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» LymeNet Flash » Questions and Discussion » Medical Questions » Mild Hyperbaric Treatment (Page 34)

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Author Topic: Mild Hyperbaric Treatment
Digby
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Tickboy/Lymeboy, Congratulations on your success treating with mHBOT. It has turned my life around. From wheelchairs and home bound to hiking and biking! Yet, I can also say that I am far from fully healed. It's an interesting journey.

I don't think mHBOT is a complete cure for everyone but it raises the baseline health enough that other treatments are well tolerated. Figuring out those other treatments to get to full health can be an ongoing challenge but much more manageable when you are coming from a body that has some energy and a mind that can think clearly!

Keep up the good work!

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TF
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Hey, Lymeboy! Great to hear from you. And I love your good report. I have thought of you often. So good to know you are now in a good place, and also in California!

Keep in touch with us!!!!

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Tickboy
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I will keep in touch. I've been out running around living the life I thought was gone forever. In fact, being crazy already, I went a little crazier and lived about 3 years worth of life this past year. Injuries sustained and all.

I want to help those that are still suffering. I've been through a lot and I think I have some good stuff to offer here.

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HW88
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It's great to hear good news from others. It always brings so much hope.

I wanted to jump on and update also. I am SO grateful for mhbot. I as well continue to go up and down, but feel I'm moving in the right direction.

These last few days have been some of my BEST days in YEARS!! I know this is a 2 step forward one back, but I figured I would post on a good day.

I took around neighbor christmas treats with my husband yesterday. 1. I actually MADE neighbor treats this year
2. I actually enjoyed talking to people and not just thinking, "when can we go so I can lay down."

Happy diving, team. and Merry Christmas!

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HW88
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tickboy, what were your other treatments that you did along side mhbot.

Also, you say your are in good health, but don't consider yourself cured? Curious what you mean by that. Are you symptom free, or just functioning? Just curious?

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Phoiph
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Hi Lymeboy~

So happy you have come back to share your success story...it is an amazing one!

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Tickboy
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HW88, I am not totally symptom free. I have not been able to shake Bartonella. But I do manage it with A-bart. Stuck on this one. I'm not sure if certain strains of Bart can be eradicated. Not giving up though.

If I have a bad day, it's a few hours, and it's more of an annoyance than anything else. Most "flare ups" involve temper flares, which I was (much less) prone to before getting sick. I do feel a bit of insanity now and then.

"Protocol" - Clean eating, yoga, and MHBOT, along with A-Bart, rotated in with various Bartonella herbs I've been messing with.

I will stress that I had a strict diet for 5-6 years prior. I quit drinking completely in 2010. I started yoga in late 2014. But I didn't come to health, as I'm calling it, until adding HBOT. This was what made me feel normal again. And after so long just scraping by, I felt superhuman at times.
There is A LOT to add here. I cannot say I am cured. I don't know if you can walk around w/ Lyme for 10 years and be rid of all the infections and damage it does. But I am in very good physical health and the best mental health I've experienced in many years. I feel better than I've felt in decades in many ways.

After the holiday craziness dies down, I'll give some more details. It's not quite as simple as I made it out to be. Happy merry holidays everyone!

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Jesse2233
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Tickboy, how many dives did it take before you noticed dramatic improvement?
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Hominahomina
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Tickboy
What kind of chamber do you use ?
How often per week and how long do you dive each time?

Thanks

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keikko
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Yay Tickboy! I am so happy to hear you are doing well!!!! Congratulations [Smile]
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Peimomma
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Congratulations Tickboy,

As someone who is in the 3rd year of treatment I can say I didn't feel 100% until around 30 months and nearly 900 dives.

I felt well enough at 2 years to go back to full time work but still hit a few bumps trying to find a balance in life. I rarely dive now and have gone almost 2 months with no dive. I have residual damage from 20 years being undiagnosed but I'm very confident my lab tests that were recently taken are going to show great things.

Keep diving mHBOTers

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Phoiph
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Happy Holidays to everyone!

Congratulations to all who are now well and able to enjoy their holidays.

For those who are still struggling...I truly understand how difficult the holidays are. Have hope and keep the faith. I never thought I would see another holiday, much less enjoy or participate in one. If it was possible for me to become well, it is possible for you.

Looking forward to healing for all in 2018. The best is yet to come...

