posted
I got a rash similar to this after being off Doxy for over a week. I only took small quantities for less than a month as well. I went tanning for 10 minutes and lo and behold...all body rash. It sucked...im sorry you're experiencing this. I don't care for Doxy at all...this is not "typical" but I have trouble detoxing, so I think that has something to do with it. Hope you feel better!
Posts: 7 | From Dallas | Registered: Sep 2011
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IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Could the chemicals in the sunblock have anything to do with this?
Still, it really does sound like sun burn. I've heard of those with terrible burns who didn't really even have direct sun exposure -- and many through car windows, even required gloves to drive.
Sorry. This looks so rough. Hope the prednisone helps. Guard against the "steroid munchies" or overdoing activity as it can give you a false sense of energy.
This should get better soon, but for 3 weeks, I read at one site, you can be sensitive to sun. It may be longer if skin is damage.
--------------------
Drink water to help your skin move out the fluid.
GOTU KOLA, an herb, may be helpful to help the skin heal from the inside out. It's great for micro-circulation and collegen repair.
CALIFLORA CALENDULA GEL (but it's not oily at all) for topical use. I would avoid anything that is oily or chemical based.
Some calendula gels are oily. ONLY this brand is not, that I've found.
. . . Most of the US-approved UV filters release free radicals � octylmethoxycinnamate, oxybenzone, avobenzone, octocrylene, titanium dioxide, zinc oxide, Padimate O, PABA, menthyl anthranilate, and Mexoryl SX . . .
. . . Some sunscreen ingredients or formulations may be more damaging to skin than others.
Both nano-size zinc oxide and titanium dioxide from sunscreens react strongly with UV light (Dunford 1997) and may damage skin cells (Sharma 2009). . . .
. . . Furthermore, the crystal structure of titanium dioxide (anatase vs. rutile) also appears to affect its potency in generating free radicals (Lu 2008).
The UV filter Padimate O causes skin damage through an entirely different mechanism. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The steroids can be creating some internal excitement (sure did for me in the past). Steroids can cause full blown anxiety. I hate to say that but it's important to know to understand and then relax enough to not be pulled in that direction.
Instead, try to "harness" that energy and redirect it or envision saving it up to dole out later as you wish (as we all wish it could work that way, eh?)
Breathe, do all you can to create a calm environment. This will likely start improving soon.
Find some funny movie, etc.
If you ever watched "Seinfeld" might you recall an episode where Kramer went up on the roof and covered himself in butter and literally baked like a Turkey? That was so funny. And, fortunately, you are not that toasted.
Take care. Breathe slowly and often. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Hopefully to possibly put your mind at ease...the rash pictures you posted look exactly like doxy sun rashes that I got. Doxy stays in your system for quite a while and any sun that reaches you (even through a window or indirectly) will make the rash worse and worse. It takes a while, but, it should calm down and go away if you can stay out of the sun. That said, I'm only speaking from my experience. Hang in there.
Posts: 274 | From United States | Registered: Feb 2012
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IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
When I went on the Dosepack, I couldn't sleep until nearly the end. That's how much the prednisone jacks me up.
I am tired, but it won't let me rest.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Yeah, doxy rash it seems. As people have said, it stays in your system for 10 days--possibly more. Plus, once you have the rash, it takes a while for it to go away.
Of course, use high SPF full-spectrum sun block if you do go out, even if overcast. And you could use a wide brimmed hat and a light scarf around you neck.
I hope that your dr warned you about the sun sensitivity issue ahead of time! Drs are famous for not warning you about side-effects. But this is a well-known and bad one. Usually people aren't on doxy in the summer for that reason, unless they very much need that particular abx.
Take care!
Posts: 3770 | From around | Registered: Mar 2008
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posted
Saw my Lyme doctor and in about 2 seconds while still standing he said that my rash was a typical Doxy rash and he "sees them all the time" and that was it.
Said make an appointment for a follow-up if I want to talk about my recent lab results and that the tick was "negative" for Lyme.
When I asked why then did I have the same symptoms again as after the first bite 2.5 years ago, he simply said,... "Ihave no idea!"
So .... I guess I'm done with the long drives to Franklin to see this Lyme "specialist" ... the ONLY one in TN.
Can we say, "burnout"? Yea, being the only "Lyme Literate" Doctor in TN and having a rash (no pun intended) of new cases of Lyme Disease along with its very vast and puzzling co-infections,
loses its initial attraction after a couple of years I suppose. Much easier to go back to the "easy stuff". *sigh*
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
I just want to pose another possibility, that it has nothing to do with doxy but is in fact a herx from the doxy. I have had rashes for 20 years, I believe it is an allergic reaction to the die off. when I first went on long term abx last year, I got a really intense version of my rash (that look just like yours)
But for me, adding doxy actually clears up the rashes like prednsone never did for me. Doxy works in the skin.
