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» LymeNet Flash » Questions and Discussion » Medical Questions » Lyme Disease & Coinfection Symptoms List

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Author Topic: Lyme Disease & Coinfection Symptoms List
Lymetoo
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Time to post this again.

Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
22.Headache
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness
30.Tremor
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol

--------------------

[ 06-02-2009, 07:54 PM: Message edited by: Lymetoo ]

--------------------
 -
oops!
--Lymetutu--
Opinions, not medical advice!

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Geneal
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Speculation maybe, but the symptom list helped me

Figure out what was wrong with me.

Something my doctor's couldn't do.

So I can say that with treatment I am able to do my job again,

Speak again, walk again and remember things....

Just like before I was sick.

Thanks Lymetoo for posting the symptoms.

I'd rather skip the biopsy.

Hugs,

Geneal

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lpkayak
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are you talking about a pcr? that is one of the hardest tests to get positive. yes if it is positive you have it---but if its negative it in no way means you don't have it. it just means they took the sample from the wrong place. ketes move around. its hard to find them. if you herx from tx it is another way to show you have it

--------------------
Lyme? Its complicated. Educate yourself.

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feelfit
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losferwrds,

Even if you DID get a biopsy confirming lyme, treatemnt would still be the same, speculation on what *may* work.....

So whats your point?

Thanks for posting the symptom list again TuTu, tis the season! Be careful and use precaution.

Feelfit

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bettyg
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more symptom lists ....


CHILDREN'S LYME SYMPTOMS compiled by Geneal 6-07
From ``GENEAL'' June 2007

I have been doing some research regarding Lyme and signs/symptoms in small children.

I know many of you have small children that you may be concerned about.
I believe my youngest child (4yrs old) may have gotten this disease from me.

For All Children

-dizziness
-neck pain and stiffness in almost 90%
-sore throats
-swollen lymph nodes
-excessive thirst,
-Chest pains in at least 70%, some have palpatations
-Sense of air hunger or shortness of breath, dry cough

-abdominal pain in about 50%, can mimic acute appendicitis
-sometimes vomiting, heartburn
-rashes that come and go, malar rashes, new psoriasis

-migratory arthralgias, joing pain in 50% to 100%
-myalgias in over 80%, back ache, morning stiffness, pain at rest, muscle weakness

-frequent illnesses, dark circles under their eyes
-intermittent red, hot pinnae of ears
-sleep disturbance in over 80%

-Neurological symptoms are protean and can appear AT ANY TIME during the course of infection
*hypersensitivity of skin, scalp and hair
*Hypersensitivity to noise, light, smell
*Alterations of taste
*poor balance and coordination
*Uncharacteristic behavior outbursts, mood disturbances, depression
*social withdrawal
*New onset phobias
*Oppositional behaviors
*Obsessive compulsive disorders
*Deterioration in school performance in over 90%
*Difficulty with concentration and attention in school with easily distractability as well as "brain fog" in over 80%
*New onset of ADD

*When measured with formal neuropsychiatric testing, children demonstrate defects in auditory and visual sequential processing

Less Commonly:

*Movement disorders-spaticity, ataxia, motor or vocal tics
*Cranial neuropathies, e.g. Bell's Palsy or optic nerve neuritis
*Peripheral neuropathies-numbness and tingling, distal parathesias, subtle weakness

Pre-Schoolers and toddlers

- Mood swings, sudden emotional outbursts
- Irritability
- Personality changes
- Regression of motor and social skills (developmental milestones)
- Changes in play behavior, tire easily, less active

- Trouble falling asleep, frequent awakenings
- Nightmares, new phobias, recurrence of separation anxiety
- Diaper rash unresponsive to normal treatment
- Frequent URI's, ear and throat infections, bronchitis, pneumonia

Congenital Lyme Disease

* Infants can be infected with Borrelia transplacentally in any stage of pregnancy and/or via mother's breast milk.

* The co-infections: Babesia, Bartonella, Mycoplasma and perhaps even the Ehrilichias can be transmitted transplacentally to the developing fetus.

* Gestational Borreliosis can be associated with repeated miscarriages, fetal death in utero, still births, hydrocephalus, cardiovascular anomalies,

intrauterine growth retardation, neonatal respiratory distress, and maternal toxemia of pregnancy.

* Infants either infected congenitally or from breast milk can have

- Floppiness with poor muscle tone
- Irritability
- Frequent fevers and illness early in life
- Joint sensitivities and body pain
- Skin sensitivity
- Gastro esophageal reflux
- Developmental delays
-Learning disabilities and psychiatric problems

Infants infected congentially can have

-Small windpipes (tracheomalacia)
- Eye problems (cataracts)
- Heart defects

* Infants bitten very early in life will have many of the same symptoms
- loss and decline in developmental milestones.

I found this to be a pretty inclusive list of signs/symptoms for small children, infants, and those suspected of congenital Lyme.