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willbeatthis
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Hi Everyone! Happy almost New Year! Tickboy!! Wow~ it is so good to hear from you... Phoiph told us you were doing well! It is great to hear it from you!!

Peimomma- so good to hear from you and that you are still doing well!! HW88 - sounds like real progress is being made!

Sorry I have been out of the loop. I pulled my back out at the end of November and thankfully, am well on the mend now. Still doing my daily dives and on January 29th it will be a year [Smile] So happy!

I have made great strides. I fought my doctor on LDN as it made me herx a lot but he told me that was my immune system turning on so I pushed through and I believe that with mhbot has been life changing. I have very little migratory pain anymore and no headaches to speak of. Pretty dramatic.

Thank you, Phoiph, Digby, Peimomma and all those that came before me. You all are beacon's of light...

To 2018 and continued healing for all.... HUGS!!

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Digby
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Wishing everyone here a Healthy, Prosperous and Peace Filled New Year.
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reminder
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Happy New Year to all here....over 600 dives and having the best 3 days in a row in YEARS.

I know there will be more speed bumps,the difference now is I expect them,will conquer them and enter the next level of wellness)

Enjoying a few gluten free beers and lettuce burger watching football today.....sending a message to anyone looking for hope.....mhbot is working.

All the best,

R

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HW88
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Thanks for the hope reminder.

I need a bit of advice tonight. I gradually came off antibiotics. I was on a 4 days on 3 days off scenario for a while. Then gradually dropped less and less.

I felt the BEST I had since being sick for about 2 weeks after completely stopping antibiotics. Then, crash. I haven't felt like this in a while, which induces quite a panic.

So, my question is: do I go back on antibiotics? Is this normal for coming off antibiotics and if I keep going, I will get over this and continue doing better soon?

Any advice would be really appreciated tonight. I just need some hope and advice from those that have been there.

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Digby
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HW88, Is it possible that without the abx on board, your immune system is kicking in and causing the symptom flair?

I don't think anyone can really answer your question definitively but if it was me (ok, actually it was me at one time) I would stay off the antibiotics and give the HBO a chance. The hardest part is wrestling with the fear when symptoms return.

I hope your flare is short lived. If it is a herx type reaction, you should be feeling better than ever in the next couple of weeks.

Hang in there. May this new year bring us all improved health!

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HW88
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Thank you digby! I really just needed to hear from someone tonight and their opinion.

The fear that I will suddenly crash back to where I was at the beginning is hard to fight... well, that and all the bart mental symptoms, but I need to trust in the process and healing methods I've chosen.

I'm hoping it's just a herx and I will be feeling even better in a few weeks. I've said all along, one of the most frustrating things with this is not know what is going on... is it good that I feel worse? is it from this? from that?

I really do hope it's a good thing and I will be doing MUCH better soon!

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willbeatthis
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Hi HW88: I agree with Digby too. He is right - the fear is the worst. Dr. H- whom I still see - says that typically you will never go back to where you were. So, Praise God, you are making strides and you just have to keep moving forward. The way I look at is -- you can always go back on the ABX down the road if you really feel the need. I know when my thyroid doc wanted me to do ldn due to my mom dying of amyloidosis- in essence, preventative medicine for me- and I flared heavily and I mean heavily- I freaked. I told him NO way. He looked at me with these sad eyes and his nurse and observing nurse - the same eyes and I felt I was the worst patient. So he said, after telling me my immune system was coming back on board and it was a herx not a flare- (And that I needed to call things correctly as well - love those humbling moments)- that I needed to try one every other day and that I could probably push through and if not, I could stop forever. Well, I went home and said, he knows of what he is talking so I went back and pushed through. Gosh am I glad I did. It was a missing key for me I think with mhbot. Praise God for both modalities and for abx when I needed them. For me it has been all about the right tool at the right time... I pray you will start turning the corner. Believe you will... I think that helps too... The mind and body connection cannot be overlooked either. Godspeed friend.... WBT
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Phoiph
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HW88~

I'd like to add that it is often overlooked that many antibiotics have anti-inflammatory effects, and if your body is used to them, there can be reactions when you come off.

Technically, it is not the bugs themselves that make people feel badly; even when it is the flu, for example. It is actually the immune system reacting which makes us feel badly. So, that lends more credence to the idea that you are feeling your immune system kick in, without the benefit of the anti-inflammatory effect of the antibiotics.