If it's itchy, see if your llmd can prescribe periactin. it is an antihistimine that I have found works much better than benedryl.
Posts: 1728 | From USA | Registered: May 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Not all tick tests are accurate.
Doxy, itself can cause rashes of various kinds. .
But the fact that you had lyme symptoms before even staring the doxy is significant.
So sorry that he did not take more time to help with the rash and what can help now - and that he did NOT warn you about sun exposure.
The pharmacist should have done so, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
One thing I had failed to mention to my LLMD is that I had been bitten by THREE different ticks within the same two weeks!
The one that was attached and engorged on my belly during the night, is the only one that I thought to KEEP, and therefore had it tested!
The other two were only on me briefly but they did bite (that's how I knew they were there) and I removed them quickly!
Who knows if they released something into my body just with that first bite or what other ticks I got that same week and never found!??
All I know is that 2.5 years ago, I had a very positive IGENEX reult (as is in my signature) and I had the EXACT freaky symptoms this time.
I had a strange and sudden bruise pop up immediately down my finger after breaking a carrot stick in half for my horse.
Then I had the nodule pop up on my wrist, the only other one I have EVER had and exactly as I had the first time I had LYme 2 years ago.
My LLMD saw the nodule and I told him about the bruising and that is when he tested my blood again but because his test came came negative, he has dimissed it!
Of course he is also going by the fact that the tick I sent in to IGENEX came back negative but as I stated above, I failed to mention the other ticks! *sigh*
Thankfully, my rash finally shows some improvement this morning after the second days of Medrol!
Thank you ALL so much for your replies to this thread. I guess at this point, I will see how I feel after completing the Medrol!
However, I still have pains in my hands and feet and muscles twitches that have never stopped from the first infection of 2.5 years ago. I have really just learned to live with them and quit complaining!
quote:Originally posted by Keebler: - Not all tick tests are accurate.
- I found that out the hard way!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Sorry to say, as you know now, it sounds like you need a new doc. I know only too well how frustrating this is!!
Any Lyme doc who gives doxy in the summer with no warning . . . not good!! And then to dismiss you so easily with not much help . . . . And to rely on tick testing??? Yikes! 3 strikes and you're out!
Find the best doc you can.
Oh, and what I do, because our cases are complex, and it is easy to forget what you need to say/ask in an appt. I spend a day or two writing up all my current symptoms, concerns, meds, supplements, what went on, questions, etc. and have a copy for the doc, and one for me, so as to make the most of the appt. It is indispensable, if you ask me. (Separate list of meds & supps).
What about the wonderful LL NP in DC? I know that may be a looong way from you! Could do phone consults after the first visit.
Posts: 3770 | From around | Registered: Mar 2008
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posted
I so appreciate all of your help and concerns, I truly do! I would have to say that going anywhere further than the one hour's drive that I have been making is pretty much a far shot!
Why? Because I don't like to drive the interstates, and I have never flown nor plan to start at nearly 48 years of age. Terrified of heights!
Good excuses? I"m sure they are NOT but that is how it is with me. Who knows, maybe at some point desperation will force me to change. LOL!
posted
Thank you all! Just to update ... was put on the Medrol pack to clear up the Doxy rash from Hell!!! Finally all but gone but now I feel TERRIBLE.
Muscle and joint aches, and the most worrysome is weakness in my hips and legs again. (The WORST symptom I had 2 years ago when I was diagnosed through IGENEX for Lyme)
Trying to get a referral from my GP to see a Neurologist. Have no more faith in my LLMD since he rushed me out when looking at my rash ... and
since he didn't know to NOT put me on Doxy in the SUMMER or NOT to put me on a steroid if I've possibly still got Lyme. :'( .
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Hi Kim. I highly recommend that you get in with someone else out of state. We went to this same doctor that you are talking about for about one year, and now we see someone in Ct.
It is a VERY long drive(18 hours one way) but so worth it.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I doubt that seeing a neurologist is going to be a good move. They are as bad as infectious disease docs for lyme patients.
I was sent to one, and he treated me like a mental patient. He didn't believe my positive lyme test from LabCorp. His goal was to declare that I did not have lyme disease.
These docs order spinal taps and brain scans and such. When you get a negative spinal tap (no lyme found in your spinal fluid), they announce that you don't have lyme!
A neurologist will NOT treat you.
Why are you thinking of seeing a neurologist rather than a different lyme doctor?
There is an outstanding lyme doc in D.C. who will do telephone appointments after the first in-person appointment. People who are going to her are really improving, and quickly too.
She comes highly recommended by top names in the lyme world and by state lyme disease associations.
Maybe there is a train to D.C. from somewhere near you.
Let me know if you want to know more.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Looks and feels like the same thing happening here as well! Guess I will become
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