Sadly, my two children do exhibit many of these symptoms and both have positive bands for Lyme via Igenex diagnostic lab in PALO ALTO, CALIFORNIA. Geneal, 2007

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=3&t=019627#000005


Also, see Cheryl''s LYME INFO extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! Read the area on CO-INFECTIONS!
You could have from 1-10 other illnesses that tick is carrying...lyme, malaria, etc.


MANY CO-INFECTIONS & HAS PHOTOS!
http://pathmicro.med.sc.edu/mayer/ricketsia.htm

http://www.lymeinfo.net/lymediseasetreatment.html


Melanie reber's ongoing LONG list of co-infections in detail !! from 2003 until CURRENT !!

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/21366?#000046


If you are showing symptoms of co-infections, I would like to suggest being tested for co-infections when you have LYME western blots done. It isn't cheap!! But if you are positive, you can treat the co-infections first, and then work on LYME symptoms.

Pronunciation of common co-infections from lymetoo/tutu 12-13-07

Ba BEE' see oh sis (Babesiosis)
or commonly known as
Ba BEE' sza (Babesia)
bart un EL a (Bartonella)
er LICK' ee oh sis (ehrlichiosis

BARTONELLA ... AGITATION, PANIC, AND DEPRESSION 1-08
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=062021#000001


HHV-6 viruses (as well as EBV) from Timaca, 8-17-07
can be found at www.hhv-6foundation.org


various viruses explanations from Melanie reber 5.19.09 http://pathmicro.med.sc.edu/virol/herpes.htm


Click on "testing" as well as the other links.
Info on Dr. Montoyas current research study can be found at www.vicd.info and http://clinicaltrials.gov/ct/show/NCT00478465

Homeopathic symptoms list, 2005, a look at lyme disease!
By looking 5-16-08
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=066502


MELANIE REBER'S 186 LIST OF SYMPTOMS
BY REGION AREA:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=021063#000000


SYMPTOMS LIST STUDY posted by Melanie Reber 4-06
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=043100

CO-INFECTION SYMPTOM LIST 9-07
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=058264

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=064705


DR. BURRASCANO'S 2002 ... LYME, BARTONELLA, BABS, & ERLICHIA SYMPTOMS LIST

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=062695

Bartonellosis symptoms from fuzzyslippers 2.21.09
***********************

Common symptoms of bartonellosis include:

___Fatigue (often with agitation, unlike Lyme disease, which is more exhaustion)

___Low grade fevers, especially morning and/or late afternoon, often associated with feelings of "coming down with the flu or a virus"

___Sweats, often morning or late afternoon (sometimes at night) - often described as "thick" or "sticky" in nature

___Headaches, especially frontal (often confused with sinus) or on top of head

___Eye symptoms including episodes of blurred vision, red eyes, dry eyes

___Ringing in the ears (tinnitus) and sometimes hearing problems (decreased or even increased sensitivity - so-called hyperacusis)

___Sore throats (recurring)

___Swollen glands, especially neck and under arms

___Anxiety and worry attacks; others perceive as "very anxious"

___Episodes of confusion and disorientation that are usually transient (and very scary); often can be seizure-like in nature

___Poor sleep (especially difficulty falling asleep); poor sleep quality

___Joint pain and stiffness (often both Left and Right sides as opposed to Lyme which is often on one side only with pain and stiffness that changes locations)

___Muscle pains especially the calves; may be twitching and cramping also

___Foot pain, more in the morning involving the heels or soles of the feet (sometimes misdiagnosed as plantar fasciitis)

___Nerve irritation symptoms which can be described as burning, vibrating, numb, shooting, etc.

___Tremors and/or muscle twitching

___Heart palpitations and strange chest pains

___Episodes of breathlessness

___Strange rashes recurring on the body often, red stretch marks, and peculiar tender lumps and nodules along the sides of the legs or arms, spider veins

___Gastrointestinal symptoms, abdominal pain and acid reflux

___Shin bone pain and tenderness


Bartonella is a bacterium that causes illness, the most commonly known of which is a disease called "Cat Scratch Fever."


Thousands of known cases of Bartonella occur in the U.S. each Year, with the vast majority of known cases due to bites from fleas that infest cats or infected dogs (may also occur directly from bites and scratches from infected dogs or cats).


Bartonella can also be transmitted by ticks that transmit Lyme Disease.


In fact, in a study published recently, deer ticks from New Jersey had a higher prevalence of Bartonella organisms than of Lyme organisms.


It is unclear whether the organism that we see transmitted along with Lyme disease is actually a Bartonella species (such as B. henselae or B. quintana) or is "Bartonella-Like Organism" (BLO) that is yet to be fully identified.


