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» LymeNet Flash » Questions and Discussion » Medical Questions » Morgellons - a question - if infected, please read

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Author Topic: Morgellons - a question - if infected, please read
w0tm
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Hello,

Thank you for taking the time to read this. I've not posted for about a year(?). But I seem to remember there was a new separate forum topic just on Morgellons? Did I remember incorrectly?

Anyway, I have this "CDC delusional parasitosis" fake Morgellons disease as do hundreds of thousands of others. It is exploding even faster than Lyme. As an aside I have the papers proving the CDC faked the evaluation of Morgellons using insurance company Kaiser Permanente to do the evaluation.

The government has good reason to deny Morgellons is real since they paid Stanford U. in 1992 to create a biological warfare agent that became Morgellons in 1996.

Lyme Deja Vu with the aerial spraying of Old Lyme CT with infected ticks in 1975 (believing they had a quick 100% cure - they did not). Reference: the 2004 book title Lab 257 from a government document made public by an

I am a life long high tech research scientist. Lacking any government, corporate, educational system, medical etc. assistance I and others are having to research on our own. I researched Lyme, put my Lyme into remission and ended up writing a book detailing what I did.

I have many questions to ask others infected with Morgellons and need volunteers who will answer a few brief questions about their own Morgellons infection. Will you help?

#1 above all I am trying to pin down the link between Lyme and Morgellons. Many (including me) have believed it is low body pH caused by a damaged (due to Lyme) immune system.

That these tiny Morgellons white creatures and the Morgellons fibers seek me and others (who have/had Lyme) like a magnet believing I am dying (low pH) and seek out my body just as vultures seek out a dying animal.

BUT I've managed to get my pH back to 6.1 and they keep coming faster and in greater number every day. Many people who are not in perfect health a pH of 5.5 to 6 yet none as far as I know are affected by Morgellons.

So what is the association? I'm now baffled. IMO stopping Morgellons will require not only curing or putting Lyme into remission but also breaking this "signal" that those who have or had Lyme apparently "emits". Any educated scientific ideas (even guesses) are welcome.

I have many other questions if you'd be so kind to contact me. I'll make my results known to all who contact me.

This is NOT an ad or anything other than a request. Other than I MAY have invented a way to destroy Morgellons fibers - prototype testing going on.

Unfortunately, it does not affect the white organisms that cause just as much damage to the human body but are not (IMO) long term potentially fatal - to ALL (as I believe the fibers are).

Very few are infected with Morgellons in my city so I need help from others elsewhere. Thank you again for reading.

................................................

(breaking this up for easier reading for many here)

[ 04-22-2016, 10:23 PM: Message edited by: Robin123 ]

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Robin123
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Couple questions for you - I had heard from a top LLMD that Morgellons could be an agrobacterium, such that the body grows fibers like a plant would grow them. Is this theory still being considered?

Second, re timing of Lyme, I read Polly Murray's book, "The Widening Circle," and in it she says her whole family started getting sick in the late 1950s. That's a ways before 1975.

So I'm still inclined to think it was the birds landing on animals in open-air pens at Plum Island and then flying the ticks to CT that started it off, although none of us were there and can't say for sure.

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packypacky
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What kind of "high tech research scientist" are you? very curious to know.

btw, do you know if coffee is acidifying or alkalizing and why?

If you can answer this question I will help you with the research of Morgellons.

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WakeUp
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Hi,
I have had morgellons since about 2005 (I got Lyme in about 1992.

Dr. Sapi believes that Morgellons is yet another spirochete --- [Frown] [Frown] ----- similar to the Bovine Digital Dermatopathy spirochete (treponema brennaborense)-- and that this novel spirochete is possibly fused with another organism.

"Genetic Fusions" are entirely possible in the wild, since both the Agrobacterium and Bartonella bacterias practice what is known as "horizontal gene transfer."

Meaning that genes can be transferred across species within a biofilm colony of bacteria--- creating new and nasty bugs!!