As mentioned, know that it is always an option to go back on antibiotics if you feel the need to. I have known people who have done this; waiting until they had more mHBOT under their belt, then successfully have gone off on the second try.

Just like anything else with healing from Lyme, even "good" changes have to be made slowly as to not throw the reactive body into shock.

Remind me...how many consecutive dives have you done to date?

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HW88
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I'm at dive 230. It took me about 50 dives to get to everyday and oxygen.

I'm ok if this is a speed bump. I just panic that everything is coming back!!

Thank you!! I'm going to set about a week and hope I've bumped back up. If not, I will re-evaluate....

I didn't know some antibiotics have anti-inflammatory properties.

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Hominahomina
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HW88 Everyday and oxygen?
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HW88
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yes, everyday with oxygen?
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Phoiph
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HW88~

So, you have done roughly 6 months at the full protocol.

At 6 months, I had improved in many ways, but I was still very unstable. I clearly remember contracting the flu and was absolutely sure that I was regressing and going back to square one. It was very scary.

Turns out, I came through each of those rough patches a little better than before I went into them.

This may be the case with you as well!

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HW88
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Yes. I'm about 5-6 mo. at full protocol.

This is my hope. I look back on this journey and since starting treating, I've dipped and usually come out better afterward. I just have to remember that.

Thank you everyone for the love and support!!!

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reminder
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HW88,

You will come out of it....keep your chin up.

R

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Chronic Lyme

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willbeatthis
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Hi All: I second that Reminder! HW88 -- at 6 months- I was not at the best place that is for sure. Phoiph is always the best authority for questions of this nature. I remember well dealing with not having the anti inflam effects of abx. It is very real. Hang in there girl! You can do this!
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HW88
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Thanks everyone!!! I really can't tell you what your support means. The last few days have been a bit better. I'm hoping I'm on an upward trend.

It's a bit discouraging because I'm revisiting symptoms that I thought I had put behind me. Like I said in other posts, It's hard not to panic when it feels like things are sliding.

I'm hoping it was a bad patch and I will come out of it even better.

I do find it interesting that ABX have an anti inflam effect.

Just started drinking bone broth and going to work on my gut. Not really wanting to go back to antibiotics, but I need to see myself progress without them to have confidence I'm on the right track.

ok, I'm babbling now. Thanks for listening.

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willbeatthis
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Hi HW88- the GAPS diet- foundation bone broth- turned me around when I was coming off of abx. I actually think it helped me come off of them. I think gut health is so important. I know the seemingly backsliding is scary but I think you need to know in your mind that nothing is off the table until you decide for it to be. As one doctor said to me one time, you have many tools in your tool chest, use them. This is a tricky illness that I think you have to handle in stages according to what your body needs. It will tell you. I think we have to lose the fear to some degree and know that indeed, we WILL BEAT THIS! Hugs to you.... I have some bone broth on the stove tonight. It is still a foundation of my diet. Funny, my husband is like please, I want broth with bones, cooked vegetables to the point where you cannot recognize them and basically ripping on the food I eat. Well, so good so far. Thank God he likes to eat what he wants to eat when he wants to eat it and thinks cooking is a poor use of my time (did you hear me say Thank God!) Yes, I am grateful! This is a journey but I believe like Lymeboy, PEImomma and Phoiph, Digby et al.... WE CAN DO THIS! HUGS!
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willbeatthis
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[woohoo]

For you, HW88 for pushing through!! I am proud of you....

Bone broth cheers! [group hug]

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HW88
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willbeatthis, I would love your recipe for bone broth. I purchased kettle and fire, but I don't really love the taste. I think if I could add my own spices and flavor, I would enjoy it more.

It is so strong of a taste to me, I have to water down 1/4 of cup ... but I guess you start somewhere, right.