While BLO has features similar to organisms in the Bartonella family, it also has features slimiar to the Mycoplasma and the Francisella (causes tularemia) families.

editing; added part i overlooked to add!
------------------------------------------------------

Babesiosis


As with other co-infections, there is a lot of overlap of symptoms between Lyme disease and Babesiosis. An accumulation of the following signs and symptoms probably warrant testing and/or treatment of Babesiosis:

___Chills

___Fatigue and often excessive sleepiness

___High fever at onset of illness

___Night sweats that are often drenching and profuse

___Severe muscle pains, especially the large muscles of the legs (quads, buttocks, etc.)

___Neurological symptoms often described as "dizzy, tipsy, and spaciness," similar to a sensation of "floating" or "walking off the top of a mountain onto a cloud"

___Depression

___Episodes of breathlessness, "air hunger", and/or cough

___Decreased appetite and/or nausea

___Spleen and/or liver enlargement

___Abnormal labs (low white blood count, low platelet counts, mild elevation of liver enzymes, and elevated sed rate)

___Headaches (migraine-like, persistent, and especially involving the back of the head and upper neck areas)

___Joint pain (more common with Lyme and Bartonella)

___anxiety/panic (more common with Bartonella)

___Lymph gland swelling (more common with Bartonella and Lyme)

[ 05-24-2009, 02:55 AM: Message edited by: bettyg ]

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mina222
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thanks for that, sounds like i may have bartonella as well by reading that..

--------------------
IgM : 31 +++, 34 ++, 39 IND, 41 ++, 58 +

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kam
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Good to have and know. If I were up to it I would post it under Lyme and Company Resources on Lyme Friends.

Please feel free to post these lists over there if you are able.

Hoping to be doing better later so I can check these out.

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nenet
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quote:
Originally posted by losferwrds:
Also the symptom of life after/during puberty, what's your point?

You can list symptoms till your blue in the face, until you can get a lyme BIOPSY, you are treating symptoms and speculation based on antibodies.

Here is an informative collection of studies supporting dozens of Lyme symptoms. You will need to look at the actual studies to determine whether each individual study worked with DNA-proven or antibody-positive Lyme only:

http://www.lymeinfo.net/medical/LDSymptoms.pdf


A false positive Lyme WB is exceedingly rare, and when it does occur, even IDSA researchers have written in peer-reviewed articles that it is easy enough to differentially diagnose those cases.

If one has a positive Lyme Western Blot, AND has symptoms that coincide with Lyme (and especially if the patient in question has had other possible, more easily diagnosed causes ruled out), the clinical diagnosis and treatment of Lyme is sound, and has a very strong scientific basis.

I don't understand the negativity directed at a list of symptoms that can occur with Lyme. This list is just the tip of the iceberg of what symptoms are possible with Lyme Disease. It is just a tool to help those that are looking for all possible causes for their health problems.

--------------------
Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

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Meg
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It was the symptom list that helped me recognize that I should indeed suspect lyme disease as opposed to other diseases.

This is also helpful for new posters just learning about lyme.

Isn't THAT worthwhile?

Another question, just what is a Clinical Diagnosis in this day and age?

Thanks Lymetoo

--------------------
Success Stories---Treatment Guidelines

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losferwrds
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This symptom lists should be stickyied at the top of the board. AND LABELED LYME AND CONINFECTION Symptom lists.

So its easy to find, it a great reference.

[ 05-21-2009, 05:42 AM: Message edited by: losferwrds ]

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kreynolds
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Lymetoo,

Don't concern yourself with the negativity.

This list well help many of the new members on the site.

I always refer to the "list" even after 2 years of being diagnosed.

I can't remember all of them while at the doctors, it's like a checklist that I use.

Thanks for posting it and helping people in need

losferwrds,

This post was meant to help people and thats what Lymetoo is doing, if you don't have anything nice to say then don't say it [shake]

--------------------
Diagnosed CDC + 6/2007

Quest: + IGG Bands 18,23,39,41,58,66 and 93.

Quest: + IGM Bands
23,39

Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease

+ Biofilm blood test 12/2010

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aklnwlf
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Thanks TuTu. Glad to see the lists again cause am having symptoms lately myself.

[hi]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

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FuzzySlippers
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Lymetoo, Is it OK for me to include the Bart/Babs Symptom Questionnaire here to your thread? I noticed Betty has a portion of it in her newbie package shown above.

Give me a holler, TuTu, if tacking this on to your thread is not ok.

An LLMD gave me this list of Bartonella/Babesia symptoms back in 2007.

Fuzzy
____________________________________________


Bartonellosis


Common symptoms of bartonellosis include:

___Fatigue (often with agitation, unlike Lyme disease, which is more exhaustion)

___Low grade fevers, especially morning and/or late afternoon, often associated with feelings of "coming down with the flu or a virus"

___Sweats, often morning or late afternoon (sometimes at night) - often described as "thick" or "sticky" in nature

___Headaches, especially frontal (often confused with sinus) or on top of head

___Eye symptoms including episodes of blurred vision, red eyes, dry eyes

___Ringing in the ears (tinnitus) and sometimes hearing problems (decreased or even increased sensitivity - so-called hyperacusis)

___Sore throats (recurring)

___Swollen glands, especially neck and under arms

___Anxiety and worry attacks; others perceive as "very anxious"

___Episodes of confusion and disorientation that are usually transient (and very scary); often can be seizure-like in nature

___Poor sleep (especially difficulty falling asleep); poor sleep quality

___Joint pain and stiffness (often both Left and Right sides as opposed to Lyme which is often on one side only with pain and stiffness that changes locations)