The military/CIA has also been doing this genetic modification (using agrobacterium) to create weaponized versions of these spirochetes and other nasty organisms at taxpayers' expense.

They are either very sloppy, or they are releasing these organisms on the public on purpose.

This work is illegal ---by international Treaty. But who is there to enforce the Treaty? No one.

The offshore elite who control our government dislike us all quite intensely, because we Americans consume too much of the world's resources, it seems..... Anyway.....

The 4 main things that keep Morgellons under control for me are:

MSM-- at least 1 gram a day for several months
Methyl B vitamins

Artemisinin-- take for a few months.

Green Juice powder every day--- including Barley greens to Alkalize the blood. Juiced fresh beet greens seem to be very effective for me also.

You will never get rid of Morgellons, but I seem to have been able to greatly reduce my symptoms with the above supplements. Right now I only have a few pinprick sized lesions--- when before they were the size of a dime, and they never healed.

Oh btw-- interesting that you mention Stanford--- they have been involved in this biological weapons crap up to their ears-- getting lots of money from the government. One of the owners of the fake Lymenet Europe site was originally from Stanford.

..............................................

(breaking up the thread for easier reading for many here)

[ 04-29-2016, 11:51 PM: Message edited by: Robin123 ]

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packypacky
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Wakeup, thanks for this great explanation and tips. On top of what you listed, do you think fungus/candida play an important role in Morgellons?

And is the Lymenet Europe website good or bad?

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WakeUp
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I don't know how much of a role fungus/candida plays in Morgellons-- that needs to be determined by more research---, but scientifically, as of now, we do know that Agrobacterium (bacteria used by scientists for genetic modification) has been found in morgellons lesions,

and Dr. Sapi has found spirochetes in these lesions also--- which she believes are from bovine digital dermatopathy (a spirochete).

Candida and fungus can't be good though, because they disable the immune system-- perhaps Morgellons is a GMO cross between a spirochete and a fungus and/or a protozoan.

The fact that Morgellons responds well to Artemisinin leads me to believe that perhaps there is also some protozoan qualities to Morgellons--- since Artemisinin is used to treat protozoan infections like Malaria.

Its becoming pretty clear that Morgellons is some sort of chimera-- especially given its association with agrobacterium and/or Bartonella, which also allows for horizontal gene transfer within a community of organisms..

As far as Lymenet Europe--- it was created under false pretenses..by a non-patient who worked at a Stanford biological weapons research lab--- and it is therefore fake--- and that can't be a good thing for Lyme patients-- or anyone, for that matter. Secrecy is usually a bad thing.

The site's leadership also promotes and condones the denigration of Lyme patients, as well as the denigration of cutting edge researchers such as Dr. Alan MacDonald and Dr. Eva Sapi.

But this has been known publicly for a long time.

Personally, I stay away from LymenetEurope because of this sketchiness..

.................................................

(breaking up a paragraph for easier reading for many here)

[ 04-29-2016, 11:59 PM: Message edited by: Robin123 ]

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packypacky
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WakeUp, wow, how strange, I first learnt about Dr.Sapi from that site:

Sapi - Antibiotic susceptibility different forms of Bb
http://www.lymeneteurope.org/forum/viewtopic.php?t=3299

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WakeUp
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quote:
Originally posted by packypacky:
Wakeup, thanks for this great explanation and tips. On top of what you listed, do you think fungus/candida play an important role in Morgellons?

And is the Lymenet Europe website good or bad?

Well-- you asked me the question about LymenetEurope--- so I gave you my best and honest opinion--- but you already had your own answer--- as it seems you have already researched that site quite well, and are quite familiar with LymenetEurope-- but thanks for seeking my opinion anyway.

Cheers ---and good luck with your Lyme--

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Phoiph
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w0tm...

What is the title of your book?