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HW88
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Also, recipes say to simmer for 24 hrs (chicken). How do you do this without worrying that the stove is on while sleeping?
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Digby
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HW88, you can use a crock pot or do what we do and make it with a pressure cooker! Much faster and tastes the same.
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willbeatthis
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Hey HW88 and Digby: I would recommend the pressure cooker. My recipe is really straight from the GAPS diet book at is no more than an organic chicken cut into eight - with backbone and no giblets. I bring it home submerge in water and heat it with some salt in a big glass corningware soup pot to a boil. Then I turn it down to low and I leave it over night. Then I take it out in the morning, strain the broth in to a pyrex glass container (7 cup) and then I get off the meat, put it away and then I take the bones and skin, cut the bones so marrow can come out, and put this back in the original pot with water and I simmer that for a day or two. So I may not be doing it like others- I don't use vinegar. But it is sure tasty and mild. You could jazz it up. I would encourage you to read the GAPS Diet book about gut health. It is awesome. It truly helped me to come off abx I feel sure. I hope this helps. Like Digby says- a pressure cooker will do it much faster! I'm kind of leisurely with it and it is just part of my life now. Keep moving forward girl! You can do this!! [Smile] [Smile] [Smile]
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willbeatthis
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Forgive me, I left you wondering what to do after the bones simmer for a day or so. Then, I strain those out, dispose of them and then combine the broth which becomes very gelatinous if you leave the chicken in overnight on the lowest setting - with the bone broth that has been strained into a new soup pot that I actually freeze some, use the majority for the base for the cooking of my vegetables - need the flavor and I use some of it in shakes - better than you can imagine. I don't know that I would doctor it up if you want to use it in shakes. GREAT STUFF! Very soothing and the body really digests the slow cooked chicken well too -- really am grateful my practitioner here (one of them) got me on to the GAPS diet. Thinking of you and sorry, it's been a long day. Sorry I forgot the last part -geesh! Night, Night!
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HW88
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thanks digby and willbeatthis! i don't have a pressure cooker, but i think i would feel safe about the crock pot! I'm going to give it a try!

thank you!!!!! I will look into the gaps diet!

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Digby
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willbeatthis, Is there a reason that you don't use the vinegar? It helps quite a bit in removing some of the mineral content of the bone as well as speeding up the process of moving the collagen into the broth. I don't find it adds any noticeable flavor but that might just be me. BTW, lemon juice works well too.
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willbeatthis
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Hi Digby: Well, it's honestly because I just always went by the recipe in the gaps book and I don't think it uses vinegar.

I know this may sound a little odd but a couple years back in a row I tested rather high from lead. In my gut, I wondered if it came from the bone broth-- that could be not right- so, I have not given up the bone broth but I have never leaned towards putting anything else in there to bring out any other element so to speak. It was only a hunch as we really did not know where all the sudden it came from. We tested water etc. The bone broth was about the only thing I was doing different at the time.

Thanks for the encouragement. I would be interested to hear what you think on this. Thanks...

PS I love the crock pot idea!! Amazing!

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Digby
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willbeatthis, Well you are right that bones can contain lead. So, if you are using bones from factory farmed animals you could have a slight risk of increasing your lead load but we always use range free, organically farmed animal sources (usually from a local grower) so that should mitigate the risk.

I like the idea of getting all the minerals in absorb able forms, like Ca, Mg, P, MCHC, etc.

The crock pot just seemed safer and more efficient than leaving something on the stove over night but now that we have perfected using a pressure cooker we like it the best.

Of course there is always Kettle and Fire. I like this product but find it a bit suspect because it doesn't gel. We will often use it mixed in our broth, to extend the time between making more broth ourselves.

BTW, if you can find organic chicken feet for your broth...it looks bizarre sticking up out of the pot but they are loaded with collagen and makes the thickest gel.

Happy Bone Brothing!

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HW88
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Digby, where do you find range free chickens? and feet? I'm learning lots!! Also, how much does it gel? Do you add water to it to drink it? Or does it un-gel (not a word, I know) when you heat it? [woohoo] [woohoo]

Willbeatthis, what GAPS book did you read. There seem to be a thousand?

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Digby
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HW88, we get ours at the local farmer's market. Sometimes the butcher shop gets them in but you have to ask for them.

Yes, it "un-gels" as you heat it. :^)

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HW88
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Digby, Awesome. I will have to check that out. Thanks for all the help!

I was reading some earlier posts on the mhbot thread. Does anyone know how many of those earlier people have gotten better? I'm just curious if there are a handful, or lots?