___Muscle pains especially the calves; may be twitching and cramping also

___Foot pain, more in the morning involving the heels or soles of the feet (sometimes misdiagnosed as plantar fasciitis)

___Nerve irritation symptoms which can be described as burning, vibrating, numb, shooting, etc.

___Tremors and/or muscle twitching

___Heart palpitations and strange chest pains

___Episodes of breathlessness

___Strange rashes recurring on the body often, red stretch marks, and peculiar tender lumps and nodules along the sides of the legs or arms, spider veins

___Gastrointestinal symptoms, abdominal pain and acid reflux

___Shin bone pain and tenderness

Bartonella is a bacterium that causes illness, the most commonly known of which is a disease called "Cat Scratch Fever." Thousands of known cases of Bartonella occur in the U.S. each Year, with the vast majority of known cases due to bites from fleas that infest cats or infected dogs (may also occur directly from bites and scratches from infected dogs or cats). Bartonella can also be transmitted by ticks that transmit Lyme Disease. In fact, in a study published recently, deer ticks from New Jersey had a higher prevalence of Bartonella organisms than of Lyme organisms.

It is unclear whether the organism that we see transmitted along with Lyme disease is actually a Bartonella species (such as B. henselae or B. quintana) or is "Bartonella-Like Organism" (BLO) that is yet to be fully identified. While BLO has features similar to organisms in the Bartonella family, it also has features slimiar to the Mycoplasma and the Francisella (causes tularemia) families.

_________________

Babesiosis


As with other co-infections, there is a lot of overlap of symptoms between Lyme disease and Babesiosis. An accumulation of the following signs and symptoms probably warrant testing and/or treatment of Babesiosis:

___Chills

___Fatigue and often excessive sleepiness

___High fever at onset of illness

___Night sweats that are often drenching and profuse

___Severe muscle pains, especially the large muscles of the legs (quads, buttocks, etc.)

___Neurological symptoms often described as "dizzy, tipsy, and spaciness," similar to a sensation of "floating" or "walking off the top of a mountain onto a cloud"

___Depression

___Episodes of breathlessness, "air hunger", and/or cough

___Decreased appetite and/or nausea

___Spleen and/or liver enlargement

___Abnormal labs (low white blood count, low platelet counts, mild elevation of liver enzymes, and elevated sed rate)

___Headaches (migraine-like, persistent, and especially involving the back of the head and upper neck areas)

___Joint pain (more common with Lyme and Bartonella)

___anxiety/panic (more common with Bartonella)

___Lymph gland swelling (more common with Bartonella and Lyme)

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Lymetoo
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That's great, Fuzzy. Thanks! [Smile]

--------------------
 -
oops!
--Lymetutu--
Opinions, not medical advice!

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bettyg
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losferwords,

also if you want to see this stickied as a feature at the top of this forum, click on lymetoo's 1ST POST at top.

then go to lower RIGHT HAND CORNER where it shows her no. of posts, what state she is from, and EXTREME RIGHT SIDE,

click report post; then ask lou b to FEATURE this at top of medical? good idea; i copied my info 4-5 times last night; alot of time taken on my part. [Smile] hugs.

[ 05-22-2009, 12:17 AM: Message edited by: bettyg ]

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kreynolds
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Wow great coinfection symptom list! Thanks for posting it!

I "Love" this part:

"In fact, in a study published recently, deer ticks from New Jersey had a higher prevalence of Bartonella organisms than of Lyme organisms".

That may explain why I have both strands of Bart!

Thanks again for posting it! [Smile]

--------------------
Diagnosed CDC + 6/2007

Quest: + IGG Bands 18,23,39,41,58,66 and 93.

Quest: + IGM Bands
23,39

Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease

+ Biofilm blood test 12/2010

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nenet
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Is it alright if I post a partial symptoms list I compiled from a few different sources for my "May is Lyme Awareness Month" email to friends and family?

It also contains a small list of possible misdiagnoses that can actually be Lyme Disease, or caused by Lyme, and a link to supporting studies for Lyme symptoms. (Please let me know if it doesn't belong here, and I will make a new thread for it.)


Lyme is the most common and fastest-growing vector-borne infection in the United States. Lyme is in every state of the US, even Hawaii (as well as in many other countries). You can catch Lyme, and other infections (viral, bacterial, and protozoal), from several species of ticks, not just the most publicized Deer tick.

You can contract Lyme as soon as the tick is attached, not just after the commonly publicized 24 hours. Nymphal (and adult) Deer ticks are a common transmitter of Lyme Disease, as they are so small they are very difficult to detect and remove before attachment; they are the size of the period at the end of this sentence. Adult Deer Ticks are not much larger, and can appear to be a speck of dirt or a dark freckle.

Some co-infections like RMSF can be contracted from simply touching the tick or its fluids or excrement. Always handle ticks with a "tick removal kit" (like this one: http://www.lyme.org/tickkit/tickremovalkit.html ), which can be purchased in many drugstores or found online, OR with good tweezers and a steady hand, making sure to remove the head without smashing the tick.