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TX Lyme Mom
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This is the most authoritative website for Morgellon's Disease. Their annual conference is being held this weekend in Austin, TX. It will be recorded and CD videos will be available later.

Last year's conference featured breakthrough research by Middelveen, Sapi, Stricker, et al. which was sponsored by the CEHF Morgellon's disease educational organization. Here's a link to their article on Medscape:
http://www.medscape.com/viewarticle/841141

You will have to register at Medscape to view the article, but registration is free and open to the public.

Last year, Dr. S was a featured speaker. She outlined her therapy protocol in detail, explaining that she had had the best luck in using antibiotic combos which are used to treat Bartonella. That video is part of the CD package from last year's conference. I recommend it highly.
http://www.thecehf.org/cehf-merchandise.html

I suspect that they are probably experimenting with Dapsone for treating Morgellon's now, but I could be mistaken. I expect that it will be discussed at this year's conference this weekend.

I attended last year, but I'm unable to attend this year, so I'll just have to wait like everyone else until their CDs from this year's conference become available -- probably not for several months though because they are all unpaid volunteers, most of whom have health problems.

(editing out last name of Lyme-treating professional, per Lymenet rules)

[ 04-29-2016, 11:47 PM: Message edited by: Robin123 ]

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SScott
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I have been fighting lime since 2011, and morgellons since 2014. My personal opinion is that it is definitely a fungus, and likely a hybrid with Bartonella. My symptoms and treatment seem to point in this direction.

I definitely find morg is less active when I am treating with rifabutin. My symptoms when Morg is triggered or mine or lesions, headache, severe brain fog, and A sticky film that covers my skin, and if left alone it will begin to harden. This is especially true in my hair and lips.

It can get triggered in me with high levels of electricity and static electricity, too much electrical or verbal stimulation like a loud movie in the theater well caused it to become much more active.

I also believe the disease is one of toxicity. If I am overly toxic from treating Lyme the morg will get triggered and be especially aggressive. I find alkalizing my body, even taking baking soda baths, Will calm it down.

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jsnyde2
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Can I know the answer about coffee? I just want to know. And why does the list I have state Kona coffee as less acidic?
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Catgirl
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quote:
Originally posted by WakeUp:


The fact that Morgellons responds well to Artemisinin leads me to believe that perhaps there is also some protozoan qualities to Morgellons--- since Artemisinin is used to treat protozoan infections like Malaria.

I agree. Consider coffee enemas.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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Brussels
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I live in Europe, and had visited Lymenet Europe a few times, for the last 12 years (since I got my EM rash).

It's the WORST lyme site ever, very biased, they only think one type of treatment works: antibiotics and that is ALL.

They will BASH anyone who uses 'alternative' therapies, herbs, microcurrent, rife, whatever solution that is not CHEMICAL DRUGS.

It is not an informative site, but on the contrary, it is very biased and useless in my opinion.

Thanks for the info that it has been created for other purposes than exchange of information!

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Brussels
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I hope other people with Morgelons will post here and help gather information.

It's amazing in which world we are living.

Correcting the pH can help a bit (but we need acid pH at times too, specially while detoxing) but in my opinion, it has never solved anything LONG TERM, only short term.

I no longer have lyme, but I fight still chronic candida on and off. The same as with lyme, to concentrate only on pH does not solve the problem, no matter what some people say (in my experience after 30 years of fight...).

the whole immune system is down, and the main question is 'how to make it well again?'

Toxins (nanoparticles included), electrosmog, gut flora imbalance, excess of drugs and drug-toxins, bad processed diet all contribute for a weak immune system.

but also, how can we deal with all these man-made toxins and critters?

All I can say, after traveling all over the world, is that the more 'civilized' is a place, the more crazy diseases exist and affect people.

Poor people living in poor conditions but still in more 'natural' ways in poor countries do not suffer a lot from Morgellons, CFS, chronic lyme usually.

Just look into neurological diseases (specially in the young), chronic allergies or multiple chemical sensitivity and infertility: they are also diseases of civilization.

