LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter

Tax deductible

The Lyme Disease Network receives a commission from for each purchase originating from this site.

When purchasing from, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.
In the United States, your donations are tax deductible.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Is insomnia a death sentence to your treatment?

 - UBBFriend: Email this page to someone!    
Author Topic: Is insomnia a death sentence to your treatment?
Mike Fisher
Member # 51581

Icon 1 posted      Profile for Mike Fisher   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just developed insomnia. after a full year of having lyme, this would have to happen NOW! Just when I had a few days of feeling near perfect, and now I have severe insomnia,where I don't sleep at all, and I am beginning to feel like I am incapable of falling asleep.

I am so afraid that my condition is going to start rapidly declining and I will begin to experience the total bodily annihilation that I hear so many talk about.

If this keeps up, I expect to be blind, crippled, and experiencing full body arthritis and flu. I will probably also have insomnia for the rest of my life, as every symptom of this disease seems to last FOREVER!

Can we all just admit that this is the worst disease in existence? Seriously, this disease is the apocalypse!

(breaking up the post for easier reading for many)

[ 06-05-2019, 03:28 PM: Message edited by: Robin123 ]

Posts: 20 | From Pittsburgh PA. | Registered: Jul 2018  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 44364

Icon 1 posted      Profile for Ann-Ohio     Send New Private Message       Edit/Delete Post   Reply With Quote 
I really understand your pain ,frustration, and fears. I went through a lot of periods of suffering a whole list of symptoms all at the same time. Insomnia was one of them.

Please get help from your doctor. There are lots of meds and practices to overcome insomnia that should work for you. I hope you find what you need.

Meantime, some deep breathing, hot tea, quiet music, etc. might lead to a nap. I hope so.

I am sure others here will have some good ideas.
Let us know how you are doing.


Posts: 574 | From Ohio | Registered: Aug 2014  |  IP: Logged | Report this post to a Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know, as a Lyme patient, how frustrating each of our symptoms is, but I suggest not going into thinking catastrophic thoughts for the future, since any new symptom means we need to find a way to treat it. If we're lucky, the first try works, but sometimes it takes a few treatment tries to find the remedy that works for us.

For me, insomnia also developed early on, and I didn't know I had Lyme. I went thru getting addicted 4 times (!) to benzos before I figured out just taking benadryl at bedtime worked to get me to sleep!

I started at 25mg strength and stayed there for quite some time before I had to increase dosage. After a couple decades, I still take it to sleep.

So that is the simplest remedy I know. Others may add their thoughts here too.

Posts: 12700 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (5K+ posts)
Member # 6046

Icon 1 posted      Profile for hiker53     Send New Private Message       Edit/Delete Post   Reply With Quote 
I go through periods of insomnia. I am still alive.

When I can't sleep I get up and read--usually the Bible, but sometimes a novel, until I get drowsy.

This, too, shall pass, Mike. Keep a positive outlook.

We all have good days and bad days, good periods and bad periods. That is life and yes life with Lyme can be very hard, but so can life without Lyme.


"God is light. In Him there is no
darkness." 1John 1:5

Posts: 5579 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (1K+ posts)
Member # 49177

Icon 1 posted      Profile for Bartenderbonnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lyme is a horrible disease and makes one's life a living hell!
What's that saying, "Lyme doesn't kill you but it makes you wish you were dead."

Of coarse we know it can be deadly if left untreated.

But you can get better. You stated you are better. That's GREAT news !

Here is a great article that addresses insomnia;

Posts: 1670 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have taken Ambien for insomnia for many years. One thing I have found out in the past 5 years is that my salicylate sensitivity is a MAJOR cause of insomnia .. not just for me, but for many.

If I eat foods that are high (or too high for me) in salicylates, I will be awake all night, Ambien or no Ambien.

So .. check your diet.

And also try You Tube for all the other tips. This one was huge for me.

Opinions, not medical advice!

Posts: 93668 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 51011

Icon 1 posted      Profile for Lyme248     Send New Private Message       Edit/Delete Post   Reply With Quote 
Have you tried lavender essential oil? For some reason, breathing in the smell of lavender always makes me fall asleep very quickly.

chronic Lyme/Bartonella

Inside every sick person is a well person waiting to be freed

Posts: 224 | From new england | Registered: Nov 2017  |  IP: Logged | Report this post to a Moderator
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler         Edit/Delete Post   Reply With Quote 


Posts: 47625 | From Tranquil Tree House in my dreams | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (1K+ posts)
Member # 33330

Icon 1 posted      Profile for MannaMe     Send New Private Message       Edit/Delete Post   Reply With Quote 
My hubby would listen to something when he couldn't sleep, either soothing music, or uplifting sermons. Not exciting stories or it would keep your mind busy.

5HTP, melatonin, were helpful for him also.

Posts: 1389 | From USA | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (1K+ posts)
Member # 5701

Icon 1 posted      Profile for klutzo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Insomnia is my biggest problem. We're all different, but these are the things that helped me to go from 0-2 hrs. sleep per night to 6-7 hrs. per night:

1. A hot shower before bed. Don't jump right in bed....let yourself cool down.

2. Melatonin, 1 gram an hour before bed, and every time I wake up until 5 am. After that, I take L-tryptophan 500-1000 mgs. instead, each time I wake up.

3. Magnesium Threonate - Two capsules an hour before bedtime and one more the frist time I wake up during the night. MUST be threonate form to work, aka Magtein.

4. Benadryl - 25 mgs. an hour before bedtime and one more each of the next 2 times I wake up, but not unless you must do this to sleep. Benadryl has been found to be even more likely to cause AZD than benzos. I spent 3 yrs. in agonizing withdrawal from Benzos and do NOT recommend them either.

5. I take 0.3 mgs. Clonidine an hour before bedtime, and more later on, but those with low blood pressure cannot do this.

6. No caffeine after 12 noon. No phone calls after 8 pm. No food after 9 pm. No blue screens after 10 pm. Red night light bulbs only. This is to go to sleep by 11:15 pm.

Posts: 1260 | From Clearwater, Florida, USA | Registered: May 2004  |  IP: Logged | Report this post to a Moderator

Quick Reply

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins

Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:

Contact Us | LymeNet home page | Privacy Statement

© 1993-2019 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3

Home | Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Webmaster