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» LymeNet Flash » Questions and Discussion » General Support » ACTION ALERT- ALMOST 17,000 Signed On!!!

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Author Topic: ACTION ALERT- ALMOST 17,000 Signed On!!!
Tincup
Honored Contributor (10K+ posts)
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Please check in here on Monday, May 20, 2019 to read and respond to an important Action Alert!

Hoping that you will also share it with your family, friends and groups too!

If they don't have Lyme now, bless their hearts, they will still want to take action to protect themselves in the future if they do get it.

Thank you for your efforts!

[ 05-29-2019, 03:16 AM: Message edited by: Tincup ]

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Tincup
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TIME SENSITIVE

Say NO to SHAPIRO!

Please sign the petition, then spread far and wide and encourage others to do so.

Thank you!

Link To Petition & Information

https://www.change.org/p/tick-borne-disease-working-group-remove-eugene-shapiro-from-federal-tbd-working-group-135a8441-163f-4277-8f22-523e92b9ecf2?recruiter=73619306&utm_source=sh are_petition&utm_medium=copylink&utm_campaign=share_petition&utm_term=triggered

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Robin123
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Good - signing numbers are going up even as I look at the petition! Keep passing this around to your various Lyme groups!
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Ann-Ohio
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Done and done! (meaning signed and passed on)

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Ann-OH

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Robin123
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Extraordinary response - 100s signing every several minutes!! So if you haven't yet, please do so, and pass it on!
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Tincup
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Kicking butt we are! Keep up the good work! Don’t stop now!!!

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www.MarylandLyme.org
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TX Lyme Mom
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I tried to sign it, but it showed up under my husband's name instead -- and he had already signed it!

Stupid website. Just because my husband has a presence on FB, his name is the only one that this crazy stupid website recognizes.

It didn't let me sign the petition -- or perhaps I was just too stupid to figure out how to do it, without creating a public personal on FB -- which I do NOT want to do. I value my privacy too much ever to do that.

Oh well, at least I did try!

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Tincup
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Thanks for trying!!!

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Tincup
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So Close To 10,000! Less than 400 to go!

Can you help get more people informed and signed on?

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Tincup
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Up....

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Tincup
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WOW!

In less than 3 days approximately 10,000 people have signed the petition objecting to Eugene Shapiro being on the federal Tick Borne Disease Working Group!

Thank you for saying NO to Shapiro!

It's amazing what we can do when we work together!

If you haven't signed on or shared this link, please do!

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Robin123
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Wed morn, 3:22 am PST/6:22 am here - 10,000 sigs!!! [woohoo]
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Ann-Ohio
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10,500 ! at noon EDT.

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Ann-OH

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TX Lyme Mom
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11,241 at 8:30 pm CT
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jblral
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11,498 at 9 pm Pacific Time.
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Robin123
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Almost halfway to 15K!! (from 10K) - 1pm PST.
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Robin123
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Getting close...14.5K
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Ann-Ohio
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Over 15,000! Going for 25,000.

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Ann-OH

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aklnwlf
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Done!

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Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

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Ann-Ohio
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FYI:
Here is where the petition will be delivered, thanks to Dorothy Leland and to all who sign it!

Still time - go to http://chng.it/9kN9LFqy6J

The petition will be sent to:

Tick-Borne Disease Working Group
US Department of Health and Human Services

James J Berger
US Department of Health and Human Services

Alex Azar
Secretary, Dept of Health and Human Services

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Ann-OH

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duncan
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I hope someone is sending it to all the major appropriate press outlets, so it doesn't just get filed away...
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Robin123
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Good idea, Duncan - if you want, you could PM jblral about it.
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Tincup
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Yes! The petitions are going to the places they need to go!!!

They are also followed up with letters and other info from LDA and LDO and some of the patient advocates. We are always working behind the scenes.

I just sent this related document in to be used as public testimony. It is published (will be in a few days) on the government site and be sent to all members of the TBDWG in advance of the June 4, 2019 meeting.

It includes most of the Lyme monsters and gives reasons why they shouldn't be on the working group.

https://sites.google.com/site/lymelegislation/testimony-for-june-4-2019-meeting?fbclid=IwAR0u2v2-EHwC44b0HqOu-5InBvxQJR_EG0Ja4VaHm2tXH2bfuUF75VHi7go

Let's try to get 25,000 signatures!!!

[Big Grin]

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www.MarylandLyme.org
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Tincup
Honored Contributor (10K+ posts)
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And thanks to those who signed on and who shared the petition.

Thanks very much!

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TX Lyme Mom
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Does anyone know if this meeting can be viewed "live" on-line?

I'd love to be able to watch it live, if that's possible.

I'd also like to re-post the info for our TxLyme Yahoo group in case any of our members want to watch it.

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Tincup
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Yes, it can be seen online, or you can go in person.

(Last paragraph is what you need to read below to watch online.)

June 4, 2019, TBDWG Meeting (in-person)

The ninth meeting of the Tick-borne Disease Working Group (TBDWG) will be held at the Holiday Inn Washington-Capitol, 550 C Street SW, Washington, DC 20024, from 8:30 a.m. to 5:00 p.m. Eastern Time.

The TBDWG members will focus on plans to develop the next report to the HHS Secretary and Congress on federal tick-borne activities and research, taking into consideration the 2018 report.

Registration: In-person attendance at the meeting is limited to space available.

On the day of the meetings, seating will be provided first to persons who have preregistered exit disclaimer icon.

People who have not preregistered will be accommodated on a first come, first served basis if additional seats are still available 10 minutes before the meeting starts.

Members of the public may also attend the meeting via webcast. Instructions for attending via webcast will be posted one week prior to the meeting.

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My note- sometimes they don’t have it ready on time so keep checking the link below for how to watch online.

More information here.

https://www.hhs.gov/ash/advisory-committees/tickbornedisease/meetings/2019-6-4/index.html

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