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Phoiph
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I may be able to give some updates if you have "names"...
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HW88
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So, a few from around 2013 are:

jcarlhelp
socermama
tanya R
spinning122
s13
kgg (I've seen her on here. Don't think she's 100% yet??)
ruwondering2


Really, I guess I just need to hear some success stories. [Smile]

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jcarlnew
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Any reason not to do MBOT if you feel like you are coming down with chest cold but no congestion.
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jcarlnew
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HW88,

I originally started the thread under JCarlhelp because Phoiph and I had talked and she is such a great resource. I bought the chamber mainly for my wife but she has had issues using it and is not a good example. I was diagnosed with lyme back in the early 2000's but am high functioning including playing tennis 3 times per week at 61. I use the chamber about once a week just for inflamation etc. I have followed this thread closely and I know talking from Phoiph she has seen many improvements.

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Digby
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jcarlnew, I have used the chamber when coming down with a virus and I think it helps upregulate the immune system to fight the bug. The only contraindications for this condition would be a high fever or any condition affecting the ears/eustachian tube so you can't equalize the pressure.
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HW88
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thanks Jcarl. I'm glad you are doing well. I hope your wife is as well. It's good to hear happy stories. hopefully phoiph knows about the others.

First, I'm sorry for posting so much recently, I'm just trying to make it through this transition of no antibiotics and trying to figure out what is going on in my body. so a few questions?

1- could bone broth cause insomnia? I know it's touted as a sleep aid, but I'm seriously struggling with insomnia again and the only changes have been no antibiotics and bone broth.

2- Any women out there have hormonal issues after stopping antibiotics? I'm spotting half way through my cycle and feel all the pms symptoms, but I should have another 10 days or so before I have to deal with all this. Wondering if my hormones got out of whack once I stopped antibiotics.

I think I just need to sleep... ugg. I wish I could.

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Digby
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HW88, Keeping in mind that everyone is different, it is unlikely that the bone broth is causing the insomnia. Bone broth is high in Glycine which is said to help sleep.

I don't know how long you've been on abx but if it has been a while, there are many levels of rebalancing that needs to occur to get back to homeostasis. Most people think it is only the gut biome but abx also affect immune function, inflammatory cytokines and even gene expression.

I feel for you. It's hard to know what is actually happening in our bodies, even with lab work and our unique symptom pictures. That is why I encourage people not to micromanage the process. You have nothing to lose to just choose to believe that the long game will be successful healing as you suffer in the short term! Easier said than done, I know.

Hang in there!

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HW88
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Digby, thank you for sticking by me the last few days. Your thoughts are valuable and helpful. I remember you saying early on not to micromanage the symptoms.

I just need to ride this out and let my body adjust. It definitely is easier said than done, but I'm going to give it my best.

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Peimomma
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HW88
I found after all the medication and years of illness plus age my hormones were off. I read the book “How your doctor is slowly Killing you” and learned a lot about what robs us of our hormones.

I started on BHRT 14 months ago and it made a huge difference for the last piece of my healing journey. I can tell when it’s getting close to pellet day, I’m tired, cranky and my joints are a little achy. After my pellet I love everyone...lol

In the bookt tells the different levels of hormone testing and most doctors don’t test deep enough to know how your body is really doing.

I just passed my one year mark of working full time and I’m doing better than I was when I started a year ago. I’m applying for higher level more stressful jobs, leave it to me to test the bounds of wellness...Hahahaha

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HW88
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Peimomma, thank you! I am going to check that book out. I went to a gyno that does TONS of testing right before I figured out I had lyme. My progesterone was off a bit, but nothing huge stood out.

I've always struggled with my hormones, so maybe the book will help.

I'm so so happy for you. I can't believe it's been a year already since you started working. I remember you posting at the beginning of your 'working' journey! I'm so happy for you! I think about you and others a lot when I need to remind myself I can do this.

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Jolley
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Hi Everyone,

HW88, hope you are on the mend, the ups and downs of this journey can be really hard. Hang in there.

Tickboy, so excited for you! Thanks for sharing. So happy for you and the life you are getting to live [Smile]

Wanted to send a quick update in case it would help anyone. I quit daily dives a little shy of the two year mark. Although I initially had a little dip an recurring symptoms, I am on the mend, and able to function working full time, exercise most days, and enjoy life doing whatever I want to do. What an amazing gift. This therapy is truly amazing, and I can't thank Phoiph and Peimomma enough for helping me get started. To get to do whatever I want each day is a miracle I never thought I would experience. There are a few lingering symptoms but they are so so so minor compared to where I started that I just don't even really care.