If at all possible, save the tick in an airtight container, and send it to be analyzed by a Tick-Borne-Disease specializing lab.

Below is a sample of the many possible symptoms of Lyme disease. The first symptoms can start immediately after a tick bite, or they can first appear weeks, months, and in some cases, even years later.

Symptoms generally relapse and remit, meaning that they can come and go. One hour, day, week, or month, you can be feeling sick, then the next you're feeling better for a while, and so on.

You can have one symptom or a spectrum of symptoms - some may not manifest until the infection spreads to particular tissues, particularly the CNS, but it is interesting to see how it can mimic other ailments (dissemination to CNS can occur in as little as 12-48 hours, as observed in some animal studies).


Lyme Disease Symptoms (Partial List - there are many other possible symptoms)

1. Unexplained fevers, sweats, chills, or flushing
2. Flu-like symptoms or malaise
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen or painful glands/lymph nodes
6. Sore throat
7. Headache
8. Rash - either bulls-eye or other forms. Can vary in form, color, and number, and appear in areas other than tick bite. Less than 50% of confirmed Lyme cases report remembering a rash. A bulls-eye rash from a tick bite is DIAGNOSTIC for Lyme Disease.
9. Irritable bladder or bladder dysfunction; Interstitial Cystitis
10. Upset stomach, GERD, or acid reflux
11. Change in bowel function - constipation, diarrhea
12. "Sick all the time" - seem to catch every illness that comes around, or old infections seem to resurface (e.g. Eppstein Barr)
13. Disturbed sleep - too much, too little, early awakening
14. Cranial nerve disturbance (facial numbness, pain, tingling, palsy or optic neuritis, Bell's Palsy)
15. Lightheadedness, wooziness, syncope (fainting or near-fainting)
16. Increased motion sickness, vertigo, poor balance, or change in gait
17. Pain, stiffness, and/or swelling of the joints, neck, or back, traveling or localized
18. Tendon and ligament pain or stiffness
19. Neck creeks and cracks, neck stiffness, neck pain
20. Muscle pain or cramps, traveling or localized
21. Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity, loss of hearing
22. Jaw pain or stiffness
23. Twitching or tics of the face or other muscles
24. Tingling, numbness, burning or stabbing sensations, shooting pains; areas of skin sore to the slightest touch; sensations of hot or cold
25. Muscle spasms; limb or head jerks
26. Difficulty swallowing, tight throat
27. Tremor
28. Eyes/Vision: double, blurry, increased floaters, light sensitivity, pain, uveitis
29. Heart palpitations, chest pain, pulse skips, heart block, heart murmur, or valve prolapse
30. Shortness of breath, air hunger, cough, painful lungs
31. Chest pain or rib soreness, costochondritis
32. Mood swings, irritability, depression, bipolar disorder
33. Unexplained menstrual irregularity or increased PMS symptoms
34. Unexplained milk production, breast pain
35. Sexual dysfunction or loss of libido
36. Testicular pain/pelvic pain
37. Unexplained weight change - loss or gain
38. Confusion, difficulty in thinking
39. Difficulty with concentration, reading
40. Forgetfulness, poor short term memory
41. Disorientation: getting lost, going to wrong places
42. Difficulty with speech or writing, difficulty with word-finding
43. Exaggerated symptoms or worse hangover from alcohol
44. New food sensitivities or allergies
45. Postural Orthostatic Tachycardia Syndrome (POTS)
46. Neurally-Mediated Hypotension (NMH)

Symptoms that can be found in disseminated Lyme Disease (called Disseminated late-stage Lyme Disease, or Neuroborreliosis) can generally appear anywhere from several days after infection, to many years later:

47. Seizures
48. Autism, ADHD, OCD
49. MS-like Lesions in brain and/or spinal cord on MRI
50. Paralysis
51. Dementia
52. Psychosis
53. Auditory and visual hallucinations

Lyme symptoms are systemic, or multi-systemic. Lyme can sometimes be the cause of, or cause sets of symptoms that can be misdiagnosed as:

* Fibromyalgia (FMS)
* Chronic Fatigue Syndrome (CFS)
* Lupus
* Rheumatoid Arthritis (RA)
* Parkinson's
* Multiple Sclerosis (MS)
* Autism
* Alzheimer's
* Reynaud's Syndrome
* Amyotrophic Lateral Sclerosis (ALS)
* IBS (Irritable Bowel Syndrome)
* Ulcerative Colitis
* Chron's Disease
* and many, many others.


For a more complete, however not exhaustive, listing of possible symptoms, with supporting references from Medical studies, please see this pdf file:

http://www.lymeinfo.net/medical/LDSymptoms.pdf

--------------------
Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

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Lymetoo
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up

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oops!
--Lymetutu--
Opinions, not medical advice!

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Meg
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"Newbie Learning Help Links"

includes the symptom list/s at the top of this Forum....graciously put there by the poster, "Treepatrol"

It's a sticky already

--------------------
Success Stories---Treatment Guidelines

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Carol in PA
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quote:
Originally posted by Meg:

Another question, just what is a Clinical Diagnosis...

