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» LymeNet Flash » Questions and Discussion » Medical Questions » Bartonella: long-term antibiotic withdrawal

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Author Topic: Bartonella: long-term antibiotic withdrawal
TripleB
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Member # 51845

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I finished up 2 series of Rifampin/minocyclene and I'm surprised that I feel lousy. Treatment was rough, and long-term - and effective. I'm so thankful. I bounced back in the past from every treatment (Borrelia/babesia/bartonella) so here I am asking, "Is Withdrawal a Thing?

Been at this TBI game for years and years. Am following lots of supportive measures. Now I'm winning.
Thanks

Posts: 1 | From Berkshires | Registered: Mar 2019  |  IP: Logged | Report this post to a Moderator
tickbite666
LymeNet Contributor
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Not sure about withdrawal... but relapse is a more serious consideration. You shouldn't stop treatment until symptom free for 2 to 3 months.

I can never get symptom free, but can live OK at 90% and stay on a maintenance abx protocol with herbal support. Dr B states that some of us need to be on abx for the rest of our lives. Sorry to be a downer... in treatment since March 2010.

Posts: 105 | From ground zero | Registered: Mar 2014  |  IP: Logged | Report this post to a Moderator
Brussels
Frequent Contributor (5K+ posts)
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TripleB, just would like to mention I know someone who's been ill with bart, babesia and G knows what more for more than 10 years.

I suggested her to treat viruses, and she's doing that.

No, she's NOT using drugs, only natural or energy treatments.


It's been a whole game changer for her.

I'm still not sure babesia / bart will not come back again, but it's the first time in more than 10 years that she feels like she may be beating babeesia AND bartonela.

She had both Babesia microti and Babesia duncani. Duncani was by far the most damaging, the most persisting, hard to treat.

Bartonella was also a pain in the neck. They go hand in hand with other lyme coinfections...

I think that babs, bart, most lyme infections get stronger in immuno compromised patients who ALSO suffer from chronic VIRAL infections, such as herpes family viral infections.

I got this idea from Anthony William, who's 'just' a medium, but I'm trying to suggest to people to look into viruses as causative for their symptoms, NOT as co-factors of lyme.

I mean, after 10 years of treatment, what do they have to lose?

I've always been open, and I'm a total adept of "trial and error" approaches.

If we don't try, we may NEVER know. I don't have the patience to wait 10 years to see if research will follow.

I like practical approaches: try and see!


Maybe it's just a coincidence, but it seems that for her, babesia and bart may become past history, after more than a decade of incredible war.

She's still symptomatic of viruses, and reacts with natural antiviral approaches (such as liposomal Vit C, licorice, lemon balm etc).

Many of Buhner's herbs also act on viruses (as they are immuno modulator).


In any case, her load of babesia AND bart never had been so low (as far as I know).

Of course, this is only tested energetically.

I'm using the same tests I used for myself and my daughter, to evaluate the bacterial load and see if treatment is working.

It's still early to know, but I'll let you know if she finally succeeds.

Posts: 5927 | From Brussels | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
nefferdun
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I am treating bartonella for the third time - 2009, 2013 and now.

It is easy when you have been really sick for a long time (infected in 2006) to dismiss less dramatic symptoms and just accept the "new normal" as part of aging. That is what happened to me.

Rifampin never did anything for me. Bactrim DS was the only thing that worked, so maybe what I have is the "bartonella like organism".

I can't tolerate abx long term so I am on and off, supplementing herbs in between. The drugs make a dramatic difference but the side effects cause me to quite.

I am off again after only 6 weeks. My eyes were getting swollen in the morning and I was developing tendonitis in a shoulder.

When I started Bactrim, my daily headaches disappeared almost immediately and the pains in my heart went away in a few days. My eyes are no longer dry and my skin appears clearer (less weird pigmentation). I still have sore feet in the morning and the apathetic feeling - depersonalization.

That feeling of apathy makes it very hard for me to keep treating. I just want to give up. Whereas in the past I was diligent about my diet and exercise, it is much harder now to stay on top of it.

You might be detoxing after being on the drugs for so long.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4649 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
   

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