I feel that the ONLY possible negative of mHbot for me was that my periods got progressively worse and I ended up very low on iron. Supplements helped for a while, but once I quit daily dives, my cycles improved to where I was bleeding less, and I feel much better (no longer overly cold, short of breath, lethargic, etc.) At one point my ferritin level was 9, so I really had to supplement with iron. I will report what my levels are when I go back to my doctor, but know they are much improved. If this is the only downside, then bring on the O2!

Since I quit daily dives, cholestyramine has helped mop up some of whatever was left in my system and causing me to feel sort of depressed or overly stuck on my thoughts. I may be exposed to mold at one of my work sites or home so will continue with this, or charcoal, or whatever to mop things up if this lingers. I continue to work to find a diet that is right for me, and have some lingering food allergies, but am not overly bothered by this, as it is just part of life for some.

If you are continuing to treat, know there is a light at then end of the tunnel. Healing sneaks up on you! Life is an amazing gift, getting to be a part of this, and connect with people without limits is something I am cherishing and not taking for granted.

I would not have quit shy of the two year mark, but had experienced no more gains in over six months of daily dives, and the fear of what would happen when I quit, and if I would relapse, was counterproductive to my healing. So I quit, for 6-8 weeks, before resuming dives twice weekly. All is well and I will continue diving twice weekly, possibly forever [Smile] This is a good space to be in.

At my last appointment, when I first quit daily dives, there was a drop in my CD57 from 90 (something) to 60(something); however, I'm not relapsing now so not worried. My C4A, which was 24,000 before I started, is now down in the 4000 range!

Rick Hanson has a daily email called "One more thing" which is free to sign up for. It has helped me with daily practices to increase my well being. As my physical health has improved I have realized I need to add a few things to help grow my mental strengths as well.

Wishing everyone the best in this new year, a year of healing, reconnecting, and loving well.

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HW88
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Jolley! Thank you! Thank you for your update. It came at a needed time for me. I'm so glad to hear you are enjoying and living life fully!

Your post really gave me a boost.

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kgg
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Yes, thank you for the update Jolley. So good to hear that you are doing well. It is encouraging. Long may it continue!

HW88, I had mid-cycle spotting off and on for years. I was put on progesterone, because I was low in it. It sometimes helps mid-cycle bleeding. I really like the sense of well-being it gave me. An ultrasound revealed some good sized fibroids which was why I was spotting. Unfortunately, I was told by a naturopath and a MD that progesterone cell size is too large to effectively be used as a skin cream. I was on a troche for a while. But found it very expensive. So recently I went back on it but by mouth. Prometrium.

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Peimomma
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Phoiph
Can you give me some insight on something that continues to puzzle me?

I don’t understand why people say “well everyone is different and maybe oxygen worked for you but it didn’t for me” or I don’t think it would for me”

Here’s why I don’t understand this statement. Yes every person is different but anyone that gets picked up by an ambulance or goes to a hospital gets.....OXYGEN!!!. The staff doesn’t say “wait what do they have? Oh they can’t have O2.”

Everyone gets oxygen right?

While I understand that everyone will have a different length of treatment and different ups and downs I cannot understand when people say to me that oxygen won’t work for ....

Before I began my journey you told me to read 3 things
1. The Oxygen Revolution
2. The entire Lymenet thread
3. Your story

As I read all 3 I noted that oxygen is needed desperately by every person and that those treating on Lyme net had the best gains when using your recommendation of 1 hour dives with mask for 2 years and no other therapy like herbs or ozone or abx.

I understand that I had Lyme for 20 plus years and my treatment plan would be longer than say someone like Jolley that may have only had it for 10 years, or the different infections etc, etc, etc.

MHBOT is not a get well quick therapy, one doesn’t exist for Lyme or any other chronic illness.

BTW I’m enjoying a treatment as I type😬 love my chamber and will never give it up.

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Phoiph
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Peimomma~

Your post made me chuckle, as I have heard and wondered the same thing many times [Smile]

Oxygen is the great equalizer...we may have individual differences, but when it comes to the need for oxygen to sustain life, we are all the same!

HW88~

Take heart, there are numerous success stories. I promise you, I would not be wasting all of our time and effort on this if there weren't! I'll try to contact a few people and ask them to update. I know how important it is to have reassurance when you are going through rough times.

