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posted
Thank you for this summary! A beautiful job!
Posts: 402 | From Herndon, Virginia | Registered: Oct 2005
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
WOW!
Thank you sooooooo much for this summary. I read and appreciated every single word!
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1536 | From Maryland | Registered: Feb 2009
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posted
Thank you so much for your incredible generosity in doing this work for us! Blessings, Just Jan
-------------------- I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan... bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.
NICENESS COUNTS!! Posts: 60 | From orange county new york | Registered: Jul 2008
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Thank you so much for your hard work. This was an excellent summary.
One thing I noticed though. When Dr. Donta was talking about the effects of rocephin, I think he was talking in weeks, not months -- I think he said patients back slid at ten to twelve *weeks*.
Posts: 585 | From Eastern USA | Registered: Jul 2006
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[ 05-04-2010, 02:01 AM: Message edited by: OptiMisTick ]
Posts: 911 | From Above the Clouds | Registered: Nov 2000
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Thanks, OptiMisTick!
As to Wormser, as you said:
>>He insisted the Guidelines can not account for individual variation, were not intended to supplant physician judgment, and adherence was intended to be voluntary.<<
The intent of the IDSA is that they NOT be voluntary, as evidenced by the fact that the head of the IDSA writes letters every time legislation is proposed at the state or national level to allow for physician/patient choice in Lyme treatment.
I don't see any statements there that say "individual variation" or "physician judgment," and in fact the guidelines themselves recommend against certain classes of antibiotics, combination therapies, Bartonella diagnoses, and alternative treatment modalities that have been effective for some patients (guidelines, p. 1094).
Lorraine Johnson pointed out this discrepancy in the follow-up questions at the end of the hearings.
posted
omt, aren't you all glad she's on OUR side with her strength, determination, and helping others.
EDITED: i got omt mixed up with another dear friend of mine whose daughter has attempted suicide 20 plus times. i'm so sorry for my mistake of remembering with your family OMT. bettyg hugs/kisses
it goes to show no matter how painful our lyme journey, when we are able to do something like what OMT did on the above; we are DRIVEN to get things done that no one would ever believe we are capable of.
posted
Ummmmm, maybe into each life a little Brain Fog must fall?? Going to PM about a discrepancy above.
Posts: 911 | From Above the Clouds | Registered: Nov 2000
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Robin123
Frequent Contributor (1K+ posts)
Member # 9197
posted
Wonderful summary and great humor!
Posts: 4267 | From San Francisco | Registered: May 2006
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bettyg
Unregistered
posted
i edited my last comments; i got OMT mixed up with another member and my comments i deleted were about the OTHER MEMBER'S suicidal daughter.
so sorry omt; we got that fixed, so if you'd like, you could delete your 1 short note above so we don't get more speculation going .... betty
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