A clinical diagnosis is based on the patient's symptoms and history, rather than on test results.

Carol

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nenet
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Here is another great symptoms list from Lymepa.org that I found in 2007, which includes 150 possible symptoms in a checklist form - the list of symptoms begins on page 19 of the pdf:

``Lyme Disease and associated tick-borne diseases: The Basics'' 5th Edition 2007 by Douglas W. Fearn

http://www.lymepa.org/html/the_basics_-_description.html


Version with literature references:

http://www.lymepa.org/Basics2003v3.0fullpagewrefs.pdf


"contains essential information about Lyme and other tick-borne diseases needed by anyone beginning to learn about these infectious illnesses.

It is written in a nontechnical question-and-answer format and was reviewed for accuracy by knowledgeable members of LDASEPA and by several prominent Lyme-literate physicians. "

--------------------
Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

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Melanie Reber
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Great information everyone!
Thanks so much for sharing.

And to you, Miss Toots... a very special thank you for all you do for SO many!

M

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Melanie Reber
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Hey Miss BG,

You will want to change that link above in your post:

"http://flash.lymenet.org/ubb/Forum1/HTML/021366.html
is Melanie reber's ongoing LONG list of co-infections in detail !! from 2003 until CURRENT !!"

to:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/21366?#000046

...

The link you now have above is an older version that is missing the latest info.
Thanks, M [Smile]

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bettyg
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mel,

thanks for the correction of your NEW post !! corrected the above and my MASTER list of links!! [Smile] good deal...

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Meg
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Carol, AAAA++++
Please move to the head of the class [Wink]

--------------------
Success Stories---Treatment Guidelines

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bettyg
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yes, carol is an outstanding student/educator!! [Smile]

tutu, i sent a request to lou b to make this a STICKY FEATURE AT TOP; since it shows ALL symptoms lists of lyme & CO-INFECTIONS! [Smile] hoping he will....

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Lymetoo
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Thanks, betty!

--------------------
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--Lymetutu--
Opinions, not medical advice!

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lymeHerx001
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I have maybee 35 symptoms. Is that bad>?

Im going to my doctor and going to ask him about the purple pill and tell him also Im depressed.

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kam
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+Tried to find a list on erichelia (sp?) but couldn't. Is it here??

Clicked on mel's url went to the site and then click on the url again and came back to this site.

must be my lyme brain this am.

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lilacs48
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Thanks for listing this for me.

Lymetoo...I have a doctors appointment on Monday. I hope there will be answers for me there. Thankfully I found by accident that antibiotics made me feel a little better or at least didn't let me slide down that tube. It felt like slow death!! I have had to demand the abx. I have searched & searched for ways NOT to die!! My doctor finally said maybe we should test for tick disease. They did a blood test & it shows that I have been exposed to ehrlichia..THEN I went to an infectious disease doctor..Enough said there!! Thank goodness for the internet - it let me know what he said WASN'T right! Just pretty much told me I was nuts...

I've been struggling on filling out the paperwork to take with me to the doctor. It's hard to harness my mind right now since I've been of the abx for over a week & 1/2 so they can run tests at the doctor.

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bettyg
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kam,

erlichia was NOT directly shown above, but using 1 of co-infection links, i found this and will post for you/ALL:)


Ehrlichia
(Ehrlichiosis)
Bites from infected ticks


elevated liver enzymes
headaches
myalgias
ongoing fatigue
persistent leukopenia
thrombocytopenia

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lilacs48
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Thank you bettyg
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kam
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Thanks Betty.

I also thought of mycoplasma and something else that is not right in front of me. [Smile]

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Aleigh
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I want to add to the misdiagnosis list:

Ocular Migraine
Small Vessel Stroke
Myasthenia Gravis

One of my son's biggest symptoms was crossed eyes (diplopia) which is rare for Lyme. But it's a common early marker for MG. They wanted to diagnosis him with Myasthenia Gravis and he was about to have a very caustic test done for it when the Lyme test came back positive.

If I had been able to locate material pointing to diplopia as a real Lyme symptom early on then I would have felt more comfortable pushing the issue.

In my searches on the web it was difficult to find the connection so I want to be sure it's included here...

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Cap67
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Lyme Disease Symptoms List
1. Unexplained, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5.
6.
7. pelvic pain ( hx of )
8.
9. unexplained breast pain ( off and on )
10.
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14 rib soreness

15.Shortness of breath, ( thought this was due to smoking ) I have quit btw [Smile]

16.
17.Any history of a heart murmur
18.Joint pain or swelling: list joints__ankles, wrists, hands, knees, shoulders
___________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.
22.Headache
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.
26.Eyes/Vision: increased floaters, light sensitivity

27.Ears/Hearing: buzzing, ringing, ear pain,

28.lncreased motion sickness,

29.Lightheadedness, wooziness

30.
31.Confusion, difficulty in thinking

32.Diffculty with concentration, reading

33.Forgetfuiness, poor short term memory
34.
35.Difficulty with speech or writing

36.Mood swings, irritability, depression

37.Disturbed sleep-too much, too little, early awakening

38.