In the meantime, to help lift your spirits, here are a few messages I received (from non-LymeNet mHBOT users) on New Year's Day:

__________________________________
"Dear ******,
Thinking of you a lot, with so much gratitude. Three years since starting to see Dr. *******, and a year of using the home chamber. Brain and body much better. (Further to go, but able to continue...)
With deep appreciation,
*****"
__________________________________
"Happy New Year, ******!
Here's an update on my daughter and her LYME.
She has had the machine now for 3 months, she is slowly getting well. The changes are slow, but very evident. She worked 49 hours last week. She did spend one year where she worked 22 hours a week on her best week. Words can not express the gratitude I feel towards you, Dr ******, and ****** for helping us find HOPE. God Bless you!
Thank you,
********"
__________________________________
"Hi ******,
It has been awhile since we corresponded. ***** continues to show improvements in her general health and resistance to getting ill. I hope this finds you in good health and spirits..."

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HW88
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Thank you so much!!! I finally had a good day again yesterday, only to be up all night tonight. I haven't slept a bit. It's getting really hard with insomnia. I still have a lot of anxiety from past insomnia experiences.

Any advice is welcome here. I think I might try a light box and see if it will help my circadian rhythm. I will try to make appts. With my sleep dr. And sleep.psychologist soon. I feel like I'm going to lose it when I don't sleep.

I'm guessing if I hold on a bit, my body will find a homeostasis without antibiotics, but not sure I can wait too long without sleep.

Help!! Ugh. However I am seeing improvement in other areas .... Just hold on, richt?

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jcarlnew
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I have told everybody I know that I have use this app for many years to help sleep. I use it with airtube headphones and it definately helps me go back to sleep. I use the Sleep Stream as main setting and binaural beats settings of 45min Stress to Sleep at bedtime and if I wake up Power Nap 45 https://itunes.apple.com/us/app/sleepstream-2-ultimate/id535583437?mt=8
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HW88
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I will try it!!! Right now, I will try anything!! LOL Thanks jcarl.
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Phoiph
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HW88~

Consider again this quote from Digby:

"I don't know how long you've been on abx but if it has been a while, there are many levels of rebalancing that needs to occur to get back to homeostasis. Most people think it is only the gut biome but abx also affect immune function, inflammatory cytokines and even gene expression."

Also, I know it has been months, but I believe that withdrawal from Klonipin (in addition to the antibiotic withdrawal) may still be affecting your neurotransmitters/hormones/sleep.

I don't know any more effective treatment for this other than time, mHBOT, gut/brain healing diet, and gentle movement (e.g., yoga).

Even if you can't sleep, lying down in a dark, quiet room will help rest your adrenals. Sleep will return; it just takes time.

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Hominahomina
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Is 1.3 ATA enough ?
Hello All
I am reading people that are having success at ATA higher than 1.3
So I am wondering if 1.3 is enough to kill off Lyme and other bacterial/ viral infections long term?

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HW88
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Thanks phoiph. My gut tells me to wait it out and things will settle down again. I know my body is doing weird things chemically right now. I've been spotting for 10 days. Thought I was actually going to start my period and then stopped completely.

I'm trying to be patient. No sleep is a hard one for me, but I'm hanging in here.

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Phoiph
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Hominahomina~

The answer to your questions is "YES". If 1.3 ATA wasn't enough, I (and others) wouldn't have become well.

In fact, if you read this entire thread (which I hope everyone who can, will do), you will find a references to an article by Dr. Harch which I have posted many times that explains why "more is not better" when it comes to neurological conditions (which Lyme is).

In the past, the hyperbaric protocol for chronic Lyme has focused on higher pressures over a limited number of treatments, mainly based on a single study that showed that pathogens were killed at a given higher pressure in the lab. Lower pressures were not tested.

Newer theory and experience focuses less on the "kill" mechanism (although that is a benefit), and more on the "low and slow", consistent approach over time that empowers the immune system, allowing it to do its job on pathogens as it was meant to do.

In this way, the treatment is generally better tolerated, and deeper healing is allowed to take place over time.

There is no quick fix, and I think you will find that if you dig deeper, the initial results that may have been apparent from higher pressures used for short term treatments may not be sustained over time as they are with the consistent lower, slower treatments.

