abnormal heart rates, malnutrition, . . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Chronic Fatigue Clinic & Johns Hopkins Children’s Center
27-page pdf - March 2014
Dr. Peter Rowe, noted John Hopkins pediatric cardiologist and dysautonomia researcher, provides a patient friendly summary of
Orthostatic Intolerance, Postural Orthostatic Tachycardia Syndrome and Neurally Mediated Hypotension.
Thia summary includes an excellent description of non-pharmacological measures and drugs commonly used to treat these conditions and the common side effects.
Dr. Rowe also offers suggestions for a high salt diet. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Keebler, really go info you posted there. I know someone fighting this and it's someone I suspect has Lyme. Go figure.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
hmmm, I have malignant hypertension not low. I have headache, tinnitus, muscle cramps, vision problems, gastro problems, you name it.
it doesn't quite seem to fit.
I have an appt on thursday for blood work, then may 8 with the cardio.
can you request the types of n lood work to have? I haven't had cholesterol, thyroid, sugar, etc, done in many years. dr saw no need but, boy, I sure do. least he can say is no. don't understand why patients can't suggest tests if they feel the need.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
randi, I can't believe the docs aren't testing this on you yearly.
I seem to recall another post of yours that sent warning bells and I responded about make you should have thyroid levels checked.
Please be specific with doc on getting these thyroid test done. This is just a basic start.
TSH Free T4 Free T3 Thyroid antibodies
My goodness you have blood pressure issues and they are not following your cholesterol levels? Sugar levels?
I hope you find some answers.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
nope swear. they jus say exercise and loose weight...and drink more water...
and....mom was diabetic
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- And that is why I strongly suggest getting off that particular doctor treadmill and find a doctor who knows far more about the things that could be going on.
You won't find what you need by going back to the same doctors. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
You could run on the treadmill till the cows come home. (Texas line there)
If your thyroid hormones are screwed (typical MD tx), you will never lose weight or feel better.
Please write down the suggestions from here and give a boatload of blood.
You have suffered with this for long enough.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Many of the issues that you have (including high blood pressure) are symptoms of low magnesium. Do you take magnesium supplements? If you have blood work done, be sure to ask for a red blood cell magnesium test.
Posts: 227 | From Northeast | Registered: Mar 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- So glad to see LymeGoAway's post and important reminder about magnesium.
quote:Originally posted by LymeGoAway: If you have blood work done, be sure to ask for a red blood cell magnesium test.
- My doctor finally used this test to check my levels last month. I was asking him about this test 5 years ago.
Keep after them, randi .. and/or find a new doctor.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
cardios office took blood this morning. he was amazed I have not been having complete bloodwork every year.
he is having what he called complete cbc panel, all lipids whatever that is, mineral, sugar, thyroid, choles, and something he referred to as any infectious agent. huh???
I asked what those were and he smiled and said, basically everything under the sun.
so it's a start.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
randi, I'm still looking to see if you had all the bloodwork done on thyroid?
Many folks with Lyme & co have developed (or did they have it prior and it set them up for Lyme) Thyroid disease.
I'd really be interested to see your thyroid levels on all the recommended tests from above posts.
I know it's gets tiring. But it's your health and well being.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
more results
3rd gen tsh 1.95 protein 6.6 albumin 3.4 bilirubin .05 bilirubin direct .01 alkaline 86 sgot 24 sgpt 20
means nothing to me.
he did take me off labetalol when I complained about severe head itching and overall widespread body burning. said jus to stop it.
however it was very effective in lowering my bp. rats...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Means nothing because the doctor ordered a nothing test of TSH.
OMG, sad state of doctoring in this country is unbelievable.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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[ 05-16-2018, 12:49 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Regarding your concern with glucose issues, learn all you can about INSULIN RESISTANCE. And about INFLAMMATION.
MDs are not about to help you learn what's needed and most of them don't even consider the complexities.. NDs are the far better teachers in this regard and they also can lead you to real avenues that can lead to feeling better.
They also know about dozens of specific foods and unique herbs that can help. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The Video is very enjoyable to watch. Please watch. Very engaging and uplifting, indeed. Note, she is a DO and they tend to go the extra mile for patients that many MDs dismiss.
Oh, and if one might not be diagnosed with diabetes, I'd also read this as "prevent" as well for those who are experiencing problems with metabolic syndrome / insulin resistance.
Reversing Type 2 diabetes starts with ignoring the guidelines
18:11 VIDEO
TEDx Talks - Published on May 4, 2015
Can a person be "cured" of Type 2 Diabetes?
Dr. Sarah Hallberg provides compelling evidence that it can, and the solution is simpler than you might think.
Dr. Sarah Hallberg is the Medical Director of the Medically Supervised Weight Loss Program at IU Health Arnett, a program she created. She is board certified in both obesity medicine and internal medicine and has a Master’s Degree in Exercise Physiology.
She has recently created what is only the second non-surgical weight loss rotation in the country for medical students.
Her program has consistently exceeded national benchmarks for weight loss, and has been highly successful in reversing diabetes and other metabolic diseases.
Interview with Dr. Sarah Hallberg, DO - Jan. 1, 2018
Excerpt:
. . . The advice wasn’t working
She worked as a primary care physician for eight years. It was in the daily treatment of patients with diabetes, obesity and chronic disease that she began to feel that something was not right in the way doctors had been trained to handle these conditions.
The advice and prescriptions she was doling out to patients did not make them better. “It is so demoralizing to see patients coming back worse and worse.”
Some doctors blame the patient for not being compliant, but not Sarah. She knew they were following her advice. “I had the first hint of it as an exercise physiologist. I had worked counselling obese patients.
I realized at that time some of these patients were exercising all the time, seemingly doing everything right, and still they were struggling with weight.” . . . . [Full interview at link above]
30-minute VIDEO presentation in Australia - Apr 7, 2016
She stresses that her work is not so much about weight loss (that's secondary) as it is really all about METABOLIC HEALTH. -
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