My friend BettyG suggested I may have luck in here gaining support for activism in Texas. I have treated Lyme and coinfections for 7 years after going 36 years misdiagnosed. My four kids got it from me and we are all doing much better!
I began advocating 3 years ago and since resigned from working with the other two groups in TX and looking to make headway with legislating in Austin in the 87th session with my own advocacy group. There's so much more that needs done in TX and beyond than the current help available.
If you're interested in reading more about my group feel free to go to www.TexasLymeAlliance.net and click "sign up" to join my newsletter for additional information on how I am attacking the lyme epidemic from DC, to the CDC in Atlanta, and back to TX head on.
From the efforts I've had already the TMB and TMA are saying there's no problems been reported with getting treatment for lyme although we all know better across the nation. We need to get organized and reach all of our officials soon so they know we need their help this session.
I'm new in this forum so please reach out if I've violated any rules.
Thank you for providing this place to share, learn and meet other like minded advocates and patients.
-------------------- KMBauer Posts: 3 | From RICHARDSON | Registered: Aug 2019
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
Kristina, I've been active here in Texas since 2000 when the late state Senator Chris Harris held a series of state hearings on Lyme disease in Texas. Our TMB at that time had been very aggressive towards LLMDs, and we eventually succeeded in passing protective legislation for our LLMDs in Texas.
We now have 5 ILADS LLMDs in Texas -- 3 in the greater Austin area and two in Houston, but none in North Texas after our most experienced ILADS LLMD retired in June of this last year. I suspect that's why you are having trouble getting treatment in your part of the state -- although there is a Lyme-friendly doctor in the HEB/ Colleyville area.
You would do best to commute to see someone in the Austin area. I can send you a list of names by PM if you are interested.
Also, we have a TxLyme Yahoo group which was formed way back in 2002 which is relatively inactive now, due to lack of interest. However, I suspect that the reason for this lack of interest is that ever since net neutrality was repealed a year or so ago, Lyme disease no longer shows up on Google and/or other internet searches, like it used to, due to political bias against this diagnosis -- which is NOT a state issue, but a much larger national (and probably international) bias against Lyme disease.
We also have a Texas Lyme Disease Assn. which is relatively inactive now also -- mainly because most of our political goals have already been achieved here in Texas.
The biggest problem now, as I see it, is with the larger national and international political bias against Lyme disease. Unless internet net neutrality is once again re-instated, then I'm not sure how far you will get in trying to advocate for Lyme disease on a statewide basis.
Even Lymenet has become relatively inactive in recent years -- again due to the repeal of net neutrality, which I don't really understand very much about. There was another topic here at Lymenet recently, if I can still succeed in finding it. (Scroll down to find the message posted by Dan455) http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/38223?#000014
PS - I'm editing to add that I think we probably met (in the cafeteria) in Austin at the Sunset Hearings on the TMB a few years ago. Your name looks very familiar to me.
Posts: 4536 | From TX | Registered: Sep 2002
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