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» LymeNet Flash » Questions and Discussion » Medical Questions » Starting Over

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Author Topic: Starting Over
Bartenderbonnie
Frequent Contributor (1K+ posts)
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With heavy heart and great sadness, I am starting over.

After 3 months of sickness and dealing with mainstream doctors for help and getting nowhere but sicker, I finally made an appointment with my LLMD.

I have babesia that came out of nowhere. New symptoms I never had in my 6 year health journey. I am starting new treatment protocol today.

With viruses, mold allergies, strep, and mono, immune system overworked, dormat infections come alive.

I am really sad.

Posts: 1477 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
hiker53
Frequent Contributor (5K+ posts)
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So sorry to hear that, but I know you will get through this set back.

Praying for you.

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 5360 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Oh, Bonnie - so sorry to hear this. You've been through so much already.

Just take one day at a time. You are a trouper!!!

Prayers for your healing journey.

Posts: 8388 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
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So sorry to hear, Bonnie! Once you get babesia behind you, things will definitely be looking UP!

--------------------
 -
oops!
--Lymetutu--
Opinions, not medical advice!

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Keebler
Honored Contributor (25K+ posts)
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-
Rather than "starting over" how about "getting down to business" now? Some sense of relief is deserved.

Most of us have been around so many blocks before finding the right roads for our needs - and it's always a bit of of complicated journey.

Even when seemingly "new" stuff appears, it's a good thing it finally raised its head so it can be addressed. Still, sure, there's that ". . . ugh!" to acknowledge when it seems we take steps backward. It may just be more more of a pivot, though.

How about thinking of it as a brand new chapter, a different kind of road, adjusting the aspects of your adventure?

That all might sound a bit yippy-skippy yet, really, nothing can negate what you have learned along the way. Even when things don't work out as we'd like, hope, need - well, the path you've been on has yielded some important elements and sifted out some not important as well..

Yet, "cheers" for turning a corner on your approach. I hope you can feel lighter after turning this corner and being in a fresh new "neighborhood" so to speak with new options.
-

[ 12-17-2018, 03:38 PM: Message edited by: Keebler ]

Posts: 47351 | From Tranquil Tree House in my dreams | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Many thanks for your well-wishes.
Posts: 1477 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
BobG
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Best Bb. Keep up the fight and keep learning. It will pay off.
Posts: 348 | From Massachusetts | Registered: Dec 2012  |  IP: Logged | Report this post to a Moderator
lindadanis
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so sorry to hear this., you were doing so good. a new protocol, hope it works.
Posts: 368 | From boston, ma | Registered: Feb 2018  |  IP: Logged | Report this post to a Moderator
kidsgotlyme
Frequent Contributor (1K+ posts)
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[group hug]

--------------------
symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

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Phoiph
Frequent Contributor (1K+ posts)
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Hi Bartenderbonnie~

Maybe an opportunity to reconsider mHBOT?

If so, let me know; I'm happy to help you get started.

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nefferdun
Frequent Contributor (1K+ posts)
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The treatment that helped my Bb was Malarone with round of Coartem. I am wondering if I have it back too.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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Bartenderbonnie
Frequent Contributor (1K+ posts)
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I am on malarone and azith.
After 5 days, headache gone.
After 7 days, constant night sweats and fatigue gone.
Amazing combo.

Still dealing with vertigo, pain, tinnitius, blurry vision, melancholy.

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Silverwolf
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Hi <<<<< B'Bonnie >>>>>,

Gentle hugs from Silverwolfi, and prayers for you too.

Don't give up, we care very much what happens to you!!

Jus' Silverwolfi here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

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Bartenderbonnie
Frequent Contributor (1K+ posts)
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Thank you friend and fierce fighter !!!!!! 💚
Posts: 1477 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
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Update:

Within a 3 week period, I have been diagnosised with babesia, Hashimoto's(low thyroid), anemia(low iron), hypoglycemia(low glucose), high EBV, high m pneumonia, and low levels of brucellosis.

These are all new symptoms.

I got sick in September due to outdoor mold spores, I believe.
Downward spiral for my immune system. All latent infections have reared their ugly heads.

Boy is this tough. I still have my sense of humor in between my crying jags.

The only thing rare about Lyme disease is getting a diagnosis of Lyme disease.

Posts: 1477 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
   

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