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Hominahomina
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okay thanks
I have not read the article by Dr Harch
I will look over this thread to see if I can find it

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Digby
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So another thing that is helping us is improved mitochondrial density and function from our chamber use. Here's a link : https://www.ncbi.nlm.nih.gov/pubmed/12849745


Hyperbaric therapy is so powerful in so many ways!

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Hominahomina
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I have been looking the links for Dr Harch on this website which was posted here
http://www.mums-network.org/index.htm

I could not find anything on Dr Harch recommending a lower pressure with HBOT
Most of the links referring to Dr Harch are not working

Maybe someone can help out Thanks

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Hominahomina
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Here is more current information I found
http://www.hbot.com

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Phoiph
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Here are some links for you, Homina. Dr. Harch treats his neurological patients with MILD hyperbaric (1.5 ATA or less):

More is Better: The Recurrent Illusion of Higher Pressure HBOT in Chronic Brain Injury, by Dr. Paul Harch: www.wisconsinhyperbarics.com/research-pdf/more-is-better.pdf

Before and after mHBOT SPECT scans of patients with different chronic brain conditions (download PDF from icon at bottom of page): http://www.hbot.com/SPECT-imaging-PDF

"The Oxygen Revolution", an informative book by Dr. Paul G. Harch and Virginia McCollough, along with his website: http://hbot.com. Dr. Harch has been researching and utilizing hyperbaric oxygen treatment for over 20 years. Includes compelling SPECT scans.

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HW88
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homina, are you currently diving?
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Hominahomina
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phoip
I found a youtube series of a woman that documents her progress with HBOT I will post it later I also will read over your posts

HW88 No I am not currently diving I am doing some research and close to getting a chamber

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Hominahomina
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I have having some symptoms and I am wondering if this is Lyme?
I am hoping some of you can offer feedback

When I have an especially active day maybe get some light exercise and go to work and I am feeling pretty good, this happens

I either can't get to sleep easily
or
My sleep is troubled (don't rest well) (in general my sleep is not good but it gets worse on an especially active day )

This is my interpretation
I get wound up and can't wind down easily

Does this happen to other Lyme sufferers?

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Peimomma
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Hi Hominahomina

I think you are referring to me:). I started my journey 3 years ago and last year at year 2 went back to work full time. I’m doing fantastic and so thankful for oxygen therapy. I will continue to dive because we all know we are oxygen deprived even if we have no illness.

It’s always great to see new names on the thread exploring all this therapy has to offer, it’s endless.

I hope to see and or read your updates soon

Dive on mHBOTers

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Legolas
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quote:
Originally posted by Phoiph:
Here are some links for you, Homina. Dr. Harch treats his neurological patients with MILD hyperbaric (1.5 ATA or less):

More is Better: The Recurrent Illusion of Higher Pressure HBOT in Chronic Brain Injury, by Dr. Paul Harch: www.wisconsinhyperbarics.com/research-pdf/more-is-better.pdf

Before and after mHBOT SPECT scans of patients with different chronic brain conditions (download PDF from icon at bottom of page): http://www.hbot.com/SPECT-imaging-PDF

"The Oxygen Revolution", an informative book by Dr. Paul G. Harch and Virginia McCollough, along with his website: http://hbot.com. Dr. Harch has been researching and utilizing hyperbaric oxygen treatment for over 20 years. Includes compelling SPECT scans.

Hey Phoiph,
I've been diving now for about 20 months. I've clearly improved but i'm still far from being recovered.
You're a strong advocate of mild HBOT as it has helped you to fully recover. I wonder if i could somehow improve/accelerate my healing by trying a HBOT pressure greater than 1.3 ATA or even greater than 1.5 ATA.
The article above by dr.Harch seems to be about brain injury and pediatric disorders. We have trouble with our brain, but the underlying cause is immune/metabolic dysfunction. Our brains never suffered an acute lack of oxygen. Do we need to stick to that 1.5 ATA limit? In the study of the fibromyalgia patients they used 2 ATA for 90 minutes, 5days/week and 100% oxygen. Patients improved dramatically after only 40 sessions.
Since CFS and fibro are related, maybe a higher pressure (not 2 ATA) could benefit us too??

Posts: 4 | From Belgium | Registered: May 2015  |  IP: Logged | Report this post to a Moderator
Peimomma
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Hi Legolas,

Do you dive every day for 60 minutes in your chamber with oxygen for the last 20 months?

What altitude do you live? This might be a factor.

Posts: 177 | From AZ | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
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