Just my opinion...

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quote:
Originally posted by SScott:
It can get triggered in me with high levels of electricity and static electricity, too much electrical or verbal stimulation like a loud movie in the theater well caused it to become much more active. [/QB]

Grounding sounds like a good idea. There is a little nifty grounding strap that connects to the wall grounding hole that I use. It is way better than the sheets. I can tell because my sinuses open up when I ground.
-----------------------------

Just thinking out loud here.

Borax solution sprayed on the skin and let dry might be helpful.

Some people try taking DE but I think if these fibers have silica in them then wouldn't DE (silica) feed the process?

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TX Lyme Mom
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SScot, You are in luck because there is a new book available on Morgellons disease by Dr.S who has treated more Morgellons patients than all other ILADS doctors combined.

https://www.amazon.com/Morgellons-legitimization-disease-Factual-Clinical/dp/0997920025/ref=sr_1_1?s=books&ie=UTF8&qid=1485284663&sr=1-1&keywords=morgellons+the+legitimization+of+a +disease

Dr. S is the world's leading authority on Morgellons disease. The foreword to the book is written by Cindy Casey-Holman, RN, who is the founder and president of the Charles E. Holman Morgellons Disease Foundation.

I've read the book and I recommend it very highly. It is user-friendly and very authoritative -- well worth the price.

[ 01-24-2017, 02:49 PM: Message edited by: faithful777 ]

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WakeUp
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To Recap:
Things that have definitely helped me re Morg:
-MSM daily-- 1- 5 grams -- helps to detoxify whatever this thing is growing on
-Artemisinin --- at least 400 milligrams per day -- kills protozoans, parasites and some fungi, but becomes ineffective after about 6 weeks, so needs rotation.
-Green juices

Some researchers have claimed that Lyme disease eventually causes immune incompetence to fungi because one of its outer surface proteins is fungus-like. Hence Morg could have fungus like qualities, meaning that once a person is infected with Lyme, they then are more susceptible to Morg because their immune system is incompetent to it.

One researcher believes Morg to be a version of a rare fungal infection associated with thorn scratches called Sporothrix Schenckii-- indeed Morg does resemble this infection.

Dr. Sapi has also found bovine digital dermatopathy spirochetes in lesions as mentioned above. So it may be a witches brew of biofilm, including bartonella which does horitzontal gene transfer, as does the agrobacterium!

I must admit that I have been scratched by lots of thorns in my garden before Morg symptoms happened, but years after I got lyme.

Also Sporothrix grows on DEAD plant material (hay, old thorns etc)-- hence it could be harbored in cotton-- since cotton is essentially dead plant material.

Just some thoughts. Personally I think it is a complex biofilm of lots of crap.

We will triumph in the end with research and prayer!!!! Thanks, OP.

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WakeUp
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quote:
Originally posted by TX Lyme Mom:
SScot, You are in luck because there is a new book available on Morgellons disease by Dr.S who has treated more Morgellons patients than all other ILADS doctors combined.

https://www.amazon.com/Morgellons-legitimization-disease-Factual-Clinical/dp/0997920025/ref=sr_1_1?s=books&ie=UTF8&qid=1485284663&sr=1-1&keywords=morgellons+the+legitimization+of+a +disease

Dr. S is the world's leading authority on Morgellons disease. The foreword to the book is written by Cindy Casey-Holman, RN, who is the founder and president of the Charles E. Holman Morgellons Disease Foundation.

I've read the book and I recommend it very highly. It is user-friendly and very authoritative -- well worth the price.

Interesting--- thanks for the info, Texas Lyme Mom
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WakeUp
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quote:
Originally posted by SScott:
I have been fighting lime since 2011, and morgellons since 2014. My personal opinion is that it is definitely a fungus, and likely a hybrid with Bartonella. My symptoms and treatment seem to point in this direction.