These are the symptoms I suffer from either all the time or just sometimes. it sure looks like alot on this list doesn't it!!! [Frown]

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bettyg
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Sorting Out The Co-Infections
*******************************

AliG
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Member # 9734
posted 04-10-2009 11:42 AM


I came across this while looking for something else and thought some might find it helpful.
I'm breaking it up for easier Neuro-Lymed reading.


Sorting Out The Co-Infections - from page 25 of DrB's guidelines


CLASSIC LYME (Bb infection)-

Gradual onset of initial (viral-like) symptoms- this often makes it difficult to pinpoint when the infection began.

Multisystem- almost always, in disseminated stages, involves more than one part or system (i.e. joint pain plus cognitive dysfunction).

Migratory- first a knee will hurt, then over time this may lessen and the elbow or shoulder acts up, and later the joints calm down but headaches worsen.

Stiff joints and loud joint crepitus, especially the neck (``Lyme shrug'').

Headaches are often nuchal and associated with stiff, painful and crepitant neck.

Afternoon fevers, often unnoticed- most Lyme patients have subnormal temperatures in the AM but rise to 99+ by early to mid-afternoon. No obvious sweats.

Tiredness and limited stamina- often is a strong need to rest or even nap in the afternoon, especially when the flushed face and elevated temperature appears.

4-week cycles- Bb activity, and thus symptoms, wax and wane in a cycle that repeats roughly every
four weeks. This cycle, if clear, can guide your treatments.

Slow response to treatment, with an initial symptom flare in most (``Herxheimer-like reaction'') then improvement over weeks, punctuated by the monthly symptom flares.

Likewise, if treatment is ended too soon, an initial period of well-being will gradually, over a few weeks, be replaced by a return of symptoms.

EM rash in 25% to 50%


BARTONELLA & ''BARTONELLA-LIKE ORGANISMS''-

Gradual onset of initial illness.

CNS symptoms are out of proportion to the musculoskeletal ones- if a patient has no or minimal joint complaints but is severely encephalopathic (see below), then think of Bartonella/BLO.

Obvious signs of CNS irritability can include muscle twitches, tremors, insomnia, seizures, agitation, anxiety, severe mood swings, outbursts and antisocial behavior.

GI involvement may present as gastritis or abdominal pain (mesenteric adenitis).

Sore soles, especially in the morning.

Tender sub-cutaneous nodules along the extremities, especially outer thigh, shins, and occasionally along the triceps.

Occasional lymphadenopathy.

Morning fevers, usually around 99. Occasionally light sweats are noted.

Elevated vascular endothelial growth factor (VEGF) occurs in a minority, but the degree of elevation correlates with activity of the infection and may be used to monitor treatment.

Rapid response to treatment changes- often symptoms improve within days after antibiotics are begun, but relapses occur also within days if medication is withdrawn early.

May have papular or linear red rashes (like stretch marks that do not always follow skin planes), especially in those with GI involvement.


BABESIA SPECIES-

Rapid onset of initial illness, often with sudden onset of high fever, severe headaches, sweats and fatigue, thus it is easy to know when infection began.

Obvious sweats, usually at night, but can be day sweats as well.

Air hunger, need to sigh and take a deep breath; dry cough without apparent reason.

Headaches can be severe - dull, global (involves the whole head, described like the head is in a vise).

Fatigue is prominent, does not clear with rest, and is made worse with exercise.

Mental dullness and slowing of reactions and responses.

Dizziness- more like a tippy feeling, and not vertigo or purely orthostasis.

Symptoms cycle rapidly, with flares every four to six days.

Hypercoaguable states are often associated with Babesia infections.

Rarely, splenomegaly

Very severe Lyme Disease can be a clue to Babesia infection, as it will make Lyme symptoms worse and Lyme treatments less effective.


EHRLICHIA/ANAPLASMA-

Rapid onset of initial illness with fever, headache, prostration.

Headaches are sharp, knife-like, and often behind the eyes.

Muscle pain, not joint pain, and can be mild or severe.

Low WBC count, elevated liver enzymes, and (rarely) inclusions seen in the WBCs.

Rarely see diffuse vasculitic rash, including palms and soles (less than 10%).

Rapid response to treatment.


DNA VIRUSES (HHV-6, EBV, CMV)

Persistent fatigue, made worse with exercise.

Sore throat, lymphadenopathy, and other viral-like complaints.

May see elevated liver enzymes and low WBC counts.

Autonomic dysfunction.

