So great to see these published in the New York Times. The thing is, how many people who read the original terrible article will read the Op-ed pages? The patient and and Global Lyme Alliance answer well! Please read them - short and to the point.
comment on top of list now: E. McSweegan. Rhode Island July 10 . . . . (at link)
For anyone new to lyme, E. McS has been the loudest voice to criticize, control & dismiss (and thereby, condemn) those who have reported that a single kind of treatment short course did not work - for them (or their loved one).
Well, of course E. McSweegan just weighed in. Too bad if anyone believes him but he sure has the arrogance full force.
Seven readers did reply directly to his post but their comments wind up below his.
I hope someone posts a whole new comments to keep him from the top.
Over 700 "hostile" responses" McS says, "a cult of anti-science" . . .
Most of the seven replies are good, well educated and correct.
Also, in recent days, below his "thread / reply" line are some really good comments.
Be sure to see those, too. Lorraine Johnson from LymeDisease.org. and Dr. K from ILADS . . . .
Still, most of the replies I've read are glad the author's son is okay - for now, they caution.
And, for the most part, the reader replies are also from very well (lyme & tick-borne disease) educated patients / family members who have had to find the doctors / articles / books, etc. to move past the bad model in general practice & the IDSA / CDC.
They share heart breaking experiences that hopefully. will inform others & several excellent links to data / research / treatment info. are also shared. Applause to the posters with courage to speak truth to power.
And, oh, oh, oh. You would think that any doctor who held such a tight line as lyme is no big deal and one or a few of just one kind of antibiotic is the cure -- well, don't you think that if 700 readers replied that the IDSA view is very wrong & fails so many -
don't you think they'd want to really take that to heart and talk to such patients, really explore it?
Well, that's what I used to think, too, until multiple doctors over years would just dismiss me, later, even with positive tests for 3 TBD
though doctors in my state are so controlled by the IDSA, they dare not even whisper the work "lyme" - for some who learned the reality have lost their licenses to treat.
That they also dismiss the other tick-borne infections is the height of malpractice, too. But this is standard in my state.
That so many posters share their reality of lyme, I so hope doctors will wake up and get themselves to ILADS, etc. -
Posts: 47966 | From Tranquil Tree House in my dreams | Registered: Jul 2007
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