I definitely find morg is less active when I am treating with rifabutin. My symptoms when Morg is triggered or mine or lesions, headache, severe brain fog, and A sticky film that covers my skin, and if left alone it will begin to harden. This is especially true in my hair and lips.

It can get triggered in me with high levels of electricity and static electricity, too much electrical or verbal stimulation like a loud movie in the theater well caused it to become much more active.

I also believe the disease is one of toxicity. If I am overly toxic from treating Lyme the morg will get triggered and be especially aggressive. I find alkalizing my body, even taking baking soda baths, Will calm it down.

I think your intuition is right. It is a probable chimera ---given the fact that both bartonella and agrobacterium are capable of creating horizontal gene transfer, and are used by genetic researchers for this ability..
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jory
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Brussels, for your chronic candida try using 3g of no-flush niacin (niacinamide or nicotinamide) once a day every day. It does wonders for me and entirely cleared up my GI candida and a horrible yeast skin overgrowth.

I'm late to this thread, but have much to contribute. I have morgellons since July 2016 and am on treatment for just over three weeks now. I will return to post a follow-up message with links to my other Lymenet posts including images etc. Thanks to TF for sending this thread my way.

Jory

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jory has numerous really good tips and is a great asset to lymenet!

I have already referred a few clients to his book and app he wrote/made. Really excellent!

jory is there an amazon link?

[ 05-20-2017, 08:20 PM: Message edited by: lookup ]

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jory
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Thanks Lookup! My books are on amazon in paperback and kindle editions but I'll hold off posting links as I don't want to be mistaken for using Lymenet as a selling vehicle.

That said, if any Lymenet users would like a free copy they can pm me for one, no strings attached.

One book is on parasitic skin infections (useful for morgellons & scabies), and the other is on migraines, mineral deficiency treatment, and is full of recipes and other useful things.

The iphone/ipad app that goes with it is free, pm me for the title so you can find it in the app store.

(breaking up a paragraph for easier reading for many here)

[ 05-22-2017, 01:02 AM: Message edited by: Robin123 ]

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What I like about them is that they are so empowering! Let's face it, people with the itchies from mites,parasitic infections are on their own except for the doc prescribing cortisone cream and toxic topical skin prescriptions.

Itch Mites can carry Lyme/Morgellons and I think it is very fitting to list your books here. Thank you for your work!

S.O.S. Scabies: A Guidebook To Restoring Your Life Paperback – December 23, 2016

https://www.amazon.com/S-O-S-Scabies-Guidebook-Restoring-Your/dp/154127637X/ref=sr_1_fkmr0_4?ie=UTF8&qid=1495325335&sr=8-4-fkmr0&keywords=jori+anick


S.O.S. Scabies: A Solution For Scabies And First Stage Morgellons Kindle Edition

https://www.amazon.com/S-O-S-Scabies-Solution-First-Morgellons-ebook/dp/B01MQZ1J59/ref=sr_1_fkmr0_2?ie=UTF8&qid=1495325335&sr=8-2-fkmr0&keywords=jori+anick

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jory
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I'm glad you like them Lookup! They're both labors of love and kept me sane as I coped (first one in 2012, and second last December).

To find my free iphone/ipad app, type my name into the app store and it'll show up. It's for permanently fixing mineral deficiencies.

Jory

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jory
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This is my story, there are many like it but this one is mine.

https://youtu.be/OzjgP0rQuV4

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jory
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Here's a free download of S.O.S. Scabies PDF Edition:

http://joryanick.com/SOS_Scabies_V121.pdf

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jory
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Part 2: Potassium Permanganate bath emptyings (Jan-Feb 2017)

https://youtu.be/WJYmoc0eDEQ

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ukcarry
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What do people think about the insect/helminth aspect of Morgellons, if there is one?
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jory
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My ordeal began with a tick bite, and I had a major parasitic battle between July-January. I would say morgellons is a TBI co-infection of sorts.
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