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StopTheItchPlz
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Thanks for that list bettyg, nenet & everyone. I thought maybe I was starting menopause early with the night sweats but now I'm not so sure. I do not know yet if I have lyme but if I do get diagnosed, I am fearful for my kids. They do not show any signs or symptoms, thank God, but they are outside way more than I am. If they do show any signs I am getting them to a doc STAT(as soon as I FIND a doc! lol). I live in Illinois but I have seen a doctor in Missouri mentioned and I am more than willing to take a trip in order to feel better. I would walk there barefoot with a backback full of rocks to make sure my kids don't get this. Thank you everyone for your help & info. I am so glad to have found this forum. It's terrible that this info is not easily available to the public and docs are not more informed but I think this website and others are helping to change that. OK I am back to reading! [Smile]
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nefferdun
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I was treating for menopause even though I had been through it. Had hot flashes, migraine like headaches, fatigue, depression, shin pain, lack of motivation and feeling completely detached from self and life. . . this was bartonella.
For those of you looking for bart symptoms, check your skin for pea size brown spots, white spots, pin head size blood blisters, nodules under the skin that hurt when pressed, lumps along the shin bone, swelling in feet and legs that does not dent when pressed, spider veins, broken blood vessels, unusual patterns on skin like stacked clams, unusual scratch type rashes, what appears to be stretch marks (often red or purple) and other unusual skin abnormalities.
Bartonella causes depression, agitation, anxiety, rage and can even lead to mental illness in some people.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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mallory
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When DNA viral infections, such as EBV, are listed as co-infections...does this mean that these diseases often accompany lyme disease because one's immune system is so run down these infections will occur? I understand the link between the other bacterial infections that would be also transmitted when infected...are DNA viruses also transmitted? Does anyone know if chronic ebv infection is a sign of lyme disease?

--------------------
College Student
Suspected tick bite: 07/2007
Diagnosed and started treatment: 01/10

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Karen Mc
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Thanks for the info listed above. I have been diag with Lyme/Bartonella and Babesia. I got an appointment with my LLMD next friday but I am concerned and confused as well about what exactly the EHRLICHIA/ANAPLASMA- and DNA virus are. Should I mention them to my Doctor? He tries to keep costs down for me as I have no insurance. Honestly, I've been so discouraged and depressed in the past...im not really sure if I even want to know if I have them as well. Thanks for th help.
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Lymetoo
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Dr S of FL:

Babesiosis can cause many different signs and symptoms. Here are the most common that should raise suspicion:

High fever to persistent low fever
Slowed thinking
Listlessness
Decreased appetite
Chills Sweats Headache Fatigue Muscle aches
Joint aches/Pain Depression Anxiety/Panic
Nausea Vomiting Cough
Shortness of breath
Air hunger or unsatisfying deep breaths
Dark urine
Enlarged liver (under your right rib cage)
Enlarged spleen (under your left rib cage)
Yellow hue on eyes, hands and skin (Jaundice)
Enlarged lymph nodes (also in Lyme or Bartonella)
Significant memory change
Profound psychiatric illnesses
Struggle organizing
Daytime sleep urgency despite nighttime sleep
Waves of generalized itching
Balance problems with dizziness
Severe chest wall pains
Random stabbing pains
Weight loss or gain Sensitivity to light
Sleep in excess of 8-1/2 hours per day
You have received blood from another person

--------------------
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--Lymetutu--
Opinions, not medical advice!

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Leanne
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I just read the term "Lyme Shrug". Will somebody explain that to me?

--------------------
Funky tick bite ~1986
Home schooling mommy of 4 little ones.

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Lymetoo
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Where was that? I've never heard of it.

If you'll go to the post where you found that, click on the quotation marks next to the date.

That will enable you to quote it for us. I'm too lazy to go looking! [Razz]

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--Lymetutu--
Opinions, not medical advice!

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Leanne
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quote:
Originally posted by bettyg:
Sorting Out The Co-Infections
*******************************


Stiff joints and loud joint crepitus, especially the neck (``Lyme shrug'').

Headaches are often nuchal and associated with stiff, painful and crepitant neck.


The reason I noticed it is because my dad made a comment once to me. We were talking about "stims" like my sister twirled her hair around one finger, my brother tapped his foot a lot, my dad tended to rock back and forth, my mom pulled at her bangs, and, Daddy said, "You do this shoulder/neck shrug thing." I said, "I do? Show me." He kind of moved in a funny way and I said, "Yeah, I do that. I'm trying to crack my neck because it always feels like it needs it, even if I've been to the chiropractor. And the area between my shoulder blades always needs crunching. So I guess I do shrug like that."

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Funky tick bite ~1986
Home schooling mommy of 4 little ones.

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Lymetoo
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Yeah, I don't know if it means an involuntary thing or like you do.. to uncrunch the neck. I do the same thing....esp between shoulder blades.

What the heck is "nuchal"?

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--Lymetutu--
Opinions, not medical advice!

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Leanne
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http://en.wikipedia.org/wiki/Nuchal_scan

Looks like something in the neck.

Mine is sort of involuntary, meaning I didn't know I was doing it. I still don't realize it, and yet....I know I still do it.

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Funky tick bite ~1986
Home schooling mommy of 4 little ones.

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Lymetoo
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ANOTHER GREAT LIST!

http://www.lyme-symptoms.com/LymeCoinfectionChart.html

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--Lymetutu--
Opinions, not medical advice!

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lyme-o
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Wow. Thanks Lymetoo
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Lymetoo
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More bartonella information:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/65655?#000006

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oops!
--Lymetutu--
Opinions, not medical advice!

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